Let’s Get
#Beyond
The Hypersomnia Foundation is committed to improving
the lives of people living with idiopathic hypersomnia (IH)
and related sleep disorders.
What Is Idiopathic Hypersomnia?
Idiopathic Hypersomnia (IH) is a chronic neurological sleep disorder, causing excessive daytime sleepiness despite adequate, or more typically, long sleep amounts (more than 9-10 hours in a 24-hour period). People with IH often struggle to wake, despite setting multiple alarms, and have difficulty rising from bed (called sleep inertia). They may start the day feeling extremely groggy (sometimes referred to as sleep drunk), and can experience significantly reduced focus and concentration during waking hours (called brain fog).
People suffering from idiopathic hypersomnia often live without a correct diagnosis for a long time, blaming themselves and struggling to maintain work, studies and relationships.
Living With IH
Newly Diagnosed
“I’ve just been diagnosed with idiopathic hypersomnia. What does this mean?”
The Hypersomnia Foundation has compiled FIVE THINGS FOR YOU TO KNOW to give you the information and resources you need to help you take the first steps forward in understanding and coping with your new diagnosis.
Patients & Supporters
The Hypersomnia Foundation is here to support people with hypersomnias, their families and their supporters. HF has compiled and created many free resources, such as informational brochures and educational tools, to help with aspects of your daily lives that are affected by living with a hypersomnia or supporting someone who does.
Treating IH
Healthcare Providers
The Hypersomnia Foundation provides numerous free resources for healthcare professionals and educators, including patient materials, listing in our provider directory, links to clinical trials and much more…
Researchers/Pharma
The Hypersomnia Foundation supports researchers and pharmaceutical companies working toward improving the lives of people with IH and related hypersomnias. Find out about our research award program, our international patient registry and much more….
News
March 16, 2021
In Case You Missed It! – March 2021
It's been a busy year so far! Let's get up to date with the news we’ve shared via social media with this latest edition of “In Case You Missed It!” NEWLY RELEASED VIDEO: HF’s... read >
February 16, 2021
Announcing Our New Webpage—Sleeping/Napping in Your Car Safely
Start talking to someone with a hypersomnia about how hard it can be to stay awake all day, and soon enough we’ll be telling stories about napping in our cars. Many of us have our favorite... read >
February 16, 2021
Ride With the Sleep/Wake Cyclers to Raise Money for Research
Sleep/Wake Cycler Leigh Tanji rides in her neighborhood of Cambridge, MA The Hypersomnia Foundation community is forming a bike team, the Sleep/Wake Cyclers, to raise money for research... read >
HF Twitter Feed
@HypersomniaNews #BeyondSleepy
Scientists have sequenced #genomes of 53,831 people of diverse backgrounds to better understand heart, lung, blood,… https://t.co/yBjYvMgpd2
18 hours ago
Pinpoint Patient Recruiting wants people with #IH to participate in a 60-minute web enabled telephone interview to… https://t.co/CRKjDtOs3y
4 days ago
Join us for our first virtual Meet & Greet - “I’m Newly Diagnosed - What Does This Mean?” Event scheduled May 1 @… https://t.co/DAhVOkph86
6 days ago
Events
Saturday, May 1, 2021
VIRTUAL MEET & GREET- I’m Newly Diagnosed – What Does This Mean?
Saturday, June 12 - Wednesday, June 16, 2021
VIRTUAL: APSS SLEEP 2021 (a conference for sleep medicine professionals)
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