SomnusNooze e-newsletter
News, stories and updates from the world of sleep
In Case You Missed It! – December 2021
2021 is coming to an end! The holiday season can keep you busy, so if you’ve missed any of the latest news we’ve shared through our social media, don’t worry! Get up to date with this edition of “In Case You Missed It!” UPCOMING HF EVENTS:... read >
Let’s Kick Off Giving Tuesday Together!
On this Giving Tuesday, as we reflect upon a year that has been challenging for all, we have much to be thankful for. We did not let the pandemic slow down or stop our progress. Instead, we continue to listen to the community on our journey to improve as... read >
In Case You Missed It! – November 2021
Happy Fall! If you’ve missed any of the latest news we’ve shared through our social media, don’t worry! Get up to date with this edition of “In Case You Missed It!” TWO GREAT VIDEOS: “Science” magazine releases video about life with IH... read >
Diagnosing Hypersomnias: The Blood Hypocretin Mystery
The current gold standard diagnostic test to differentiate narcolepsy type 1 (NT1) from other hypersomnias is to measure the level of hypocretin in cerebrospinal fluid (CSF). The procedure to take a sample of CSF, called a spinal tap, is uncomfortable... read >
In Case You Missed It! – October 2021
Happy Halloween! If you’ve missed any of the latest news we’ve shared through our social media, don’t worry! Get up to date with this edition of “In Case You Missed It!” REGISTER TODAY: Registration open for HF’s free virtual event... read >
What Is Sleep Hygiene, Anyway?
Sleep hygiene—everybody, including both patients and healthcare providers, has heard that if these rules are followed, sleep will be improved. Right? What exactly are the official rules, and what’s not included? Should people who have IH or a related... read >
Diagnosing Hypersomnias Differently—A European Proposal
Have you ever noticed how difficult it is to diagnose hypersomnias? Maybe you’ve wondered if a narcolepsy type 2 diagnosis is actually idiopathic hypersomnia (IH) or vice-versa? Have you questioned whether the diagnosis is IH “with long sleep time”... read >
In Case You Missed It! – September 2021
Happy Fall! If you’ve missed any of the latest news we’ve shared through our social media, don’t worry! Get up to date with this edition of “In Case You Missed It!” WELCOME DR. LAMMERS: Dr. Gert Jan Lammers joins the Hypersomnia... read >
Free Access to the Idiopathic Hypersomnia Severity Scale
Take or administer this questionnaire now! The Idiopathic Hypersomnia Severity Scale (IHSS) is designed to help healthcare providers, researchers, and people who have IH monitor the severity of the spectrum of IH symptoms over time, including their... read >
Updated and Expanded Treatment Web Page
Do you have idiopathic hypersomnia or a related sleep disorder, or do you treat patients with hypersomnias? If so, then check out our newly updated Treatment web page. Our Medical Advisory Board has just completed a full review and update, including... read >