News, Stories and Updates From the World of Sleep
SomnusNooze Topics: CoRDS Registry
Together, We Can Solve the Puzzle of Hypersomnia
What is a Patient-Powered Registry?Simply put, a patient registry is a collection—for one or more purposes—of standardized information about a group of patients who share a condition or experience. According to a publication from the Agency for... read >
Solving the Puzzle of Hypersomnia One Piece at a Time
The Hypersomnia Foundation Board of Directors is thrilled to announce the launch of the Hypersomnia Foundation’s Registry at CoRDS (Coordination of Rare Diseases at Sanford). Whether you have idiopathic hypersomnia, Kleine-Levin syndrome or narcolepsy... read >
A United Effort to Fuel Research on Hypersomnia
A patient registry specific to hypersomnia has been a goal of the Hypersomnia Foundation (HF) since its incorporation in 2014. A patient registry houses information about a group of people with a medical... read >