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#BeyondSleepy

Welcome to the Hypersomnia Foundation, committed to improving the lives of people living with idiopathic hypersomnia (IH) and related sleep disorders.
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Idiopathic Hypersomnia (IH) Is a Chronic Neurological Sleep Disorder.

People with IH crave sleep in the daytime, no matter how many hours they sleep at night. They struggle to wake, despite setting multiple alarms, and may have difficulty rising from bed (called sleep inertia). They may start the day feeling extremely groggy (sometimes referred to as sleep drunk), and can experience reduced focus and concentration during waking hours (called brain fog).

People with idiopathic hypersomnia often live without a correct diagnosis for a long time, blaming themselves and struggling to maintain work, studies, and relationships. 

If you or a loved one has IH or a related sleep disorder, you’ll find understanding and up-to-date information here. (All medical info is reviewed by the sleep specialists and researchers on our Medical and Scientific Advisory Boards.) Explore our site to learn more about the science of sleep and the status of research, download guides for students, find clinical trials, consult the directory of physicians, join our patient registry, and much more.

In 2016, the Hypersomnia Foundation launched an international patient registry. If you have IH, narcolepsy, KLS, or another related disorder, you can help provide researchers with vital data!

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Latest News

September 17, 2019

Ask the Doctor: Delayed Sleep Phase Syndrome or IH?

What is delayed sleep phase syndrome (DSPS) and how is it diagnosed? Should it be ruled out before a diagnosis of IH is made? We are very honored to have Thanh Dang-Vu, MD, PhD, a neurologist at Concordia University in Montreal, and a distinguished member...

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September 17, 2019

Tools for School, Campus, and Beyond

It’s September, and students of all ages – from K-12 through college and beyond – have begun another year of studies or training. But when IH is part of your life, going to school, being on campus, or learning online or in the field, can...

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September 17, 2019

Sailing and Support on the High Seas

The Celebrity Solstice, the 2019 Snooze Cruise ship, exploring the Endicott Arm Fjord in Alaska. All cruises are enjoyable, but imagine a cruise where your fellow passengers also have IH or a related sleep disorder. And everywhere you look, people understand your sleep disorder and...

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Our Mission

To improve the lives of people with idiopathic hypersomnia and related disorders by advocating on their behalf, providing support, educating the public and healthcare professionals, raising awareness, and funding research into effective treatments, better diagnostic tools, and, ultimately, a cure for these debilitating conditions. The Hypersomnia Foundation is a 501(c)(3) nonprofit organization.

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Raising Awareness

HF strives to increase community and physician awareness of idiopathic hypersomnia and related disorders.

Sharing Tools and Information

We provide education and resources for people with hypersomnia, their supporters, and healthcare providers.

Promoting Research

HF advocates for research into the causes and treatments of IH, in the quest for improved outcomes and quality of life for people with hypersomnia.

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