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We are excited to kick off our 2019 “Let’s Get #BeyondSleepy!” fundraising and IH awareness campaign! It’s time to print or make your own “Let’s Get #BeyondSleepy!” sign and help spread awareness of IH and the Hypersomnia Foundation. Grab your sign and take pictures of...
Continue ReadingThe holiday season is upon us and our schedules quickly fill up! Keep up to date with the news we’ve shared via social media with the sleep disorder community since our last “In Case You Missed It!” So don’t worry if you’ve missed anything –...
Continue ReadingDid you know? Coverage and cost barriers prevent 40% of people with IH from taking the medication prescribed by the doctor. And almost 72% of people with IH have had their prescribed medications initially denied by their insurance company. Your responses to our 2019 IH...
Continue ReadingHow can you receive your best care from your healthcare providers? How do you negotiate for accommodations or benefits? We have the answers! The HF is pleased to announce the release of its new patient resource brochure: Self-Advocacy Tips for People with Idiopathic Hypersomnia and...
Continue ReadingKeep up to date with the news we’ve shared via social media in this month’s “In Case You Missed It!” URGENT: Health authorities warn that modafinil may cause fetal harm. CONGRATULATIONS: Dr. Caroline Maness of Emory University is the first recipient of the Hypersomnia Foundation’s...
Continue ReadingThe Hypersomnia Foundation has named Rebecca King, who is both a person with IH and an HF volunteer, as a Legislative Advocate. In this role, Rebecca will be leading HF efforts to assess the legislative landscape, select the issues and bills with the greatest potential...
Continue ReadingIn this month’s “In Case You Missed It!”, keep up to date with news we’ve shared with the sleep disorder community via social media this past month. So don’t worry if you’ve missed anything – we’ve got you covered! CHECK OUT THE UPDATED DETAILS OF OUR...
Continue ReadingKeep up to date with all the news we’ve shared with the sleep disorder community in this month’s “In Case You Missed It!” TAKE ACTION by clicking to support NORD’s advocacy. Read about a runner with IH competing in the upcoming Boston Marathon. If you...
Continue ReadingHave IH, narcolepsy, or a related sleep disorder? Ever wonder how you can help in the search for better treatments or even a cure? Now is your chance – a number of research studies are currently seeking participants who have IH, narcolepsy, or excessive daytime...
Continue ReadingNeed information relating to your IH? Love things that are FREE? Our Hypersomnia Foundation website is full of FREE resources for individuals with IH and related sleep disorders (and their loved ones). Our website offers an “IH Standard Characteristics” document you can share with your...
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