CoRDS Registry

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See How Our Hypersomnia Patient Registry Has Helped Researchers!

You’ve participated, and NOW THERE ARE RESULTS! Our hypersomnia-specific patient registry, which was established at CoRDS (Coordination for Rare Diseases at Sanford) in 2016 and which has grown to nearly 1,500 participants, has already helped researchers in their efforts to unlock the mysteries of rare sleep...

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You Are Amazing!

Once again, our incredible hypersomnia family has come together to support each other in a most amazing way. As you know, several anonymous donors challenged our community to enroll in the Hypersomnia Foundation Registry at CoRDS during the month of September. You responded beyond anyone’s...

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Together, We Can Solve the Puzzle of Hypersomnia

What is a Patient-Powered Registry?Simply put, a patient registry is a collection—for one or more purposes—of standardized information about a group of patients who share a condition or experience. According to a publication from the Agency for Healthcare Research and Quality Research, "Patient-powered registries and patient-powered...

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A United Effort to Fuel Research on Hypersomnia

        A patient registry specific to hypersomnia has been a goal of the Hypersomnia Foundation (HF) since its incorporation in 2014. A patient registry houses information about a group of people with a medical condition, disease, or disorder that is collected in a standardized way. Registries are a...

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