Getting #BeyondSleepy in Seattle

« Back to Past Events

  • This event has passed.
Saturday, June 29, 2019

10:00am - 3:00pm  |  Admission: $25 (includes lunch)

SEATTLE: HF Educational Meeting

 
Hypersomnia Foundation - The Way Forward - #BeyondSleepy

This Seattle meeting will be one of a series of educational meetings HF will begin holding in 2019 and beyond. We hope that holding one-day meetings in a variety of locations will allow more people with IH and related disorders, as well as their supporters, to take part in an HF event.

This gathering will be the first HF outreach and awareness event on the West Coast, and is open to everyone!

Click HERE to purchase your tickets now on Eventbrite.  The cost is $25 and includes lunch. 

Register before May 30 to receive a FREE “Getting #BEYONDSLEEPY in Seattle!” t-shirt.

[For anyone taking part in Hypersomnia Alliance’s “Snooze Cruise 2019,”* note that this meeting is conveniently scheduled for the day after your tour disembarks in Seattle!]

The Hypersomnia Foundation has been able to reserve a limited block of rooms at the Seattle Airport Marriott for $142/night on Friday, June 28th and Saturday June 29th. Reserve your room now!

Guest speakers include:

  • Dr. David Rye of Emory University
  • Dr. Flavia Consens of University of Washington/Harborview Medical Center
  • Rebecca King, HF’s new Legislative Advocate, will share her current advocacy work in Washington, D.C. and at the NIH in Bethesda as she fights for increased funding for sleep disorder research.
  • Sarah Beazley, Hypersomnia Foundation Board member, will hold an interactive workshop on “Effective Self-Advocacy” for people with IH and related sleep disorders.
  • Julie Flygare, President & CEO of Project Sleep, will present “Taking Action Through Advocacy” showing how each of our voices makes a difference in educating decision-makers and advancing science to improve outcomes for those living with IH.
  • Representatives from Balance Therapeutics will also provide information about their ongoing Arise2 IH clinical trial.

*Please note that “Snooze Cruise 2019” is a separate event, organized through the Hypersomnia Alliance, not the Hypersomnia Foundation. (For further information about Snooze Cruise, click HERE.)


 

Venue

Seattle Airport Marriott
3201 South 176th Street
Seattle, WA 98188 United States
+ Google Map
Reserve Your Room
Disclaimer

The contents of this website, including text, graphics and other material, are for informational purposes only. This website is not intended to be a substitute for professional legal or medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Always consult your own attorney or other legal advisor with any legal questions you may have. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisors, products, procedures, opinions or other information referenced on this website. Reliance on any information on this website is solely at your own risk.

The Hypersomnia Foundation makes no representations or warranties about the satisfaction of any government regulations requiring disclosure of information on prescription drug products. In no event shall The Hypersomnia Foundation be liable for any damages (including without limitation incidental and consequential damages) or costs (including without limitation attorney’s fees) based on any claim arising from the use of this website and/or its content.