Patients & Supporters

The Hypersomnia Foundation has created and compiled many free resources and educational tools to help you cope with the day-to-day challenges of living with a hypersomnia. Families, significant others and friends will find helpful information here, too.

The Hypersomnia Foundation has created and compiled many free resources and educational tools to help you cope with the day-to-day challenges of living with a hypersomnia. Families, significant others and friends will find helpful information here, too.

Learn About IH and Related Sleep Disorders

Advocate for Yourself

Get Involved

  • Donate to the Hypersomnia Foundation. Please consider becoming a monthly donor! Monthly donations help us to budget and plan – though donations of any size are deeply appreciated, whether one-time or monthly. The Hypersomnia Foundation is the leading patient advocacy group for people with idiopathic hypersomnia (IH) and related sleep disorders. As a 501(c)(3) non-profit working on behalf of rare sleep disorders, donations from our community are absolutely essential to our work. Without you, there would be no Hypersomnia Foundation (a rare disorder means a very small pool of donors, which means EVERY donation has much more impact)! HF is a careful steward of every donation. See our Annual Reports.
  • HF Events. Meet other people with hypersomnias and their families, learn about new research and treatments from top sleep clinicians and researchers, and much more…
  • Research Studies. Participate in ongoing research, including clinical trials for new medications. Also, learn FAQs about participating, and check out results of past research.
  • Volunteer for HF. You can make a real difference by becoming a volunteer! Whether you have a special skill that meets a need for HF, or are just motivated to lend a hand, please let us know! Here are just a few of the options  for volunteering with the Hypersomnia Foundation:
    • Become a legislative advocate for HF (learn how to approach your state legislators and more…)
    • Join our PAAC (Patient Advisory and Advocacy Council). This Advisory Council is an important resource for the HF Board.
    • Volunteer at our events. Help attendees get the most out of HF’s education days and conferences.
    • Assist with writing and/or editing our e-newsletter, web pages, and more.

Stay in Touch With HF

Sign up with the Hypersomnia Foundation to stay up to date with the latest news and upcoming events. We’ll also send you a welcome package!

HF’s International Patient Registry

Joining our registry at CoRDS (Coordination of Rare Diseases at Sanford) provides valuable data to sleep researchers. Your data can help lead to the next big breakthrough!

Disability & Health Insurance

Learn more about finding insurance and filing claims successfully in order to access the treatments you need at an affordable price or set up a disability income stream if you can no longer work. A must-read section for all those with IH and related sleep disorders. (For workplace accommodations, read more HERE.)

Disclaimer

The contents of this website, including text, graphics and other material, are for informational purposes only. This website is not intended to be a substitute for professional legal or medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Always consult your own attorney or other legal advisor with any legal questions you may have. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisors, products, procedures, opinions or other information referenced on this website. Reliance on any information on this website is solely at your own risk.

The Hypersomnia Foundation makes no representations or warranties about the satisfaction of any government regulations requiring disclosure of information on prescription drug products. In no event shall The Hypersomnia Foundation be liable for any damages (including without limitation incidental and consequential damages), costs (including without limitation attorney’s fees) based on any claim arising from the use of this website and/or its content.