SomnusNooze e-newsletter

HF is getting ready to mark Idiopathic Hypersomnia Awareness Week, September 4-10 ! Created by Hypersomnolence Australia, we plan to do our part to help raise awareness during IHAW. Please put the dates in your calendar, and be sure to check our social media each day during this important awareness event!

The Hypersomnia Foundation will have a booth at the Exhibit Hall at the World Sleep Congress meeting in Prague this October! “We believe it is important to take this opportunity to increase awareness of IH at this important global meeting of sleep professionals,” said Diane Powell, Chairwoman of HF’s Board of Directors. “It’s also encouraging […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! HF will exhibit and network among nearly 2,000 college health providers to raise awareness of IH and provide education about rare sleep disorders to those most likely to be consulted by sleepy students. As part of […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! HF will exhibit and network among more than 5,000 sleep medicine […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! HF will exhibit and network among nearly 3,600 school counselors to […]

This Seattle meeting will be one of a series of educational meetings HF will begin holding in 2019 and beyond. We hope that holding one-day meetings in a variety of […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! As part of HF’s new 2019 initiative, we are reaching out […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! The Hypersomnia Foundation has accepted an invitation to work with SBSM […]

Understanding Narcolepsy and Hypersomnia: Insights and Perspectives This free event is open to everyone! HF is collaborating with Wake Up Narcolepsy to hold an Education Day on Saturday, September 21st […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! As part of HF’s new 2019 initiative, we are reaching out […]

The Hypersomnia Foundation is holding a Patient Education Meeting on Saturday, October 19th in Chicago at the Sheraton Suites O'Hare Hotel, from 10:00 a.m. - 3:00 p.m. Tickets are $25 […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! HF is participating in this event and providing a patient panel […]

The Hypersomnia Foundation has CANCELLED our June 2020 Conference. Due to the COVID-19 restrictions and concern for the healthand safety of our community, the Hypersomnia Foundation is canceling our June […]

Note:  If you are looking for info on HF's conference in June 2020 for people with idiopathic hypersomnia, narcolepsy & KLS and their supporters (friends, families, and significant others!), please […]

This event is open to both patients and sleep medicine professionals. Due to the COVID-19 pandemic, this meeting will be virtual. Get the program, keeping in mind that Berlin is […]

As part of our mission to raise awareness about IH and related disorders, HF will be attending the American School Health Association’s 2020 virtual conference, where our Medical Advisory Board […]

FREE VIRTUAL CONFERENCE! The Society of Anesthesia and Sleep Medicine’s (SASM) 10th Annual Meeting is October 1-2, 2020. This year's theme is “Innovation & Synergism in Sleep, Perioperative Care & […]

The COVID-19 pandemic has left many in the hypersomnia community wondering about the status of clinical trials and research studies—how have they been affected by the lockdowns and safety advisories? Find out the latest answers! Join us on October 24 for a FREE, interactive, 90-minute virtual program, during which hypersomnia experts from both the research […]

Join us on January 30 for a FREE, interactive, 90-minute virtual program, during which you will learn about the emotional aspects of disability and how to choose the right support group for you—or even start your own. You will not want to miss this virtual event! Sessions will include discussions with: Anjel Burgess, Esq, of […]

Introducing the Hypersomnia Foundation’s new “MEET & GREET” series - interactive meetings with members of our community, to give us a chance to talk informally, and let community members meet one another! The first meeting in the series, “I’m Newly Diagnosed - What Does This Mean?” is scheduled for May 1 at 1:00 p.m. Eastern/10:00 […]

Join us on May 11 at noon (Eastern) for a FREE virtual event: Diagnosing Hypersomnia Differently—A European Proposal. Did you know? Sleep researchers around the world are working hard to improve our understanding of hypersomnias and developing new methods of diagnosis and treatment. We've invited Dr. Gert Jan Lammers of Leiden University in the Netherlands […]

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. From the […]

Join us on Thursday, June 17 at 7:00 p.m. (Eastern) for our VIRTUAL MEET & GREET - “Self-Advocacy: Getting Your Best Care.” Turn your cameras on as we talk about […]

Join us Thursday, June 24, 2021 at 12:00-1:30 p.m. (Eastern) for our FREE virtual event "Your Best Self: Getting Your Meds!”- Reducing out of pocket cost for prescription medications and […]

Registration is now open for the upcoming NIH NINDS HEADWAY Health Disparities and Inequities in Neurological Disorders Workshop. The event will be held virtually from September 22nd through 24th from […]

The Society of Anesthesia and Sleep Medicine (SASM) 2021 Virtual Annual Meeting “Sleep Health: The New Vital Sign” Registration is now open for the SASM Annual Meeting on October 7-8, […]

For registration in French, click HERE. The Canadian Sleep Society (CSS) is hosting a virtual conference. In addition to the main scientific program, it will also feature patient engagement sessions […]

Reaching Every Patient: A Health Equity Conversation - An HF VIRTUAL Event Saturday, November 13th 12noon-2pm (EST) Let’s talk about how we can help everyone with a rare sleep disorder […]

