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Welcome to the Hypersomnia Foundation, committed to improving the lives of people living with idiopathic hypersomnia (IH) and related sleep disorders.
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Idiopathic Hypersomnia (IH) Is a Chronic Neurological Sleep Disorder.

People with IH crave sleep in the daytime, no matter how many hours they sleep at night. They struggle to wake, despite setting multiple alarms, and may have difficulty rising from bed (called sleep inertia). They may start the day feeling extremely groggy (sometimes referred to as sleep drunk), and can experience reduced focus and concentration during waking hours (called brain fog).

People with idiopathic hypersomnia often live without a correct diagnosis for a long time, blaming themselves and struggling to maintain work, studies, and relationships. 

If you or a loved one has IH or a related sleep disorder, you’ll find understanding and up-to-date information here. (All medical info is reviewed by the sleep specialists and researchers on our Medical and Scientific Advisory Boards.) Explore our site to learn more about the science of sleep and the status of research, download guides for students, find clinical trials, consult the directory of physicians, join our patient registry, and much more.

In 2016, the Hypersomnia Foundation launched an international patient registry. If you have IH, narcolepsy, KLS, or another related disorder, you can help provide researchers with vital data!

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Latest News

February 18, 2020

In Case You Missed It! – February 2020

2020 is a Leap Year, which gives you an extra day in February to get up-to-date with the news we’ve shared via social media. Hope you enjoy this latest edition of “In Case You Missed It!” TIME TO CELEBRATE: The Hypersomnia Foundation celebrates its sixth...

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January 21, 2020

U.S. Research Budget Advocacy Successes

HF Board Member Rebecca King meeting with Congresswoman Chrissy Houlahan Good news! The U.S. 2020 budget is passed, and research funding received strong support from our legislators. The highlight of the medical research budget is $41.7 billion for NIH. Advocates from the Hypersomnia Foundation and...

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January 21, 2020

Ask the Doctor: Is There a Link Between Albinism and Idiopathic Hypersomnia (IH)?

Is there a link between albinism and idiopathic hypersomnia (IH)? Are GABAA receptor responses involved in both albinism and IH? How have these responses been measured in scientific studies and what are the differences in the mechanisms? We are pleased to have Dr. Amanda Freeman,...

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Our Mission

To improve the lives of people with idiopathic hypersomnia and related sleep disorders by advocating on their behalf, providing support, educating the public and healthcare professionals, raising awareness, and funding research into effective treatments, better diagnostic tools, and, ultimately, a cure for these debilitating conditions. The Hypersomnia Foundation is a 501(c)(3) nonprofit organization.

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Raising Awareness

HF strives to increase community and physician awareness of idiopathic hypersomnia and related disorders.

Sharing Tools and Information

We provide education and resources for people with hypersomnia, their supporters, and healthcare providers.

Promoting Research

HF advocates for research into the causes and treatments of IH, in the quest for improved outcomes and quality of life for people with hypersomnia.

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