Personal Journey Stories

Spotlight—People With Hypersomnias

What is it like to walk a mile in the shoes of people with hypersomnias? Read their personal stories below.

Or find all our Personal Journey stories HERE.


To check out HF volunteer Victoria Kirby-York telling her IH story to Science Magazine, click HERE.


Personal Journey Stories

2020 October – Christina Brundage, HF Volunteer and IH Patient Advocate – “Christina’s Story: Volunteering for IH Clinical Trials

2020 October – Michelle Emrich, MD – “A Doctor’s Once Agile Brain Broken by IH” – Video courtesy of Michelle Emrich

2020 October – Meghan Mallare – “Sleeping My Life Away” – Video courtesy of Meghan Mallare

Share Your Journey

Coming to terms with having a chronic condition such as idiopathic hypersomniaKleine-Levin syndrome, or narcolepsy often involves a long and sometimes convoluted process. Unfortunately, the journey does not end once the correct diagnosis is reached. Knowing that others have taken a similar journey, however, can lessen a person’s burden. And hearing about others’ coping strategies can help people who are currently struggling.

Maybe you found the words that made a doctor finally listen to you. Perhaps you developed specific techniques over the years that helped you to function. Possibly you identified a new career that enabled you to maximize your potential. Don’t leave other folks with hypersomnia by the side of the road to complete this journey alone. Consider assisting others by sharing your story with the Hypersomnia Foundation? Click below to share your journey with HF.

You can also apply to match with a medical student who wants to learn more about living with a rare disease: Global Genes RARE Compassion Project.

Share Your Journey


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The Hypersomnia Foundation makes no representations or warranties about the satisfaction of any government regulations requiring disclosure of information on prescription drug products. In no event shall The Hypersomnia Foundation be liable for any damages (including without limitation incidental and consequential damages) or costs (including without limitation attorney’s fees) based on any claim arising from the use of this website and/or its content.