News, Stories and Updates from the World of Sleep
SomnusNooze Topics - Personal Journey Stories
In Case You Missed It! – June 2020
With quarantine restrictions slowly lifting across the country, we hope everyone continues practicing social distancing and wearing a facemask as you venture out and enjoy the beginning of summer! We are grateful to be able to stay in touch with our... read >
In Case You Missed It! – February 2020
2020 is a Leap Year, which gives you an extra day in February to get up-to-date with the news we’ve shared via social media. Hope you enjoy this latest edition of “In Case You Missed It!” TIME TO CELEBRATE: The Hypersomnia Foundation celebrates... read >
In Case You Missed It! – January 2020
Happy New Year! Let’s start 2020 by being well informed! Get up to date with the news we’ve shared via social media in the latest “In Case You Missed It!” TAKE A 10-MIN SURVEY AND HELP NORD LEARN MORE ABOUT IH! The National Organization... read >
An (Almost) Excuse for Freaking Out Every Morning
In this Personal Journey story, a 19-year-old woman shares how it really feels to have IH. Her feelings run the gamut – from frustration to anger to fear to depression to sorrow. Even with a diagnosis of IH, she still feels the need to apologize for... read >
Raising Awareness from the Inside Out (aka Rip Van Winkle)
What if you decided to take a nap but didn’t wake up for 6 months? You might think this is a version of the famous “Rip Van Winkle” story by Washington Irving, but it’s actually the story of L.B., a person with IH in Scotland. She came home from... read >
In Case You Missed It! – September 2018
In case you missed it, here are highlights from our social media to keep you up-to-date! From HF board members raising hypersomnia awareness at the Myotonic Dystrophy Foundation Conference to an insightful commentary from a science writer living with... read >
IH – The Thief of My Youth
I was 15 years old when my life was turned upside down. In my early years, I was a girl who played sports, participated in school activities, maintained good grades, and was friends with just about everyone. However, during the summer of my sophomore year... read >
Jack & Julie Scholarship Program Announces Its First Scholarship Recipient with IH
The Hypersomnia Foundation is very pleased to report that a Plantation, Florida, high school senior named Jenny is the first person with idiopathic hypersomnia (IH) to receive one of the $1,000 scholarships awarded this year by Project Sleep’s Jack... read >
The Queen of Sleeping
In this Personal Journey story, a “Queen of Sleeping” recounts her struggles to obtain a correct diagnosis, after first receiving diagnoses of lupus and POTS from a variety of doctors. My journey to a diagnosis of idiopathic hypersomnia (IH) is... read >
Idiopathic Hypersomnia Featured in Self Magazine!
The Hypersomnia Foundation's own Board Member, Catherine Page-Rye, and Medical Advisory Board Chair, Dr. Lynn Marie Trotti, were interviewed for this December 2017 article, which describes what it is like to live with idiopathic hypersomnia. Read the... read >