Let's Get

#BeyondSleepy

Welcome to the Hypersomnia Foundation, committed to improving the lives of people living with idiopathic hypersomnia (IH) and related sleep disorders.
Scroll Down

Idiopathic hypersomnia (IH) is a chronic neurological sleep disorder.

People with IH crave sleep in the daytime, no matter how many hours they sleep at night. They struggle to wake, despite setting multiple alarms, and may have difficulty rising from bed (called sleep inertia). They may start the day feeling extremely groggy (sometimes referred to as sleep drunk), and can experience reduced focus and concentration during waking hours (called brain fog).

People with idiopathic hypersomnia often live without a correct diagnosis for a long time, blaming themselves and struggling to maintain work, studies, and relationships. 

If you or a loved one has IH or a related sleep disorder, you’ll find understanding and up-to-date information here. (All medical info is reviewed by the sleep specialists and researchers on our Medical and Scientific Advisory Boards.) Explore our site to learn more about the science of sleep and the status of research, download guides for students, find clinical trials, consult the directory of physicians, join our patient registry, and much more.

In 2016, the Hypersomnia Foundation launched an international patient registry. If you have IH, narcolepsy, KLS, or another related disorder, you can help provide researchers with vital data!

Learn More

Latest News

April 16, 2019

Video Release! Women’s Health and the Effects of Hypersomnias

For both men and women, having a rare sleep disorder and managing its treatment is a challenge. But for women, it can be especially complicated. As they make decisions about contraception, pregnancy, breastfeeding, and other issues unique to women, they must also take into account...

Continue Reading

April 16, 2019

Excerpts from the “Advice from Campus” Guide

We are pleased to release three uniquely written excerpts from our Advice from Campus guide in the Education Essentials Guidebook. All of these excerpts navigate the student with idiopathic hypersomnia (IH) through some inevitable challenges on a campus. These guides, written by higher education professionals...

Continue Reading

April 16, 2019

Ask the Doctor: How Prevalent Is Narcolepsy in Children with ADHD? What Causes Complex Sleep Apnea?

Do children with ADHD have a higher risk for narcolepsy? Could complex sleep apnea be related to problems with the vagus nerve? A medical expert answers! We are delighted to have Dr. Kiran Maski of Harvard Medical School, a renowned expert in pediatric neurology and...

Continue Reading

Follow Us on Facebook

Not on Facebook, but want to see our Facebook news? You can scroll our posts below without leaving our website. Or click below to go directly to our Facebook page.

Our Mission

To improve the lives of people with idiopathic hypersomnia and related disorders by advocating on their behalf, providing support, educating the public and healthcare professionals, raising awareness, and funding research into effective treatments, better diagnostic tools, and, ultimately, a cure for these debilitating conditions. The Hypersomnia Foundation is a 501(c)(3) nonprofit organization.

Donate

Raising Awareness

HF strives to increase community and physician awareness of idiopathic hypersomnia and related disorders.

Sharing Tools and Information

We provide education and resources for people with hypersomnia, their supporters, and healthcare providers.

Promoting Research

HF advocates for research into the causes and treatments of IH, in the quest for improved outcomes and quality of life for people with hypersomnia.

Get SomnusNooze, our monthly e-newsletter

Sign up to receive HF updates, news from the world of sleep research, first-person stories, and more.

You will receive an email from info@hypersomniafoundation.org (please check your junk/spam folder if needed) to confirm your subscription to our newsletter through MailChimp. You are not subscribed until you confirm. Thank you for your interest in Hypersomnia Foundation!