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Saturday, November 13, 2021
12:00pm - 2:00pm ET | Free
VIRTUAL – Reaching Every Patient: A Health Equity Conversation
Reaching Every Patient: A Health Equity Conversation – An HF VIRTUAL Event
Saturday, November 13th 12noon-2pm (EST)
Let’s talk about how we can help everyone with a rare sleep disorder get a proper diagnosis and treatment! Many people with rare sleep disorders face diagnosis and treatment delays. Some don’t seem to get a diagnosis at all: we’ve noticed that many communities are vastly underrepresented in patient registries and clinical trials – why is this? What other barriers are there?
When everyone is diagnosed, our community not only grows, but becomes stronger in our advocacy to get more research and improved treatments!
So please join us to listen, learn and engage in this event. We’ll discuss a few areas of common interest for people with sleep disorders, share patient stories, resources, and talk about how we can all play a role in building a wider community.
Note: This event is open to attendees from any country.
HF’s Diversity and Health Equity Taskforce is inviting the IH, narcolepsy and KLS patient communities to join this important conversation.
We are aware that there are ongoing challenges when it comes to the inclusion of underrepresented, seldom heard or socially excluded groups. In order to ensure equity in healthcare, it is critical to elevate the perspectives of patients in underrepresented groups and learn from their experiences.
Prior knowledge of or experience in this area is not a requirement to participate, and allies are welcome! We hope to bring in many different perspectives from stakeholders focused on health equity, diversity, inclusion and allyship, and other relevant areas. We invite everyone to listen, learn, and participate in this engaging event. We hope you are available to participate and share your interest in this important topic!