Getting #BeyondSleepy With Health Equity

Loading Events

« Back to Past Events

  • This event has passed.
Saturday, November 13, 2021

12:00pm - 2:00pm ET  |  Free

VIRTUAL – Reaching Every Patient: A Health Equity Conversation

Event Details

Hypersomnia Foundation - The Way Forward - #BeyondSleepy

Reaching Every Patient: A Health Equity Conversation – An HF VIRTUAL Event

Saturday, November 13th 12noon-2pm (EST)

Let’s talk about how we can help everyone with a rare sleep disorder get a proper diagnosis and treatment! Many people with rare sleep disorders face diagnosis and treatment delays. Some don’t seem to get a diagnosis at all: we’ve noticed that many communities are vastly underrepresented in patient registries and clinical trials – why is this? What other barriers are there?

When everyone is diagnosed, our community not only grows, but becomes stronger in our advocacy to get more research and improved treatments!

So please join us to listen, learn and engage in this event. We’ll discuss a few areas of common interest for people with sleep disorders, share patient stories, resources, and talk about how we can all play a role in building a wider community.

Note: This event is open to attendees from any country.

More on this event:

HF’s Diversity and Health Equity Taskforce is inviting the IH, narcolepsy and KLS patient communities to join this important conversation.

We are aware that there are ongoing challenges when it comes to the inclusion of underrepresented, seldom heard or socially excluded groups. In order to ensure equity in healthcare, it is critical to elevate the perspectives of patients in underrepresented groups and learn from their experiences.

Prior knowledge of or experience in this area is not a requirement to participate, and allies are welcome! We hope to bring in many different perspectives from stakeholders focused on health equity, diversity, inclusion and allyship, and other relevant areas. We invite everyone to listen, learn, and participate in this engaging event. We hope you are available to participate and share your interest in this important topic!


The contents of this website, including text, graphics and other material, are for informational purposes only. This website is not intended to be a substitute for professional legal or medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Always consult your own attorney or other legal advisor with any legal questions you may have. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisors, products, procedures, opinions or other information referenced on this website. Reliance on any information on this website is solely at your own risk.

The Hypersomnia Foundation makes no representations or warranties about the satisfaction of any government regulations requiring disclosure of information on prescription drug products. In no event shall The Hypersomnia Foundation be liable for any damages (including without limitation incidental and consequential damages) or costs (including without limitation attorney’s fees) based on any claim arising from the use of this website and/or its content.