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#BeyondSleepy

The Hypersomnia Foundation is committed to improving
the lives of people living with idiopathic hypersomnia (IH)
and related sleep disorders.

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What Is Idiopathic Hypersomnia?

Idiopathic Hypersomnia (IH) is a chronic neurological sleep disorder, causing excessive daytime sleepiness despite adequate, or more typically, long sleep amounts (more than 9-10 hours in a 24-hour period). People with IH often struggle to wake, despite setting multiple alarms, and have difficulty rising from bed (called sleep inertia). They may start the day feeling extremely groggy (sometimes referred to as sleep drunk), and can experience significantly reduced focus and concentration during waking hours (called brain fog).

People suffering from idiopathic hypersomnia often live without a correct diagnosis for a long time, blaming themselves and struggling to maintain work, studies and relationships.

Learn More About IH

Living With IH

Newly Diagnosed

“I’ve just been diagnosed with idiopathic hypersomnia. What does this mean?”

The Hypersomnia Foundation has compiled FIVE THINGS FOR YOU TO KNOW to give you the information and resources you need to help you take the first steps forward in understanding and coping with your new diagnosis.

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Patients & Supporters

The Hypersomnia Foundation is here to support people with hypersomnias, their families and their supporters. HF has compiled and created many free resources, such as informational brochures and educational tools, to help with aspects of your daily lives that are affected by living with a hypersomnia or supporting someone who does.

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Treating IH

Healthcare Providers

The Hypersomnia Foundation provides numerous free resources for healthcare professionals and educators, including patient materials, listing in our provider directory, links to clinical trials and much more…

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Researchers/Pharma

The Hypersomnia Foundation supports researchers and pharmaceutical companies working toward improving the lives of people with IH and related hypersomnias. Find out about our research award program, our international patient registry and much more….

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News

In Case You Missed It! – December 2020

Happy Holidays! Celebrations may look different this year, so however you plan to enjoy the season, we wish you peace and joy! If you’ve missed any of the latest news we’ve shared via... read >

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Join us on January 30 @ 1:00 p.m. ET for our FREE virtual event - YOUR BEST SELF: New Ways of Thinking About Disabi… https://t.co/7XRumigp7m
2 days ago

Excited to have Anjel Burgess and Diana Kimmel speak at our Jan 30 virtual event: 𝒀𝒐𝒖𝒓 𝑩𝒆𝒔𝒕 𝑺𝒆𝒍𝒇: 𝑵𝒆𝒘 𝑾𝒂𝒚𝒔 𝒐𝒇 𝑻𝒉𝒊𝒏𝒌… https://t.co/l2mtLw91b9
4 days ago

Be a voice for rare disease! Register for #RareAcrossAmerica. Meet virtually with Senators and Representatives, sha… https://t.co/n3CAms2Fe2
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Join the Colorado #Narcolepsy and #IH #SupportGroup on Jan 11 @ 6:30PM (MST) for a virtual discussion with the supp… https://t.co/JzPU25M9vo
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