Let’s Get
#Beyond
The Hypersomnia Foundation is committed to improving
the lives of people living with idiopathic hypersomnia (IH)
and related sleep disorders.
What Is Idiopathic Hypersomnia?
Idiopathic Hypersomnia (IH) is a chronic neurological sleep disorder, causing excessive daytime sleepiness despite adequate, or more typically, long sleep amounts (more than 9-10 hours in a 24-hour period). People with IH often struggle to wake, despite setting multiple alarms, and have difficulty rising from bed (called sleep inertia). They may start the day feeling extremely groggy (sometimes referred to as sleep drunk), and can experience significantly reduced focus and concentration during waking hours (called brain fog).
People suffering from idiopathic hypersomnia often live without a correct diagnosis for a long time, blaming themselves and struggling to maintain work, studies and relationships.
Living With IH
Newly Diagnosed
“I’ve just been diagnosed with idiopathic hypersomnia. What does this mean?”
The Hypersomnia Foundation has compiled FIVE THINGS FOR YOU TO KNOW to give you the information and resources you need to help you take the first steps forward in understanding and coping with your new diagnosis.
Patients & Supporters
The Hypersomnia Foundation is here to support people with hypersomnias, their families and their supporters. HF has compiled and created many free resources, such as informational brochures and educational tools, to help with aspects of your daily lives that are affected by living with a hypersomnia or supporting someone who does.
Treating IH
Healthcare Providers
The Hypersomnia Foundation provides numerous free resources for healthcare professionals and educators, including patient materials, listing in our provider directory, links to clinical trials and much more…
Researchers/Pharma
The Hypersomnia Foundation supports researchers and pharmaceutical companies working toward improving the lives of people with IH and related hypersomnias. Find out about our research award program, our international patient registry and much more….
News
April 26, 2022
News From World Sleep 2022 in Rome!
Frances Smalldridge, a Hypersomnia Foundation volunteer and liaison in the UK, attended the World Sleep conference in March 2022. As a medical student and a person living with a hypersomnia,... read >
April 26, 2022
In Case You Missed It! – April 2022
If you’ve missed any of the latest news we’ve shared through our social media this month, don’t worry! Get up to date with this edition of “In Case You Missed It!” CURRENTLY... read >
March 3, 2022
Announcing HF’s Guides for Professionals Working With People Who Have Hypersomnias
Are you a healthcare provider who is involved in research studies or the operation of sleep study centers? Or are you a researcher or a manager/team member of a sleep or research study site?... read >
HF Twitter Feed
@HypersomniaNews #BeyondSleepy
Thank you to our sponsors for helping us bring our community together to share, learn and seek answers.… https://t.co/XMAy2LRcnX
1 day ago
Thank you to our sponsors for helping us bring our community together to share, learn and seek answers.… https://t.co/HcRce9PTPL
1 week ago
Thank you to our sponsors for helping us bring our community together to share, learn and seek answers.… https://t.co/issTuYYxs3
2 weeks ago
REGISTER TODAY! The Colorado #Narcolepsy and #IH Support Groups next virtual Zoom meeting is Monday, May 9th @ 6:30… https://t.co/6ZCggVu6hP
2 weeks ago
Events
Friday, June 3 - Sunday, June 5, 2022
CHARLOTTE, NC – HF Conference
Saturday, June 4 - Wednesday, June 8, 2022
CHARLOTTE: APSS SLEEP 2022 (a conference for sleep medicine professionals)
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