News, Stories and Updates from the World of Sleep
SomnusNooze Topics: Journal Article Summaries
IH Symptom and Treatment Insights From the HF Patient Registry at CoRDS
Since March 2015, over 2,300 people have joined the HF International Patient Registry at CoRDS. We now have a valuable dataset for researchers to study and a new research paper has just been published: “Disease Symptomatology and Response to Treatment... read >
Do I Have IH or NT2?
If you are uncertain whether you have idiopathic hypersomnia (IH) or narcolepsy type 2 (NT2), you are not alone. Sleep doctors are also asking this question, as sleep study results on the same patient often alternate between IH and NT2 diagnoses. Sleep... read >
Challenges to Seeking Appropriate Support for Unmet Needs in Neurological Disorders
This summary of a refereed journal article was written at the request of the HF Patient Advisory and Advocacy Council (PAAC) because of its relevance to those with hypersomnias. The findings of the Australian-based study that is the basis for the article... read >
Study Reveals “Default-Mode Network” Is Different in People with IH
HF MAB member Dr. Thien Thanh Dang-Vu Have you ever wondered whether your cognition and memory are affected by your IH? A new study reveals the answer is “YES.” In a recent study by HF MAB member Dr. Thien Thanh Dang-Vu and his colleagues,... read >
Summary of “Establishing the Objective Sleep Phenotype in Hypersomnolence Disorder [IH] with and without Comorbid Major Depression”
David Plante, MD, PhD, HF MAB member It can be challenging for doctors to distinguish between idiopathic hypersomnia and depression. It is also possible for one patient to have both conditions. Researchers are looking for better ways to tell the... read >
Can a Controlled 32-hour Bed-rest Protocol Diagnose IH?
Can IH be diagnosed through a controlled 32-hour bed-rest protocol? And, if so, how many hours does someone need to sleep during those 32 hours to be diagnosed with IH? Finally, how accurate is this type of diagnosis? Sleep researchers in France recently... read >
Do People with IH Have Different Brains Than People Without IH?
Do people with IH have different brains than people without IH? According to a Canadian research study involving our prestigious Medical Advisory Board member, Dr. Thanh Dang-Vu, the answer is “yes.” We are very pleased to present this summary of the... read >
Need Surgery, but Have IH?
We’ve summarized a journal article that addresses some anesthesia considerations for patients with idiopathic hypersomnia. If you need to have surgery of any kind, you may want to share this information with your healthcare providers. Summary of:... read >
Article Summary: Khan Z, Trotti LM. “Central Disorders of Hypersomnolence: Focus on the Narcolepsies and Idiopathic Hypersomnia.”
This article reviews three central disorders of hypersomnolence (CDH), which include narcolepsy type 1, narcolepsy type 2, and idiopathic hypersomnia. The main symptom patients experience in all three of these disorders is... read >
A Pilot Study of tDCS Looks Promising for the Treatment of IH
A Pilot Study of tDCS Looks Promising for the Treatment of Idiopathic Hypersomnia Background Idiopathic hypersomnia (IH) can severely impact affected individuals’ family, employment, education, and leisure activities. And because there are no... read >