Let’s Get
#Beyond
The Hypersomnia Foundation is committed to improving
the lives of people living with idiopathic hypersomnia (IH)
and related sleep disorders.
What Is Idiopathic Hypersomnia?
Idiopathic Hypersomnia (IH) is a chronic neurological sleep disorder, causing excessive daytime sleepiness despite adequate, or more typically, long sleep amounts (more than 9-10 hours in a 24-hour period). People with IH often struggle to wake, despite setting multiple alarms, and have difficulty rising from bed (called sleep inertia). They may start the day feeling extremely groggy (sometimes referred to as sleep drunk), and can experience significantly reduced focus and concentration during waking hours (called brain fog).
People suffering from idiopathic hypersomnia often live without a correct diagnosis for a long time, blaming themselves and struggling to maintain work, studies and relationships.
Living With IH
Newly Diagnosed
“I’ve just been diagnosed with idiopathic hypersomnia. What does this mean?”
The Hypersomnia Foundation has compiled FIVE THINGS FOR YOU TO KNOW to give you the information and resources you need to help you take the first steps forward in understanding and coping with your new diagnosis.
Patients & Supporters
The Hypersomnia Foundation is here to support people with hypersomnias, their families and their supporters. HF has compiled and created many free resources, such as informational brochures and educational tools, to help with aspects of your daily lives that are affected by living with a hypersomnia or supporting someone who does.
Treating IH
Healthcare Providers
The Hypersomnia Foundation provides numerous free resources for healthcare professionals and educators, including patient materials, listing in our provider directory, links to clinical trials and much more…
Researchers/Pharma
The Hypersomnia Foundation supports researchers and pharmaceutical companies working toward improving the lives of people with IH and related hypersomnias. Find out about our research award program, our international patient registry and much more….
News
September 21, 2021
What Is Sleep Hygiene, Anyway?
Sleep hygiene—everybody, including both patients and healthcare providers, has heard that if these rules are followed, sleep will be improved. Right? What exactly are the official rules,... read >
September 21, 2021
Diagnosing Hypersomnias Differently—A European Proposal
Have you ever noticed how difficult it is to diagnose hypersomnias? Maybe you’ve wondered if a narcolepsy type 2 diagnosis is actually idiopathic hypersomnia (IH) or vice-versa? Have you... read >
September 21, 2021
In Case You Missed It! – September 2021
Happy Fall! If you’ve missed any of the latest news we’ve shared through our social media, don’t worry! Get up to date with this edition of “In Case You Missed It!” WELCOME DR.... read >
HF Twitter Feed
@HypersomniaNews #BeyondSleepy
New Collaboration Aims to Discover Novel Orexin Receptor Agonists for Narcolepsy & Other Sleep Disorders
Read more… https://t.co/BQpZrKcz52
10 hours ago
RT @JazzPharma: People living with idiopathic #hypersomnia (IH) face many challenges on their journey to a diagnosis. Our recent survey wit…
2 days ago
REGISTRATION OPEN for our VIRTUAL EVENT: Reaching Every Patient: A Health Equity Conversation - Sat, Nov 13 @ 12-2p… https://t.co/t1poNwh9oY
2 days ago
What’s it like to participate in a #clinicaltrial? Watch Christina Brundage, Hypersomnia Foundation Volunteer and… https://t.co/HSMzo6aR92
6 days ago
Events
Thursday, October 28 - Saturday, October 30, 2021
VIRTUAL: Canadian Sleep Society (CSS) Conference 2021
Saturday, November 13, 2021
VIRTUAL – Reaching Every Patient: A Health Equity Conversation
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