Join us on Saturday, January 15, 2022 at 1:00-2:30 p.m. (Eastern)  for our VIRTUAL MEET & GREET - "We're in This Together!" Is it a challenge for you (and your […]

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. Check out the keynote […]

Join us in Charlotte, North Carolina on June 3 – 5, 2022! Join us in beautiful Charlotte for the Hypersomnia Foundation's #BeyondSleepy Conference 2022 for people with idiopathic hypersomnia, narcolepsy, […]

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. From the website https://www.sleepmeeting.org/about/: SLEEP […]

NOTE: The intended audience for this CME/CE certified symposium is sleep specialists, psychiatrists, neurologists, and advanced-practice clinicians. The Hypersomnia Foundation is partnering with Haymarket Medical Education on a complimentary accredited […]

UNIGHT - Discuss. Share. Connect. Monday, January 30th at 7:00 p.m. (Eastern) Join us on the last Monday of every month via Zoom at 7:00 PM (Eastern) / 4:00 PM […]

UNIGHT - Discuss. Share. Connect. Monday, February 20th at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a […]

UNIGHT - Discuss. Share. Connect. Monday, March 27th at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a […]

UNIGHT - Discuss. Share. Connect. Monday, April 24 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly […]

UNIGHT - Discuss. Share. Connect. Monday, May 22 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly […]

Join us in Indianapolis, Indiana from June 2 to 4, 2023 for the Hypersomnia Foundation's 2023 #BeyondSleepy Conference for people with idiopathic hypersomnia, narcolepsy, and Kleine-Levin syndrome and their supporters. […]

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. From the website https://www.sleepmeeting.org/about/: SLEEP […]

UNIGHT - Discuss. Share. Connect. Monday, June 26 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly […]

UNIGHT - Discuss. Share. Connect. Monday, July 31 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly […]

UNIGHT - Discuss. Share. Connect. Monday, August 28 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly […]

UNIGHT - Discuss. Share. Connect. Monday, September 25 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly […]

UNIGHT - Discuss. Share. Connect. Monday, November 27 at 7:00 p.m. (Eastern) Join us every month via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for UNIGHT – a monthly […]

UNIGHT - Discuss. Share. Connect. Monday, December 18 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about […]

UNIGHT - Discuss. Share. Connect. Monday, January 29 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. The month’s UNIGHT is Monday, January 29 at 7:00 PM (Eastern) / 4:00 PM (Pacific) with special […]

UNIGHT - Discuss. Share. Connect. Monday, February 26, 2024 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. The month’s UNIGHT is Monday, February 26th. We will meet via Zoom at 7:00 PM […]

UNIGHT - Discuss. Share. Connect. Monday, March 25, 2024 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. The March UNIGHT meeting will discuss “Nutritional Considerations for Central Disorders of Hypersomnolence” with special guest […]

UNIGHT - Discuss. Share. Connect. Monday, April 29, 2024 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. This month’s UNIGHT discusses “Mental Health in Central Disorders of Hypersomnolence” with special guest Alicia […]

Join us in Houston, Texas from May 31 - June 2, 2024!   REGISTER HERE! Join us in beautiful Houston, Texas for the Hypersomnia Foundation's #BeyondSleepy 2024 Conference for people with idiopathic hypersomnia, narcolepsy, and Kleine-Levin syndrome and their supporters. We have a wonderful mix of speakers covering the latest in research, treatments, and clinical trials; networking and […]

UNIGHT - Discuss. Share. Connect. Monday, June 24, 2024 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. Join this month’s UNIGHT for a discussion with Maggie G. Lavender, MSN, RN, FNP-C, on […]

UNIGHT - Discuss. Share. Connect. Monday, July 29, 2024 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. The month’s UNIGHT is a discussion on “Using Your Voice For Change” featuring special guest Josh […]

UNIGHT - Discuss. Share. Connect. Monday, August 26, 2024 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. Join us on Monday, August 26 via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for […]

UNIGHT - Discuss. Share. Connect. Monday, September 30, 2024 at 7:00 p.m. (Eastern) via Zoom UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. Join us Monday, September 30 via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for […]

UNIGHT - Discuss. Share. Connect. Monday, November 25, 2024 at 7:00 p.m. (Eastern) via Zoom This month's topic: Actigraphy in Central Disorders of Hypersomnolence: Wearables and Sleep Tracking  UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. Join us on Monday, […]

UNIGHT is a free virtual get-together for people who care for someone who has a sleep disorder. This group will meet on the second Wednesday of each month via Zoom and will be led by the amazing Christine Ingrassia!⁠

Join on Friday March 14, 2025 for a #BeyondSleepy Webinar where we discuss emerging and important topics relevant to the sleep community. This webinar is free. All are welcome.

Join us in Seattle, WA from June 6 - June 8, 2025! Join us at the Westin Seattle from June 6-8, 2025, for the Hypersomnia Foundation’s #BeyondSleepy 2025 Conference—an event dedicated to people with idiopathic hypersomnia, narcolepsy, and Kleine-Levin syndrome, as well as their supporters. We’re bringing together a fantastic lineup of expert speakers to share […]