SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze topics: Current actions
In Case You Missed It! – May 2019
In this month’s “In Case You Missed It!”, keep up to date with news we’ve shared with the sleep disorder community via social media this past month. So don’t worry if you’ve missed anything – we’ve got you covered! CHECK OUT... read >
In Case You Missed It! – April 2019
Keep up to date with all the news we’ve shared with the sleep disorder community in this month’s “In Case You Missed It!” TAKE ACTION by clicking to support NORD’s advocacy. Read about a runner with IH competing in the upcoming Boston Marathon.... read >
Research Studies Need YOU!
Have IH, narcolepsy, or a related sleep disorder? Ever wonder how you can help in the search for better treatments or even a cure? Now is your chance – a number of research studies are currently seeking participants who have IH, narcolepsy, or excessive... read >
Free Resources from the Hypersomnia Foundation!
Need information relating to your IH? Love things that are FREE? Our Hypersomnia Foundation website is full of FREE resources for individuals with IH and related sleep disorders (and their loved ones). Our website offers an “IH Standard... read >
NORD Guide for Making Your Health Insurance Work for You!
Are you satisfied with your health insurance benefits? Or are you pulling your hair out over complicated policy language, undecipherable diagnostic codes, and denials of coverage for your IH treatments? It is difficult enough to have a rare disease such... read >
See How Our Hypersomnia Patient Registry Has Helped Researchers!
You’ve participated, and NOW THERE ARE RESULTS! Our hypersomnia-specific patient registry, which was established at CoRDS (Coordination for Rare Diseases at Sanford) in 2016 and which has grown to nearly 1,500 participants, has already helped... read >
In Case You Missed It! – January 2019
Happy 2019! As we welcome the new year, we at the Hypersomnia Foundation have resolved to make things easier for our followers! In this month’s “In Case You Missed It!,” we highlight some of the most important news and social media posts about the... read >
Introducing Our New Medical Alert Card for IH Patients!
The Hypersomnia Foundation is pleased to announce that we have created a Medical Alert Card, designed expressly for people with idiopathic hypersomnia (IH). The card is FREE and can be downloaded from our website HERE. Our Medical Alert Card is... read >
Announcing Our Updated Research Studies Web Page!
We’re pleased to announce that we have updated our Research Studies web page (formerly titled Clinical Trials). By CLICKING HERE, you can see our latest information on ongoing research studies about idiopathic hypersomnia (IH) and related disorders,... read >
HF Announces the Launch of Its IH Research Award Program
Today the Hypersomnia Foundation is very proud to announce the launch of its idiopathic hypersomnia (IH) research award program. This program will provide funding to support medical students, physician residents and fellows, postdoctoral fellows, and... read >