Let’s Get
#Beyond
The Hypersomnia Foundation is committed to improving
the lives of people living with idiopathic hypersomnia (IH)
and related sleep disorders.
What Is Idiopathic Hypersomnia?
Idiopathic Hypersomnia (IH) is a chronic neurological sleep disorder, causing excessive daytime sleepiness despite adequate, or more typically, long sleep amounts (more than 9-10 hours in a 24-hour period). People with IH often struggle to wake, despite setting multiple alarms, and have difficulty rising from bed (called sleep inertia). They may start the day feeling extremely groggy (sometimes referred to as sleep drunk), and can experience significantly reduced focus and concentration during waking hours (called brain fog).
People suffering from idiopathic hypersomnia often live without a correct diagnosis for a long time, blaming themselves and struggling to maintain work, studies and relationships.
Living With IH
Newly Diagnosed
“I’ve just been diagnosed with idiopathic hypersomnia. What does this mean?”
The Hypersomnia Foundation has compiled FIVE THINGS FOR YOU TO KNOW to give you the information and resources you need to help you take the first steps forward in understanding and coping with your new diagnosis.
Patients & Supporters
The Hypersomnia Foundation is here to support people with hypersomnias, their families and their supporters. HF has compiled and created many free resources, such as informational brochures and educational tools, to help with aspects of your daily lives that are affected by living with a hypersomnia or supporting someone who does.
Treating IH
Healthcare Providers
The Hypersomnia Foundation provides numerous free resources for healthcare professionals and educators, including patient materials, listing in our provider directory, links to clinical trials and much more…
Researchers/Pharma
The Hypersomnia Foundation supports researchers and pharmaceutical companies working toward improving the lives of people with IH and related hypersomnias. Find out about our research award program, our international patient registry and much more….
News
March 17, 2023
In Case You Missed It! – February/March 2023
If you’ve missed any of the latest news we’ve shared through our social media, don’t worry! Get up to date with this edition of “In Case You Missed It!” Project Sleep is seeking... read >
March 17, 2023
Highlights from #BeyondSleepy Satellite: Together in Salt Lake City
The Hypersomnia Foundation held our first #BeyondSleepy Satellite event in Salt Lake City on March 4, 2023. This was the first in a series of one-day hybrid conferences being held throughout... read >
March 17, 2023
LIVING WITH… The Hypersomnia Foundation’s New YouTube Series
On March 17, 2023, the Hypersomnia Foundation launches the premiere episode of LIVING WITH... a monthly YouTube series that expands awareness of idiopathic hypersomnia, healthy sleep habits,... read >
HF Twitter Feed
@HypersomniaNews #BeyondSleepy
We are pleased to be funding five scholarships for college-bound high school seniors with idiopathic hypersomnia… https://t.co/UTFUWN731i
9 hours ago
Watch the premiere of our new YouTube series 𝐋𝐈𝐕𝐈𝐍𝐆 𝐖𝐈𝐓𝐇…! Join host Claire Wylds-Wright in a conversation with Dr.… https://t.co/cuQTAefwXg
1 week ago
REGISTER TODAY to attend the #IHaveIH panel discussion on LinkedIn Live on March 16 @ 2PM ET. Hosted by Jazz Pharma… https://t.co/MLggRuyQnv
1 week ago
REGISTRATION IS NOW OPEN for our #BeyondSleepy 2023 Conference June 2-4, 2023 at The Alexander Hotel in Indianapoli… https://t.co/LSbqAB4ZHz
1 week ago
Events
Monday, March 27, 2023
VIRTUAL: UNIGHT – Discuss. Share. Connect.
Friday, June 2 - Sunday, June 4, 2023
Indianapolis, IN – HF Conference
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