Disability and Health Insurance

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April 21, 2020

In Ask the Doctor, Current Actions, Disability and Health Insurance, HF Conf Announcements, In Case You Missed It!, Miscellaneous, Raising Awareness, Research, Take Action!

In Case You Missed It! – April 2020

Now more than ever, we are grateful to be able to stay in touch with our community through social media, email, and SomnusNooze. If you’ve missed any of the latest news we’ve shared, don’t worry! Get up to date with this latest edition of “In...

March 17, 2020

In Current Actions, Disability and Health Insurance, HF Announcements, HF Conf Announcements, In Case You Missed It!, Raising Awareness, Research, Research Award Program, Students with a Hypersomnia, Take Action!

In Case You Missed It! – March 2020

Happy St. Patrick’s Day! If you’ve missed the latest news we’ve shared via social media, don’t worry, you’re in luck! Get up to date with this latest edition of “In Case You Missed It!” CONGRATULATIONS: Dr. Todd Bishop receives funding through HF’s Research Award Program ...

September 17, 2019

In Disability and Health Insurance, Students with a Hypersomnia

Tools for School, Campus, and Beyond

It’s September, and students of all ages – from K-12 through college and beyond – have begun another year of studies or training. But when IH is part of your life, going to school, being on campus, or learning online or in the field, can...

August 20, 2019

In Current Actions, Health Insurance, Raising Awareness, Take Action!

Our Struggle for Prescription Drug Coverage – 2019 Survey Results

Did you know? Coverage and cost barriers prevent 40% of people with IH from taking the medication prescribed by the doctor. And almost 72% of people with IH have had their prescribed medications initially denied by their insurance company. Your responses to our 2019 IH...

July 16, 2019

In Health Insurance, Take Action!

Please Tell Us Your Prescription Drug Story!

Ever had problems getting your insurance company to pay for your prescription medicines? Or ever had problems paying for your prescriptions? We’ve heard enough anecdotal stories to know that insurance coverage and the cost of prescription drugs can be a real problem. Help us help...

May 15, 2018

In Disability and Health Insurance

Have Workplace Questions? Check Out JAN!

The workplace can be very challenging to navigate when living with idiopathic hypersomnia. Questions, concerns, and issues often arise in regards to your symptoms. What can the employee with IH do when these matters arise? The Job Accommodations Network (JAN) is one of a number of...

April 17, 2018

In Flumazenil, Health Insurance, Treatments

FAQs about Flumazenil Access

The Hypersomnia Foundation frequently receives questions about the use of flumazenil in treating IH and related disorders, especially here in the U.S. Most of the emails we receive ask how and where to find this medication. In response, we have researched flumazenil access and compiled...

March 20, 2018

In Disability and Health Insurance, Social Security Disability

The Little Known SSA Disability Benefit for Disabled Adult Children (DAC)

Authored by Anjel Burgess, Esq. As the baby boomers enter retirement, some are discovering that all of their hard work has not only entitled them to retirement benefits from the Social Security Administration (SSA), but has also entitled their disabled adult child(ren) to their own disability...

December 19, 2017

In Health Insurance, News

Almost 26 or Older? Extended Health Insurance Coverage May Be Available

If you or your young adult is 25 years old, then decisions will need to be made before the age of 26 about securing health insurance. Some insurance plans allow the parent(s) of young adults with a disability (e.g., the diagnosis of IH) to request...

February 13, 2017

In Disability and Health Insurance

A Service Dog Can Do That?

Service Dogs – Different Types and What They Do Many people are surprised to learn there are more than a dozen different specializations for service dogs. There are diabetic alert dogs, severe allergy alert dogs, visual assistance dogs, hearing dogs for the deaf, wheelchair assistance dogs,...