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#BeyondSleepy

Welcome to the Hypersomnia Foundation, committed to improving the lives of people living with idiopathic hypersomnia (IH) and related sleep disorders.
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Idiopathic hypersomnia (IH) is a chronic neurological sleep disorder.

People with IH crave sleep in the daytime, no matter how many hours they sleep at night. They struggle to wake, despite setting multiple alarms, and may have difficulty rising from bed (called sleep inertia). They may start the day feeling extremely groggy (sometimes referred to as sleep drunk), and can experience reduced focus and concentration during waking hours (called brain fog).

People with idiopathic hypersomnia often live without a correct diagnosis for a long time, blaming themselves and struggling to maintain work, studies, and relationships. 

If you or a loved one has IH or a related sleep disorder, you’ll find understanding and up-to-date information here. (All medical info is reviewed by the sleep specialists and researchers on our Medical and Scientific Advisory Boards.) Explore our site to learn more about the science of sleep and the status of research, download guides for students, find clinical trials, consult the directory of physicians, join our patient registry, and much more.

In 2016, the Hypersomnia Foundation launched an international patient registry. If you have IH, narcolepsy, KLS, or another related disorder, you can help provide researchers with vital data!

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Latest News

June 18, 2019

Ask the Doctor: What Are the Emory Sleep Researchers Looking for in Spinal Fluid?

Why do Emory University’s sleep researchers perform spinal tap procedures on sleepy patients? What is the “sleepy juice” they’re looking for in the spinal fluid? Does it have anything to do with prostaglandins? An expert answers all these questions! We are delighted to have Dr....

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June 18, 2019

In Case You Missed It! – June 2019

Keep up to date with the news we’ve shared via social media with the sleep disorder community in this month’s “In Case You Missed It!” SUCCESS:  Read about the recently approved legislation that will provide important funding for sleep research. CONGRATULATIONS: Meet the recipients of...

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May 21, 2019

IH Summary Expanded to Include Diagnostic Criteria

It’s often a struggle to describe to others – sometimes even to healthcare providers – the essence of idiopathic hypersomnia. To address this, HF prepared Idiopathic Hypersomnia Standard Characteristics in 2017 and made it available on our website for both healthcare providers and people with...

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Our Mission

To improve the lives of people with idiopathic hypersomnia and related disorders by advocating on their behalf, providing support, educating the public and healthcare professionals, raising awareness, and funding research into effective treatments, better diagnostic tools, and, ultimately, a cure for these debilitating conditions. The Hypersomnia Foundation is a 501(c)(3) nonprofit organization.

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Raising Awareness

HF strives to increase community and physician awareness of idiopathic hypersomnia and related disorders.

Sharing Tools and Information

We provide education and resources for people with hypersomnia, their supporters, and healthcare providers.

Promoting Research

HF advocates for research into the causes and treatments of IH, in the quest for improved outcomes and quality of life for people with hypersomnia.

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