SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze topics: Personal journey stories
Sleeping Through Life: My Experience as a Hypersomniac
When I wake up, pure unadulterated panic with a side of adrenaline courses through my body as I try to make sense of the world around me. What day is it? IS IT day? Or night? What’s happened while I’ve been asleep? Have I let anyone down (again)?... read >
Livin’ the Dream
Or maybe dream living? I’ve never been a morning person. Mom would drop me off at the door by my first hour seconds before the bell rang. Neighbors that I carpooled with to grade school called me Molasses. My birth certificate says Melissa. Everyone... read >
Wing Chun and Hypersomnia
Earlier this year, I experienced a minor miracle. After a full day of traveling and running errands, I was completely drained. The next day was a big event, and anxiety was eating at me. Would I wake up in time, would I have enough energy to be sociable,... read >
The Blight on My Daughter’s Life
I gave birth to my daughter at 7:28 pm after 33 hours of labor. I was worn out, so I relinquished my baby to the care of the nurses within a couple hours to get some sleep. I didn’t see Cait again till 6:00 am. And, for the first year and a half of her... read >
Idiopathic Hypersomnia – A Turtle Going Uphill Through Molasses in January
Share the Journey Stories Words escape me. I am a reader, a writer, and a highly educated woman with multiple degrees. Eloquence is high on my list of valued traits. Communication is one of my strengths, and something I’ve always been commended for.... read >
Her: A Supporter’s Story
All I can say is my admiration for those that suffer with idiopathic hypersomnia (IH) is truly immense. I love an IH sufferer, and even though she fights every day just to participate and contribute, she still shares humor and kisses like smuggled... read >
What Is It Like to Participate in a Clinical Trial?
“I don’t want to do it,” I said to my mom as we entered the elevator. “Let’s just go talk to them,” she replied to my dismay. I didn’t want to be there. I didn’t want to have hypersomnia. I didn’t want to do a clinical trial—it... read >
This Is IH
Most of my friends know I have idiopathic hypersomnia (IH) – it isn’t a secret. And most have heard me talk about the challenges I face because of this neurological disorder. They know I struggle every day to get out of bed. And I don't mean it takes... read >
The Hypersomnia Foundation Welcomes New Board Members
We are pleased to announce that Scot Hulshizer, Celia King, and Diane Powell have recently been elected to the Board of Directors of the Hypersomnia Foundation. In addition to bringing unique strengths as the organization thrives and grows in both scope... read >
Share Your Journey | I Will Not Go Gentle into That Night
At what moment does one admit to themselves, family, and the world that they have more than a passing penchant for sleep as well as have cognitive issues? To be sleepy or “getting caught” napping evokes societal stigmas, e.g., “lazy,”... read >