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Are you satisfied with your health insurance benefits? Or are you pulling your hair out over complicated policy language, undecipherable diagnostic codes, and denials of coverage for your IH treatments? It is difficult enough to have a rare disease such as IH and try to manage...
Continue ReadingWhat is GABA? What role does it play in sleep? And is GABA activity increased by something in the cerebrospinal fluid of people with hypersomnia? We are very pleased to present Part 2 of a new two-part series by neuroscientist Amanda Freeman, PhD, of Emory...
Continue ReadingHappy February! This month is full of celebrations – the Lunar New Year (it’s the Year of the Pig), Black History Month, Presidents’ Day, and the sweetest day of all – Valentine’s Day! But since February is also the shortest month, that means you won’t...
Continue ReadingAmanda Freeman, PhD What is GABAA? And how does it affect hypersomnia? We are very pleased to present a two-part video series by neuroscientist Amanda Freeman, PhD, of Emory University, which describes, in layman’s terms, exactly how y-aminobutyric acid, better known as GABA, affects sleep....
Continue ReadingAs the end of 2018 draws near, we know that your family and other social obligations can take over your life. So the Hypersomnia Foundation is here to make things easier and more joyful! In this month’s “In Case You Missed It!,” we highlight some...
Continue ReadingIn this month’s “In Case You Missed It,” we highlight some of the most important news and social media posts about the Hypersomnia Foundation, idiopathic hypersomnia, and other sleep disorders from the past 4-5 weeks. From a planned HF educational meeting in Seattle in June...
Continue ReadingIn case you missed it, here are highlights from our social media to keep you up-to-date! From HF board members raising hypersomnia awareness at the Myotonic Dystrophy Foundation Conference to an insightful commentary from a science writer living with IH, we’ve got you covered! A DAY...
Continue ReadingOn June 3, 2017, Board Member Amy Haraden participated in a Patient Panel at the SLEEP2 (PCORI) Conference organized by Project Sleep. SLEEP2 is a project co-led by the University of Arizona, the Sleep Research Network, and Project Sleep and is funded by the Patient-Centered...
Continue ReadingSaturday’s social gatherings kicked off with the Old Town Trolley Ride and ended the day with a casual Meet and Greet. “This is the first time in my life I have ever met anyone else with hypersomnia let alone be able to sit and talk...
Continue ReadingBackground How do our brains control when we go to sleep and when we wake up? Previous studies have tried to answer this question, but, despite years of research, our understanding of this process is incomplete. Therefore, the goal of this study was to identify the...
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