News, Stories and Updates From the World of Sleep
Announcing Our New Webpage—Sleeping/Napping in Your Car Safely
Start talking to someone with a hypersomnia about how hard it can be to stay awake all day, and soon enough we’ll be telling stories about napping in our cars. Many of us have our favorite napping spots and strategies. We also have concerns—are we... read >
Ride With the Sleep/Wake Cyclers to Raise Money for Research
Sleep/Wake Cycler Leigh Tanji rides in her neighborhood of Cambridge, MA The Hypersomnia Foundation community is forming a bike team, the Sleep/Wake Cyclers, to raise money for research on idiopathic hypersomnia and related sleep disorders. Our... read >
In Case You Missed It! – February 2021
Happy February! Let's get up to date with the news we’ve shared via social media with this latest edition of “In Case You Missed It!” CORDS REGISTRY UPDATE: You hold the key to solving this complicated puzzle of rare sleep disorders! NEW HF... read >
New Research Published on Cognitive-Behavioral Therapy for Hypersomnias
While cognitive behavioral therapy (CBT) has been used extensively to treat many disorders, including insomnia, until now little research has been done to develop similar treatments for IH and narcolepsy. Dr. Jason Ong, a member of the Hypersomnia... read >
A Message From Diane Powell, Hypersomnia Foundation’s Board Chair/CEO
In the spring of 2020, as the Covid-19 lockdowns began, we at the HF counted ourselves very fortunate that the Foundation has always minimized operating costs by working remotely and relying on a volunteer Board. Still, we lamented cancelling our... read >
In Case You Missed It! – January 2021
Happy New Year! Let’s start 2021 getting up to date with the latest news we’ve shared via social media with this latest edition of “In Case You Missed It!” FREE HF VIRTUAL EVENT: Register today for “Your Best Self: New Ways of Thinking About... read >
Autonomic Dysfunction and Idiopathic Hypersomnia Study Produces Results
A recurring theme we see from people with idiopathic hypersomnia is an interest in finding others who share symptoms beyond sleepiness. This helps connect patients with common experiences and researchers on the path to finding causes and new and improved... read >
YOU Can Get Us #BeyondSleepy! Help Us Raise $24,000 by December 31st!
The work of any rare disease organization naturally relies on community support, and this year—more than ever—you can help determine what the Hypersomnia Foundation can accomplish in 2021 by making a donation to HF today. Tony and Bertha Rye have... read >
In Case You Missed It! – December 2020
Happy Holidays! Celebrations may look different this year, so however you plan to enjoy the season, we wish you peace and joy! If you’ve missed any of the latest news we’ve shared via social media, don’t worry! Get up to date with this latest... read >
Differences in Hypersomnia Disorder Symptoms Among African Americans
Do people of different races/ethnicities experience the same hypersomnia symptoms? This is still an open question, but one study found that African Americans with narcolepsy are less likely to have cataplexy, even when hypocretin levels are low. The... read >