Let’s Get
#Beyond
The Hypersomnia Foundation is committed to improving
the lives of people living with idiopathic hypersomnia (IH)
and related sleep disorders.
What Is Idiopathic Hypersomnia?
Idiopathic Hypersomnia (IH) is a chronic neurological sleep disorder, causing excessive daytime sleepiness despite adequate, or more typically, long sleep amounts (more than 9-10 hours in a 24-hour period). People with IH often struggle to wake, despite setting multiple alarms, and have difficulty rising from bed (called sleep inertia). They may start the day feeling extremely groggy (sometimes referred to as sleep drunk), and can experience significantly reduced focus and concentration during waking hours (called brain fog).
People suffering from idiopathic hypersomnia often live without a correct diagnosis for a long time, blaming themselves and struggling to maintain work, studies and relationships.
Living with IH
Newly Diagnosed
“I’ve just been diagnosed with idiopathic hypersomnia. What does this mean?”
The Hypersomnia Foundation has compiled FIVE THINGS FOR YOU TO KNOW to give you the information and resources you need to help you take the first steps forward in understanding and coping with your new diagnosis.
Patients & Supporters
The Hypersomnia Foundation is here to support people with hypersomnias, their families and their supporters. HF has compiled and created many free resources, such as informational brochures and educational tools, to help with aspects of your daily lives that are affected by living with a hypersomnia or supporting someone who does.
Treating IH
Healthcare Providers
The Hypersomnia Foundation provides numerous free resources for healthcare professionals and educators, including patient materials, listing in our provider directory, links to clinical trials and much more…
Researchers/Pharma
The Hypersomnia Foundation supports researchers and pharmaceutical companies working toward improving the lives of people with IH and related hypersomnias. Find out about our research award program, our international patient registry and much more….
News
July 21, 2020
In Case You Missed It! – July 2020
We trust everyone is practicing physical distancing and wearing a facemask as you enjoy the summer sunshine and stay in touch with family and friends! We are grateful to be able to keep in... read >
June 16, 2020
In Case You Missed It! – June 2020
With quarantine restrictions slowly lifting across the country, we hope everyone continues practicing social distancing and wearing a facemask as you venture out and enjoy the beginning of... read >
May 19, 2020
In Case You Missed It! – May 2020
During this unprecedented time, we are grateful to be able to stay in touch with our community through social media, email, and SomnusNooze. If you’ve missed any of the latest news we’ve... read >
HF Twitter Feed
@HypersomniaNews #BeyondSleepy
Just been diagnosed with #IH or a related #SleepDisorder? Read FIVE THINGS FOR YOU TO KNOW to help you understand y… https://t.co/TLqcTmubjV
4 hours ago
Thank you @JazzPharma for your continued work in #sleep medicine! Together we will get #BeyondSleepy! https://t.co/btJqkvPhOx
2 days ago
Looking for a physician experienced in the treatment of people with hypersomnias? Check out our Healthcare Provider… https://t.co/u5s2Mi1BJk
3 days ago
WE HAVE A NEW WEBSITE! It’s been a busy summer behind the scenes at the Hypersomnia Foundation, but Board members S… https://t.co/4y3Dwg8ruN
5 days ago
Events
Thursday, August 27 - Sunday, August 30, 2020
APSS: SLEEP2020 (a conference for sleep medicine professionals)
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