Let’s Get
#Beyond
The Hypersomnia Foundation is committed to improving
the lives of people living with idiopathic hypersomnia (IH)
and related sleep disorders.
What Is Idiopathic Hypersomnia?
Idiopathic Hypersomnia (IH) is a chronic neurological sleep disorder, causing excessive daytime sleepiness despite adequate, or more typically, long sleep amounts (more than 9-10 hours in a 24-hour period). People with IH often struggle to wake, despite setting multiple alarms, and have difficulty rising from bed (called sleep inertia). They may start the day feeling extremely groggy (sometimes referred to as sleep drunk), and can experience significantly reduced focus and concentration during waking hours (called brain fog).
People suffering from idiopathic hypersomnia often live without a correct diagnosis for a long time, blaming themselves and struggling to maintain work, studies and relationships.
Living With IH
Newly Diagnosed
“I’ve just been diagnosed with idiopathic hypersomnia. What does this mean?”
The Hypersomnia Foundation has compiled FIVE THINGS FOR YOU TO KNOW to give you the information and resources you need to help you take the first steps forward in understanding and coping with your new diagnosis.
Patients & Supporters
The Hypersomnia Foundation is here to support people with hypersomnias, their families and their supporters. HF has compiled and created many free resources, such as informational brochures and educational tools, to help with aspects of your daily lives that are affected by living with a hypersomnia or supporting someone who does.
Treating IH
Healthcare Providers
The Hypersomnia Foundation provides numerous free resources for healthcare professionals and educators, including patient materials, listing in our provider directory, links to clinical trials and much more…
Researchers/Pharma
The Hypersomnia Foundation supports researchers and pharmaceutical companies working toward improving the lives of people with IH and related hypersomnias. Find out about our research award program, our international patient registry and much more….
News
September 28, 2022
In Case You Missed It! – September 2022
If you’ve missed any of the latest news we’ve shared through our social media this month, don’t worry! Get up to date with this edition of “In Case You Missed It!” Welcome... read >
August 30, 2022
In Case You Missed It! – August 2022
If you’ve missed any of the latest news we’ve shared through our social media this month, don’t worry! Get up to date with this edition of “In Case You Missed It!” New medicine... read >
July 29, 2022
In Case You Missed It! – July 2022
If you’ve missed any of the latest news we’ve shared through our social media this month, don’t worry! Get up to date with this edition of “In Case You Missed It!” WELCOME!: Dr.... read >
HF Twitter Feed
@HypersomniaNews #BeyondSleepy
Register today for the Zoom meeting of the Colorado Narcolepsy & Idiopathic Hypersomnia Support Group. Sat, 10/8 @… https://t.co/8226sWITEj
1 day ago
Thank you, @centessa, for inviting us to be a part of this great event! https://t.co/fkjYCc2w9j
5 days ago
Check your inbox for the latest issue of our free enewsletter SOMNUSNOOZE for stories, news, and updates from the w… https://t.co/nEAMLKu8Rx
6 days ago
Thank you, @HarmonyBio for selecting the Hypersomnia Foundation as a recipient of your 2022 “Patients of the Heart”… https://t.co/LH4xms9p0r
1 week ago
Events
Friday, June 2 - Sunday, June 4, 2023
Indianapolis, IN – HF Conference
Saturday, June 3 - Wednesday, June 7, 2023
Indianapolis: APSS SLEEP 2023 (a conference for sleep medicine professionals)
Follow Us on Facebook
Not on Facebook, but want to see our Facebook news? You can scroll our posts below without leaving our website. Or click below to go directly to our Facebook page.