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In Case You Missed It! – February 2019

Happy February! This month is full of celebrations – the Lunar New Year (it’s the Year of the Pig), Black History Month, Presidents’ Day, and the sweetest day of all – Valentine’s Day! But since February is also the shortest month, that means you won’t...

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In Case You Missed It! – January 2019

Happy 2019! As we welcome the new year, we at the Hypersomnia Foundation have resolved to make things easier for our followers! In this month’s “In Case You Missed It!,” we highlight some of the most important news and social media posts about the HF,...

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In Case You Missed It! – August 2018

This new series highlights topics relating to sleep disorders that have been in the news and/or in our recent social media posts. Check here each month to make sure that you are up-to-date on the news relating to idiopathic hypersomnia and related sleep disorders! SODIUM OXYBATE...

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Board Member Amy Haraden Speaks About Living with IH at SLEEP2 Conference

On June 3, 2017, Board Member Amy Haraden participated in a Patient Panel at the SLEEP2 (PCORI) Conference organized by Project Sleep. SLEEP2 is a project co-led by the University of Arizona, the Sleep Research Network, and Project Sleep and is funded by the Patient-Centered...

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Arise Clinical Trial

CLINICAL TRIAL ENROLLING PATIENTS WITH IDIOPATHIC HYPERSOMNIA AND NARCOLEPSY TYPE 2 Balance Therapeutics is evaluating an investigational new drug BTD-001, to treat excessive daytime sleepiness in individuals diagnosed with idiopathic hypersomnia (IH) or narcolepsy type 2 (Na-2). A Phase 2 clinical trial is currently enrolling Na-2 subjects at 26...

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What’s New in the Diagnosis and Treatment of Hypersomnia in 2016?

Rather than writing our own article for this week’s edition of SomnusNooze, we are bringing you information from Dr. David Cunnington in Melbourne, Australia. Dr. Cunnington has agreed to share with us a recent post from his website (sleephub.com.au) that covers hypersomnia-related topics from the SLEEP2016...

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EMA Recommends Approval of Pitolisant for the Treatment of Narcolepsy

On November 20, 2015, the European Medicine Agency’s (EMA) Committee for Medicinal Products for Human Use (CHMP) recommended that Bioprojet Pharma's drug pitolisant (Wakix) be approved for the treatment of narcolepsy with or without cataplexy. In making its recommendation, the Committee reviewed data from four studies of pitolisant—two placebo-controlled...

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