The Hypersomnia Foundation is committed to improving
the lives of people living with idiopathic hypersomnia (IH)
and related sleep disorders.
Idiopathic Hypersomnia (IH) is a chronic neurological sleep disorder, causing excessive daytime sleepiness despite adequate, or more typically, long sleep amounts (more than 9-10 hours in a 24-hour period). People with IH often struggle to wake, despite setting multiple alarms, and have difficulty rising from bed (called sleep inertia). They may start the day feeling extremely groggy (sometimes referred to as sleep drunk), and can experience significantly reduced focus and concentration during waking hours (called brain fog).
People suffering from idiopathic hypersomnia often live without a correct diagnosis for a long time, blaming themselves and struggling to maintain work, studies and relationships.
“I’ve just been diagnosed with idiopathic hypersomnia. What does this mean?”
The Hypersomnia Foundation has compiled FIVE THINGS FOR YOU TO KNOW to give you the information and resources you need to help you take the first steps forward in understanding and coping with your new diagnosis.
The Hypersomnia Foundation is here to support people with hypersomnias, their families and their supporters. HF has compiled and created many free resources, such as informational brochures and educational tools, to help with aspects of your daily lives that are affected by living with a hypersomnia or supporting someone who does.
March 16, 2021
It's been a busy year so far! Let's get up to date with the news we’ve shared via social media with this latest edition of “In Case You Missed It!” NEWLY RELEASED VIDEO: HF’s... read >
February 16, 2021
Start talking to someone with a hypersomnia about how hard it can be to stay awake all day, and soon enough we’ll be telling stories about napping in our cars. Many of us have our favorite... read >
February 16, 2021
Sleep/Wake Cycler Leigh Tanji rides in her neighborhood of Cambridge, MA The Hypersomnia Foundation community is forming a bike team, the Sleep/Wake Cyclers, to raise money for research... read >
Join us for our first virtual Meet & Greet - “I’m Newly Diagnosed - What Does This Mean?” Event scheduled May 1 @… https://t.co/DAhVOkph86
6 days ago
Saturday, May 1, 2021
Saturday, June 12 - Wednesday, June 16, 2021
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