Videos & Podcasts

Welcome to the Hypersomnia Foundation’s library of videos and podcasts related to idiopathic hypersomnia (IH) and other rare sleep disorders. These materials feature presentations by sleep medicine experts and scientific researchers, interviews of people actually living with sleep disorders, and in-depth media reports about IH and other sleep disorders. They include presentations given by sleep medicine experts at awareness and educational conferences hosted by the Hypersomnia Foundation.

Simply choose a topic by clicking on the images below. For further details about each, just click “Details.” In some cases, transcripts, PowerPoint slides, or other related resources may also be available.

For the videos that are available on YouTube, you can access subtitles and translations. If you would like subtitles/closed captions for a particular video presentation, click on the icon “cc,” which is located at the bottom right corner of the video screen. And if you would like these subtitles/closed captions in a language other than English, click on “Settings” (this is the “gear” icon next to the “cc” icon), then select “subtitles/closed captions,” then select “Auto-translate,” and then choose the language you would prefer.

The Hypersomnia Foundation's Event Videos

June 2021 – “Your Best Self: Getting Your Meds”

2021 May – Dr. Gert Jan Lammers – “Diagnosing Hypersomnia Differently: A European Proposal” – a Hypersomnia Foundation Virtual Webinar

2021 January – Anjel Burgess, Esq., HF Board Member – “Your Best Self: New Ways of Thinking About Disability”

2018 June – “IH and Disability: What You Need to Know” – Anjel Burgess, a disability attorney, discusses her work advising clients, including idiopathic hypersomnia patients, on their rights and obligations with respect to long-term disability.

Personal Journey Stories

2020 October – Michelle Emrich, MD – “A Doctor’s Once Agile Brain Broken by IH” – Video courtesy of Michelle Emrich

2020 October – Meghan Mallare – “Sleeping My Life Away” – Video courtesy of Meghan Mallare

Non-HF Event / Research / Education Videos

2018 September – David Rye, MD, PhD, HF SAB Chair – “Narcolepsy & Its Borderland: New Insights Into the Origins of Persistent Sleepiness.”

2017 January – Global Genes RARE Webinar – “Make Sense of Your Dollars”

2016 April – Hiroki R. Ueda, MD, PhD – “Brain Calcium Controls How Long We Sleep”

2013 – David Rye, MD, PhD, HF SAB Chair, Presents at Narcolepsy Network Conference – “What’s in a Name? Understanding the Origins of the Terminologies for the Family of Hypersomnias

Press Videos

2015 April – CNN Features IH in Sleep Series – Part 1 of 3 “How Important Is a Good Night’s Sleep?”

2015 April – CNN Features IH in Sleep Series – Part 2 of 3 “Tired All the Time?”

2015 April – CNN Features IH in Sleep Series – Part 3 of 3 “Improving Your Health Could Help You Sleep Better”

2012 November – Today Show Features Teenager With KLS – “Real-Life ‘Sleeping Beauty’ Slept 64 Days in a Row”

Podcasts

Disclaimer

The contents of this website, including text, graphics and other material, are for informational purposes only. This website is not intended to be a substitute for professional legal or medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Always consult your own attorney or other legal advisor with any legal questions you may have. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisors, products, procedures, opinions or other information referenced on this website. Reliance on any information on this website is solely at your own risk.

The Hypersomnia Foundation makes no representations or warranties about the satisfaction of any government regulations requiring disclosure of information on prescription drug products. In no event shall The Hypersomnia Foundation be liable for any damages (including without limitation incidental and consequential damages) or costs (including without limitation attorney’s fees) based on any claim arising from the use of this website and/or its content.