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#BeyondSleepy

The Hypersomnia Foundation is committed to improving
the lives of people living with idiopathic hypersomnia (IH)
and related sleep disorders.

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What Is Idiopathic Hypersomnia?

Idiopathic Hypersomnia (IH) is a chronic neurological sleep disorder, causing excessive daytime sleepiness despite adequate, or more typically, long sleep amounts (more than 9-10 hours in a 24-hour period). People with IH often struggle to wake, despite setting multiple alarms, and have difficulty rising from bed (called sleep inertia). They may start the day feeling extremely groggy (sometimes referred to as sleep drunk), and can experience significantly reduced focus and concentration during waking hours (called brain fog).

People suffering from idiopathic hypersomnia often live without a correct diagnosis for a long time, blaming themselves and struggling to maintain work, studies and relationships.

Learn More About IH

Living With IH

Newly Diagnosed

“I’ve just been diagnosed with idiopathic hypersomnia. What does this mean?”

The Hypersomnia Foundation has compiled FIVE THINGS FOR YOU TO KNOW to give you the information and resources you need to help you take the first steps forward in understanding and coping with your new diagnosis.

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Patients & Supporters

The Hypersomnia Foundation is here to support people with hypersomnias, their families and their supporters. HF has compiled and created many free resources, such as informational brochures and educational tools, to help with aspects of your daily lives that are affected by living with a hypersomnia or supporting someone who does.

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Treating IH

Healthcare Providers

The Hypersomnia Foundation provides numerous free resources for healthcare professionals and educators, including patient materials, listing in our provider directory, links to clinical trials and much more…

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Researchers/Pharma

The Hypersomnia Foundation supports researchers and pharmaceutical companies working toward improving the lives of people with IH and related hypersomnias. Find out about our research award program, our international patient registry and much more….

Learn More >

News

Let’s Kick Off Giving Tuesday Together!

On this Giving Tuesday, as we reflect upon a year that has been challenging for all, we have much to be thankful for. We did not let the pandemic slow down or stop our progress. Instead, we... read >

In Case You Missed It! – November 2021

Happy Fall! If you’ve missed any of the latest news we’ve shared through our social media, don’t worry! Get up to date with this edition of “In Case You Missed It!” TWO GREAT... read >

more news >

HF Twitter Feed

@HypersomniaNews     #BeyondSleepy

IH CLINICAL TRIAL - @HarmonyBio announced today that the @US_FDA accepted an IND application for pitolisant for the… https://t.co/qgTYAfFivQ
1 day ago

THANK YOU for supporting HF on #GivingTuesday 𝙒𝙚 𝙘𝙖𝙣’𝙩 𝙙𝙤 𝙩𝙝𝙞𝙨 𝙬𝙞𝙩𝙝𝙤𝙪𝙩 𝙔𝙊𝙐 ! Your donation helps improve the lives… https://t.co/iQXzEn3pL2
1 day ago

Be a part of #GivingTuesday and support the Hypersomnia Foundation!Donations support our annual research award, pat… https://t.co/itnsVdLc68
2 days ago

Be a part of #GivingTuesday and support the Hypersomnia Foundation!Donations support our annual research award, pat… https://t.co/Fl6thkguML
2 days ago

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Disclaimer

The contents of this website, including text, graphics and other material, are for informational purposes only. This website is not intended to be a substitute for professional legal or medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Always consult your own attorney or other legal advisor with any legal questions you may have. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisors, products, procedures, opinions or other information referenced on this website. Reliance on any information on this website is solely at your own risk.

The Hypersomnia Foundation makes no representations or warranties about the satisfaction of any government regulations requiring disclosure of information on prescription drug products. In no event shall The Hypersomnia Foundation be liable for any damages (including without limitation incidental and consequential damages) or costs (including without limitation attorney’s fees) based on any claim arising from the use of this website and/or its content.