Events & Community

Support4Supporters is a free virtual get-together for people who care for someone who has a sleep disorder. Join us for our virtual support group meeting for caregivers and loved ones every second Wednesday of the month at 7 PM EST / 4 PM PST, where you’ll connect with others who understand the unique challenges (and victories!) of supporting a loved one living with a sleep disorder.⁠

UNIGHT is a free virtual get together for people to have an open, casual discussion about various topics related to living with a sleep disorder. Join us on Monday, January 26th, at 7:00 PM Eastern / 4:00 PM Pacific via Zoom for a discussion on navigating the holidays.

Join on Thursday March 5, 2026 for a #BeyondSleepy Webinar where we discuss emerging and important topics relevant to the sleep community. This webinar is free. All are welcome.

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#BeyondSleepy Conference

A conference for people with idiopathic hypersomnia, narcolepsy, and Kleine-Levin syndrome and their supporters. We have a wonderful mix of speakers covering the latest in research, treatments, and clinical trials; networking and discussion panels; an evening reception; and more. Come catch up with old friends and meet new ones.⁠ Virtual attendance is also available.

Resources

Whether you’re already diagnosed with a hypersomnia sleep disorder or not, you’ll want to find a sleep doctor and get treatment. You may also need resources to help you avoid interactions with hormone medicines and prepare for anesthesia, hospital stays, pregnancy, and parenting babies. We can help!

Each hypersomnia sleep disorder can present unique challenges. While all have the same main symptom — excessive daytime sleepiness (EDS), each hypersomnia has unique challenges. Which one best describes you?

Our website offers resources for medical professionals and researchers who diagnose, treat, and work with people who have hypersomnias (central disorders of hypersomnolence). Our medical advisory board has reviewed and approved these resources.

Living With… series is a compelling and conversational YouTube Series hosted by Hypersomnia Foundation’s CEO, Claire Wylds-Wright. Claire invites sleep experts, researchers, clinicians, and people with IH in conversations that center on the realities of people living with idiopathic hypersomnia.

Who We Are

The Hypersomnia Foundation is a nonprofit advocacy organization dedicated to improving the lives of people who have idiopathic hypersomnia (IH) and related hypersomnia sleep disorders, including Narcolepsy Types 1 and 2 and Kleine-Levin syndrome. We do this by:

  • Providing high-quality and timely information that is easy to understand and act on for people across the spectrum of the hypersomnia community.
  • Supporting all kinds of healthcare professionals in their ability to identify, diagnose, and treat idiopathic hypersomnia (IH) and related sleep disorders.
  • Helping speed up scientific discovery about idiopathic hypersomnia (IH) and related sleep disorders, including causes and better diagnosis and treatments.
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Our mission is to build a community to educate, empower, and support people fighting sleepiness from idiopathic hypersomnia and related sleep disorders.

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