Personal Journey Stories

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January 21, 2020
In CoRDS Registry, Current Actions, HF Announcements, HF Conf Announcements, In Case You Missed It!, Personal Journey Stories, Raising Awareness, Research, Take Action!

In Case You Missed It! – January 2020

Happy New Year! Let’s start 2020 by being well informed! Get up to date with the news we’ve shared via social media in the latest “In Case You Missed It!” TAKE A 10-MIN SURVEY AND HELP NORD LEARN MORE ABOUT IH! The National Organization for Rare Disorders,...

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September 25, 2018
In In Case You Missed It!, Non-HF Conf, Personal Journey Stories, Press/News about Hypersomnias, Raising Awareness, Research, Videos

In Case You Missed It! – September 2018

In case you missed it, here are highlights from our social media to keep you up-to-date! From HF board members raising hypersomnia awareness at the Myotonic Dystrophy Foundation Conference to an insightful commentary from a science writer living with IH, we’ve got you covered! A DAY...

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July 17, 2018
In Personal Journey Stories

IH – The Thief of My Youth

I was 15 years old when my life was turned upside down. In my early years, I was a girl who played sports, participated in school activities, maintained good grades, and was friends with just about everyone. However, during the summer of my sophomore year...

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June 26, 2018
In HF Press, Personal Journey Stories, Press/News about Hypersomnias, Raising Awareness, Students with a Hypersomnia

Jack & Julie Scholarship Program Announces Its First Scholarship Recipient with IH

The Hypersomnia Foundation is very pleased to report that a Plantation, Florida, high school senior named Jenny is the first person with idiopathic hypersomnia (IH) to receive one of the $1,000 scholarships awarded this year by Project Sleep’s Jack & Julie Narcolepsy Scholarship program. The...

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April 17, 2018
In Personal Journey Stories

The Queen of Sleeping

In this Personal Journey story, a “Queen of Sleeping” recounts her struggles to obtain a correct diagnosis, after first receiving diagnoses of lupus and POTS from a variety of doctors. My journey to a diagnosis of idiopathic hypersomnia (IH) is probably not unique. Like many people...

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December 19, 2017
In Idiopathic Hypersomnia, Personal Journey Stories, Press/News about Hypersomnias, Raising Awareness

Idiopathic Hypersomnia Featured in Self Magazine!

The Hypersomnia Foundation's own Board Member, Catherine Page-Rye, and Medical Advisory Board Chair, Dr. Lynn Marie Trotti, were interviewed for this December 2017 article, which describes what it is like to live with idiopathic hypersomnia. Read the full article here: https://www.self.com/story/no-coffee-wont-cure-my-hypersomnia ...

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