News, Stories and Updates from the World of Sleep
SomnusNooze Topics: Disability & Health Insurance
Do I Have IH or NT2?
If you are uncertain whether you have idiopathic hypersomnia (IH) or narcolepsy type 2 (NT2), you are not alone. Sleep doctors are also asking this question, as sleep study results on the same patient often alternate between IH and NT2 diagnoses. Sleep... read >
In Case You Missed It! – August 2020
We hope everyone is staying healthy and enjoying the summer as best as possible! We are grateful to be able to keep in contact with our community through social media, email, and SomnusNooze. If you’ve missed any of the latest news we’ve shared,... read >
In Case You Missed It! – July 2020
We trust everyone is practicing physical distancing and wearing a facemask as you enjoy the summer sunshine and stay in touch with family and friends! We are grateful to be able to keep in contact with our community through social media, email, and... read >
In Case You Missed It! – April 2020
Now more than ever, we are grateful to be able to stay in touch with our community through social media, email, and SomnusNooze. If you’ve missed any of the latest news we’ve shared, don’t worry! Get up to date with this latest edition of “In Case... read >
In Case You Missed It! – March 2020
Happy St. Patrick’s Day! If you’ve missed the latest news we’ve shared via social media, don’t worry, you’re in luck! Get up to date with this latest edition of “In Case You Missed It!” CONGRATULATIONS: Dr. Todd Bishop receives funding... read >
Tools for School, Campus, and Beyond
It’s September, and students of all ages – from K-12 through college and beyond – have begun another year of studies or training. But when IH is part of your life, going to school, being on campus, or learning online or in the field, can be... read >
Our Struggle for Prescription Drug Coverage – 2019 Survey Results
Did you know? Coverage and cost barriers prevent 40% of people with IH from taking the medication prescribed by the doctor. And almost 72% of people with IH have had their prescribed medications initially denied by their insurance company. Your responses... read >
Please Tell Us Your Prescription Drug Story!
Ever had problems getting your insurance company to pay for your prescription medicines? Or ever had problems paying for your prescriptions? We’ve heard enough anecdotal stories to know that insurance coverage and the cost of prescription drugs can be a... read >
Have Workplace Questions? Check Out JAN!
The workplace can be very challenging to navigate when living with idiopathic hypersomnia. Questions, concerns, and issues often arise in regards to your symptoms. What can the employee with IH do when these matters arise? The Job Accommodations... read >
FAQs about Flumazenil Access
The Hypersomnia Foundation frequently receives questions about the use of flumazenil in treating IH and related disorders, especially here in the U.S. Most of the emails we receive ask how and where to find this medication. In response, we have... read >