SomnusNooze Articles > Conferences > Non-HF Conf
Have you seen us? The Hypersomnia Foundation has been here, there and everywhere lately, raising awareness of idiopathic hypersomnia (IH) and related sleep disorders! From Boston to Seattle, from Denver to San Antonio, we’ve been talking to medical professionals, school counselors, and people with IH,...
Continue ReadingDID YOU KNOW? The Hypersomnia Foundation has been steadily adding to our library of videos (many of them presentations from HF conferences), showcasing researchers, healthcare providers, and people with IH. Now you can easily find them in one place on our new video webpage. Through videos...
Continue ReadingIn December’s SomnusNooze, we featured Part 1 of a 2-part Summary of the research findings presented at the 7th International Symposium on Narcolepsy, which was held earlier this fall in Boston. Prominent sleep medicine researchers and physicians, pharmaceutical company executives and representatives from patient advocacy...
Continue ReadingThe 7th International Symposium on Narcolepsy, held in Boston earlier this fall, gathered both basic and clinical researchers from around the globe so they could share their latest findings with each other to help advance the field. Representatives from several patient support groups, including the...
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The Hypersomnia Foundation (HF) was delighted to participate in this September’s 7th International Symposium on Narcolepsy. The HF was invited, along with three other patient advocacy groups “to bring important and diverse perspectives on how best to advocate for and support patients with narcolepsy and...
Continue ReadingIn case you missed it, here are highlights from our social media to keep you up-to-date! From HF board members raising hypersomnia awareness at the Myotonic Dystrophy Foundation Conference to an insightful commentary from a science writer living with IH, we’ve got you covered! A DAY...
Continue ReadingThis month, we begin a new SomnusNooze series entitled “In Case You Missed It!” This series will highlight topics relating to sleep disorders that have been in the news and/or in our recent social media posts. Check here each month to make sure that you...
Continue ReadingThe Hypersomnia Foundation (HF) and its Board have just completed a week of very successful events in Baltimore to raise awareness of idiopathic hypersomnia (IH). Isabelle Arnulf, MD, PhD Sorbonne University, Paris First, the HF held its #BeyondSleepy Conference on June 2-3, attracting nearly 200 attendees....
Continue ReadingOn June 3, 2017, Board Member Amy Haraden participated in a Patient Panel at the SLEEP2 (PCORI) Conference organized by Project Sleep. SLEEP2 is a project co-led by the University of Arizona, the Sleep Research Network, and Project Sleep and is funded by the Patient-Centered...
Continue ReadingThe Hypersomnia Foundation (HF) is thrilled to announce its attendance at the World Sleep Congress (WSC), hosted by the World Sleep Society, October 7 to 11, 2017 in Prague. The Congress is well attended by world clinical and scientific sleep medicine experts. Board members Diane Powell...
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