About us

We’re a nonprofit advocacy organization dedicated to improving the lives of people who have idiopathic hypersomnia (IH) and related hypersomnia sleep disorders, including narcolepsy types 1 and 2 and Kleine-Levin syndrome. We do this by:

  • Providing high-quality and timely information that is easy to understand and act on for people across the spectrum of the hypersomnia community—from people first searching for answers and the newly-diagnosed, to those living with these conditions for a longer time, as well as their supporters.
  • Supporting all kinds of healthcare professionals in their ability to identify, diagnose, and treat IH and related sleep disorders.
  • Helping speed up scientific discovery about IH and related sleep disorders, including causes and better diagnosis and treatments. We support researchers in many ways, such as helping with research study recruitment and running a Research Award Program, which includes a partnership with the AASM Foundation to jointly fund research in hypersomnia sleep disorders.

Our mission

These core principles inform everything we do. They push us to imagine—and work towards—a better life for people living with IH and related sleep disorders.   

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Contact us

Get in touch with us! Call, email, and connect on social media.

Contact us

Our leadership

Our leadership team is experienced, passionate, and dedicated to the hypersomnia community. We have direct knowledge of the significant challenges that IH and related sleep disorders can create for individuals and families in many aspects of their lives. 

Get to know us

Our medical and scientific advisory boards

Made up of leading researchers, scientists, and doctors, our advisory boards help ensure our content is accurate and up-to-date, and keep us connected to the global expert community. 

Meet our team

Annual reports

Our reports highlight our accomplishments in education, advocacy, research, fundraising, and more.

Read our reports

Our partners

We couldn’t do this work without the generous support and continued commitment of our partners.

Learn about our partners