The Hypersomnia Foundation is committed to improving
the lives of people living with idiopathic hypersomnia (IH)
and related sleep disorders.
Idiopathic Hypersomnia (IH) is a chronic neurological sleep disorder, causing excessive daytime sleepiness despite adequate, or more typically, long sleep amounts (more than 9-10 hours in a 24-hour period). People with IH often struggle to wake, despite setting multiple alarms, and have difficulty rising from bed (called sleep inertia). They may start the day feeling extremely groggy (sometimes referred to as sleep drunk), and can experience significantly reduced focus and concentration during waking hours (called brain fog).
People suffering from idiopathic hypersomnia often live without a correct diagnosis for a long time, blaming themselves and struggling to maintain work, studies and relationships.
“I’ve just been diagnosed with idiopathic hypersomnia. What does this mean?”
The Hypersomnia Foundation has compiled FIVE THINGS FOR YOU TO KNOW to give you the information and resources you need to help you take the first steps forward in understanding and coping with your new diagnosis.
The Hypersomnia Foundation is here to support people with hypersomnias, their families and their supporters. HF has compiled and created many free resources, such as informational brochures and educational tools, to help with aspects of your daily lives that are affected by living with a hypersomnia or supporting someone who does.
September 25, 2020
Since March 2015, over 2,300 people have joined the HF International Patient Registry at CoRDS. We now have a valuable dataset for researchers to study and a new research paper has just been... read >
September 15, 2020
If you are uncertain whether you have idiopathic hypersomnia (IH) or narcolepsy type 2 (NT2), you are not alone. Sleep doctors are also asking this question, as sleep study results on the... read >
September 15, 2020
Autumn will soon be upon us! We hope everyone will be able to enjoy cooler weather and the changing of the leaves! We are grateful to be able to keep in contact with our community through... read >
𝗥𝗘𝗚𝗜𝗦𝗧𝗥𝗔𝗧𝗜𝗢𝗡 𝗡𝗢𝗪 𝗢𝗣𝗘𝗡 for “The Research Continues” Hypersomnia Foundation’s FREE virtual Hypersomnia Educational ev… https://t.co/hKKMqDvTlY
3 hours ago
Read the latest research from the Hypersomnia Foundation’s International Patient Registry at CoRDS! Find a summary… https://t.co/7NZAhySlqy
23 hours ago
𝗥𝗲𝗴𝗶𝘀𝘁𝗲𝗿 𝗳𝗼𝗿 𝗮 FREE Virtual SASM Conference on October 1st featuring HF Volunteer Meghan Mallare and HF Board Membe… https://t.co/BckwfVJnkY
1 day ago
RT @guy_lesch: Disease symptomatology and response to treatment in people with idiopathic hypersomnia: initial data from the Hyper… https:/…
4 days ago
Thursday, October 1 - Friday, October 2, 2020
Saturday, October 24, 2020
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