News, Stories and Updates From the World of Sleep
SomnusNooze Topics: Journal Article Summaries
New Research Published on Cognitive-Behavioral Therapy for Hypersomnias
While cognitive behavioral therapy (CBT) has been used extensively to treat many disorders, including insomnia, until now little research has been done to develop similar treatments for IH and narcolepsy. Dr. Jason Ong, a member of the Hypersomnia... read >
Autonomic Dysfunction and Idiopathic Hypersomnia Study Produces Results
A recurring theme we see from people with idiopathic hypersomnia is an interest in finding others who share symptoms beyond sleepiness. This helps connect patients with common experiences and researchers on the path to finding causes and new and improved... read >
Differences in Hypersomnia Disorder Symptoms Among African Americans
Do people of different races/ethnicities experience the same hypersomnia symptoms? This is still an open question, but one study found that African Americans with narcolepsy are less likely to have cataplexy, even when hypocretin levels are low. The... read >
Thinking of Requesting Work Accommodations? Your Mood and Confidence Matter
A summary of a refereed journal article was written at the request of the HF Patient Advisory and Advocacy Council (PAAC) because of its relevance to those with hypersomnias. It highlights some of the issues regarding the complex process of requesting... read >
IH Symptom and Treatment Insights From the HF Patient Registry at CoRDS
Since March 2015, over 2,300 people have joined the HF International Patient Registry at CoRDS. We now have a valuable dataset for researchers to study and a new research paper has just been published: “Disease Symptomatology and Response to Treatment... read >
Do I Have IH or NT2?
If you are uncertain whether you have idiopathic hypersomnia (IH) or narcolepsy type 2 (NT2), you are not alone. Sleep doctors are also asking this question, as sleep study results on the same patient often alternate between IH and NT2 diagnoses. Sleep... read >
Challenges to Seeking Appropriate Support for Unmet Needs in Neurological Disorders
This summary of a refereed journal article was written at the request of the HF Patient Advisory and Advocacy Council (PAAC) because of its relevance to those with hypersomnias. The findings of the Australian-based study that is the basis for the article... read >
Study Reveals “Default-Mode Network” Is Different in People with IH
HF MAB member Dr. Thien Thanh Dang-Vu Have you ever wondered whether your cognition and memory are affected by your IH? A new study reveals the answer is “YES.” In a recent study by HF MAB member Dr. Thien Thanh Dang-Vu and his colleagues,... read >
Summary of “Establishing the Objective Sleep Phenotype in Hypersomnolence Disorder [IH] with and without Comorbid Major Depression”
David Plante, MD, PhD, HF MAB member It can be challenging for doctors to distinguish between idiopathic hypersomnia and depression. It is also possible for one patient to have both conditions. Researchers are looking for better ways to tell the... read >
Can a Controlled 32-hour Bed-rest Protocol Diagnose IH?
Can IH be diagnosed through a controlled 32-hour bed-rest protocol? And, if so, how many hours does someone need to sleep during those 32 hours to be diagnosed with IH? Finally, how accurate is this type of diagnosis? Sleep researchers in France recently... read >