Time to update CoRDS information!
Please make time to log into the CoRDS online portal and keep all of your information up to date. Not only is it important to keep your information up to date in case researchers would like CoRDS to contact you, but it also helps potential researchers monitor the progression of rare diseases and rare disorders.
Every bit of information you can share, and keep updated, helps the rare community move one step toward solving the puzzle both now and in the future.
Visit http://www.sanfordresearch.org/cords/ and click “Update Your Registry” on the left side of the page.
Read the full annual update reminder here: CoRDS Annual Update Reminder.