Let’s Get
#Beyond
The Hypersomnia Foundation is committed to improving
the lives of people living with idiopathic hypersomnia (IH)
and related sleep disorders.
What Is Idiopathic Hypersomnia?
Idiopathic Hypersomnia (IH) is a chronic neurological sleep disorder, causing excessive daytime sleepiness despite adequate, or more typically, long sleep amounts (more than 9-10 hours in a 24-hour period). People with IH often struggle to wake, despite setting multiple alarms, and have difficulty rising from bed (called sleep inertia). They may start the day feeling extremely groggy (sometimes referred to as sleep drunk), and can experience significantly reduced focus and concentration during waking hours (called brain fog).
People suffering from idiopathic hypersomnia often live without a correct diagnosis for a long time, blaming themselves and struggling to maintain work, studies and relationships.
Living With IH
Newly Diagnosed
“I’ve just been diagnosed with idiopathic hypersomnia. What does this mean?”
The Hypersomnia Foundation has compiled FIVE THINGS FOR YOU TO KNOW to give you the information and resources you need to help you take the first steps forward in understanding and coping with your new diagnosis.
Patients & Supporters
The Hypersomnia Foundation is here to support people with hypersomnias, their families and their supporters. HF has compiled and created many free resources, such as informational brochures and educational tools, to help with aspects of your daily lives that are affected by living with a hypersomnia or supporting someone who does.
Treating IH
Healthcare Providers
The Hypersomnia Foundation provides numerous free resources for healthcare professionals and educators, including patient materials, listing in our provider directory, links to clinical trials and much more…
Researchers/Pharma
The Hypersomnia Foundation supports researchers and pharmaceutical companies working toward improving the lives of people with IH and related hypersomnias. Find out about our research award program, our international patient registry and much more….
News
January 31, 2023
In Case You Missed It! – January 2023
HAPPY 2023! If you’ve missed any of the latest news we’ve shared through our social media this month, don’t worry! Get up to date with the January edition of “In Case You Missed... read >
January 31, 2023
Mark Your Calendar for HF’s 2023 Events!
Mark Your Calendar and Save the Dates! The Hypersomnia Foundation is planning multiple opportunities for all of us to get together in 2023! Plan on connecting with others in the sleep... read >
November 28, 2022
In Case You Missed It! – November 2022
If you’ve missed any of the latest news we’ve shared through our social media this month, don’t worry! Get up to date with this edition of “In Case You Missed It!” Two ways you... read >
HF Twitter Feed
@HypersomniaNews #BeyondSleepy
REGISTRATION NOW OPEN for the Hypersomnia Foundation’s March 4th event - #BeyondSleepySatellite: Together in Salt L… https://t.co/2iw2dUE34z
1 week ago
Check your inbox for the latest issue of SOMNUSNOOZE. Get dates for 2023 conferences and events!… https://t.co/qWpAqn8epN
1 week ago
The Hypersomnia Foundation is hosting a series of one-day in-person conferences throughout the US. The first… https://t.co/MkBcNMJFAn
1 week ago
NOW ENROLLING for the RaiseUp Study! If you are over age 18 and have #narcolepsy with cataplexy (also known as narc… https://t.co/L14ta9GH1X
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Events
Saturday, March 4, 2023
SALT LAKE CITY, UT – #BeyondSleepySatellite HF Conference
Friday, June 2 - Sunday, June 4, 2023
Indianapolis, IN – HF Conference
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