Let’s Get
#Beyond
The Hypersomnia Foundation is committed to improving
the lives of people living with idiopathic hypersomnia (IH)
and related sleep disorders.
What Is Idiopathic Hypersomnia?
Idiopathic Hypersomnia (IH) is a chronic neurological sleep disorder, causing excessive daytime sleepiness despite adequate, or more typically, long sleep amounts (more than 9-10 hours in a 24-hour period). People with IH often struggle to wake, despite setting multiple alarms, and have difficulty rising from bed (called sleep inertia). They may start the day feeling extremely groggy (sometimes referred to as sleep drunk), and can experience significantly reduced focus and concentration during waking hours (called brain fog).
People suffering from idiopathic hypersomnia often live without a correct diagnosis for a long time, blaming themselves and struggling to maintain work, studies and relationships.
Living With IH
Newly Diagnosed
“I’ve just been diagnosed with idiopathic hypersomnia. What does this mean?”
The Hypersomnia Foundation has compiled FIVE THINGS FOR YOU TO KNOW to give you the information and resources you need to help you take the first steps forward in understanding and coping with your new diagnosis.
Patients & Supporters
The Hypersomnia Foundation is here to support people with hypersomnias, their families and their supporters. HF has compiled and created many free resources, such as informational brochures and educational tools, to help with aspects of your daily lives that are affected by living with a hypersomnia or supporting someone who does.
Treating IH
Healthcare Providers
The Hypersomnia Foundation provides numerous free resources for healthcare professionals and educators, including patient materials, listing in our provider directory, links to clinical trials and much more…
Researchers/Pharma
The Hypersomnia Foundation supports researchers and pharmaceutical companies working toward improving the lives of people with IH and related hypersomnias. Find out about our research award program, our international patient registry and much more….
News
June 29, 2022
Hypersomnia Foundation Hosted the Largest Patient-Centered Sleep Conference Ever This June
Earlier this month, 586 people attended the Hypersomnia Foundation 2022 #BeyondSleepy Conference for people with idiopathic hypersomnia (IH) and related sleep disorders, such as narcolepsy... read >
June 29, 2022
In Case You Missed It! – June 2022
If you’ve missed any of the latest news we’ve shared through our social media this month, don’t worry! Get up to date with this edition of “In Case You Missed It!” TRIAL UPDATE:... read >
May 25, 2022
Virtual HF Conference Is Now Free. Register Today!
Register today for HF’s #BeyondSleepy Conference 2022 for people with IH, narcolepsy, and KLS and their supporters. Virtual attendance is now free, and there are still in-person seats... read >
HF Twitter Feed
@HypersomniaNews #BeyondSleepy
Check your inbox for the latest issue of our free enewsletter SOMNUSNOOZE for stories, news, and updates from the w… https://t.co/CUeUXRn7CF
2 days ago
RT @project_sleep: ✨TOMORROW, Wed 6/29 @ 1pm ET: #NarcolepsyNerdAlert Types of Narcolepsy will explore the latest research and perspectives…
3 days ago
STUDY EXPANDED TO INCLUDE PARTICIPANTS OUTSIDE OF THE US.
Northwestern is seeking participants for their EXPLAIN S… https://t.co/ZgrHnHDerP
1 week ago
Join @project_sleep in Nashville on Sat, Aug 13 for "Innovations in Narcolepsy Awareness & Advocacy," a unique one-… https://t.co/IYVKF1Hmob
2 weeks ago
Events
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