Let’s Get
#Beyond
The Hypersomnia Foundation is committed to improving
the lives of people living with idiopathic hypersomnia (IH)
and related sleep disorders.
What Is Idiopathic Hypersomnia?
Idiopathic Hypersomnia (IH) is a chronic neurological sleep disorder, causing excessive daytime sleepiness despite adequate, or more typically, long sleep amounts (more than 9-10 hours in a 24-hour period). People with IH often struggle to wake, despite setting multiple alarms, and have difficulty rising from bed (called sleep inertia). They may start the day feeling extremely groggy (sometimes referred to as sleep drunk), and can experience significantly reduced focus and concentration during waking hours (called brain fog).
People suffering from idiopathic hypersomnia often live without a correct diagnosis for a long time, blaming themselves and struggling to maintain work, studies and relationships.
Living with IH
Newly Diagnosed
“I’ve just been diagnosed with idiopathic hypersomnia. What does this mean?”
The Hypersomnia Foundation has compiled FIVE THINGS FOR YOU TO KNOW to give you the information and resources you need to help you take the first steps forward in understanding and coping with your new diagnosis.
Patients & Supporters
The Hypersomnia Foundation is here to support people with hypersomnias, their families and their supporters. HF has compiled and created many free resources, such as informational brochures and educational tools, to help with aspects of your daily lives that are affected by living with a hypersomnia or supporting someone who does.
Treating IH
Healthcare Providers
The Hypersomnia Foundation provides numerous free resources for healthcare professionals and educators, including patient materials, listing in our provider directory, links to clinical trials and much more…
Researchers/Pharma
The Hypersomnia Foundation supports researchers and pharmaceutical companies working toward improving the lives of people with IH and related hypersomnias. Find out about our research award program, our international patient registry and much more….
News
September 25, 2020
IH Symptom and Treatment Insights From the HF Patient Registry at CoRDS
Since March 2015, over 2,300 people have joined the HF International Patient Registry at CoRDS. We now have a valuable dataset for researchers to study and a new research paper has just been... read >
September 15, 2020
Do I Have IH or NT2?
If you are uncertain whether you have idiopathic hypersomnia (IH) or narcolepsy type 2 (NT2), you are not alone. Sleep doctors are also asking this question, as sleep study results on the... read >
September 15, 2020
In Case You Missed It! – September 2020
Autumn will soon be upon us! We hope everyone will be able to enjoy cooler weather and the changing of the leaves! We are grateful to be able to keep in contact with our community through... read >
HF Twitter Feed
@HypersomniaNews #BeyondSleepy
𝗥𝗘𝗚𝗜𝗦𝗧𝗥𝗔𝗧𝗜𝗢𝗡 𝗡𝗢𝗪 𝗢𝗣𝗘𝗡 for “The Research Continues” Hypersomnia Foundation’s FREE virtual Hypersomnia Educational ev… https://t.co/hKKMqDvTlY
3 hours ago
Read the latest research from the Hypersomnia Foundation’s International Patient Registry at CoRDS! Find a summary… https://t.co/7NZAhySlqy
23 hours ago
𝗥𝗲𝗴𝗶𝘀𝘁𝗲𝗿 𝗳𝗼𝗿 𝗮 FREE Virtual SASM Conference on October 1st featuring HF Volunteer Meghan Mallare and HF Board Membe… https://t.co/BckwfVJnkY
1 day ago
RT @guy_lesch: Disease symptomatology and response to treatment in people with idiopathic hypersomnia: initial data from the Hyper… https:/…
4 days ago
Events
Thursday, October 1 - Friday, October 2, 2020
VIRTUAL: Society of Anesthesia and Sleep Medicine 10th Annual Meeting
Saturday, October 24, 2020
VIRTUAL: HF’s The Research Continues
Follow Us on Facebook
Not on Facebook, but want to see our Facebook news? You can scroll our posts below without leaving our website. Or click below to go directly to our Facebook page.