Let’s Get
#Beyond
The Hypersomnia Foundation is committed to improving
the lives of people living with idiopathic hypersomnia (IH)
and related sleep disorders.
What Is Idiopathic Hypersomnia?
Idiopathic Hypersomnia (IH) is a chronic neurological sleep disorder, causing excessive daytime sleepiness despite adequate, or more typically, long sleep amounts (more than 9-10 hours in a 24-hour period). People with IH often struggle to wake, despite setting multiple alarms, and have difficulty rising from bed (called sleep inertia). They may start the day feeling extremely groggy (sometimes referred to as sleep drunk), and can experience significantly reduced focus and concentration during waking hours (called brain fog).
People suffering from idiopathic hypersomnia often live without a correct diagnosis for a long time, blaming themselves and struggling to maintain work, studies and relationships.
Living With IH
Newly Diagnosed
“I’ve just been diagnosed with idiopathic hypersomnia. What does this mean?”
The Hypersomnia Foundation has compiled FIVE THINGS FOR YOU TO KNOW to give you the information and resources you need to help you take the first steps forward in understanding and coping with your new diagnosis.
Patients & Supporters
The Hypersomnia Foundation is here to support people with hypersomnias, their families and their supporters. HF has compiled and created many free resources, such as informational brochures and educational tools, to help with aspects of your daily lives that are affected by living with a hypersomnia or supporting someone who does.
Treating IH
Healthcare Providers
The Hypersomnia Foundation provides numerous free resources for healthcare professionals and educators, including patient materials, listing in our provider directory, links to clinical trials and much more…
Researchers/Pharma
The Hypersomnia Foundation supports researchers and pharmaceutical companies working toward improving the lives of people with IH and related hypersomnias. Find out about our research award program, our international patient registry and much more….
News
July 20, 2021
Make an Emergency Anesthesia/Hospitalization Plan Now!
Do you have idiopathic hypersomnia (IH) or a related sleep disorder or do you treat patients with hypersomnias? If so, then it’s very important to prepare in advance for anesthesia,... read >
July 20, 2021
Sleep/Wake Cyclers Raise Over $16K for Research!
The 2021 Sleep/Wake Cyclers was the first grassroots fundraising campaign sponsored by the Hypersomnia Foundation designed specifically to raise money for research. Interest in conducting... read >
July 20, 2021
In Case You Missed It! – July 2021
Summer has arrived as warm weather and sunshine beckons us to enjoy the great outdoors! If you’ve missed any of the latest news we’ve shared through our social media, don’t worry! Get... read >
HF Twitter Feed
@HypersomniaNews #BeyondSleepy
RT @AvadelPharma: #TeamAvadel is #hiring! We’re filling several roles with people who are passionate about making a difference for those li…
3 days ago
𝗡𝗘𝗪𝗟𝗬 𝗥𝗘𝗟𝗘𝗔𝗦𝗘𝗗 𝗩𝗜𝗗𝗘𝗢 of our recent virtual event - YOUR BEST SELF: Getting Your Meds - discussing how to reduce out… https://t.co/buy3wxy5lx
6 days ago
RT @project_sleep: Exciting news from our friends at @wakenarcolepsy! A new #Narcolepsy Support Group specifically for LGBTQIA community me…
1 week ago
Events
Thursday, October 28 - Saturday, October 30, 2021
VIRTUAL: Canadian Sleep Society (CSS) Conference 2021
Saturday, June 4 - Wednesday, June 8, 2022
CHARLOTTE: APSS SLEEP 2022 (a conference for sleep medicine professionals)
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