News, Stories and Updates from the World of Sleep
ICYMI! Events Edition: Get the Scoop on HF’s Attendance at Numerous Events This Past Fall
HF had a very busy fall, attending numerous conferences and events. We’re very excited to have been able to expand our efforts to reach more clinicians, researchers, educators, and people affected by idiopathic hypersomnia and related disorders. We... read >
In Case You Missed It! – December 2019
Happy Holidays! As you enjoy the season with family and friends, we’ll keep you up to date with the news we’ve shared via social media in the latest “In Case You Missed It!” DOUBLE YOUR DONATION BY DEC. 31! Our End-of-Year Fundraising... read >
Help Kick Off Our 2019 LET’S GET #BEYONDSLEEPY Fundraising and IH Awareness Campaign
We are excited to kick off our 2019 “Let’s Get #BeyondSleepy!” fundraising and IH awareness campaign! It’s time to print or make your own “Let’s Get #BeyondSleepy!” sign and help spread awareness of IH and the Hypersomnia Foundation. Grab... read >
Ask the Doctor: Can My Treating Physician Set Up an N-of-1 Trial for Me?
What is an N-of-1 trial? What is involved? Can I set up one with my treating physician? We are very honored to have Chad Ruoff, MD, a distinguished member of our Medical Advisory Board and an Adjunct Clinical Assistant Professor at the Stanford Center for... read >
In Case You Missed It! – October/November 2019
The holiday season is upon us and our schedules quickly fill up! Keep up to date with the news we’ve shared via social media with the sleep disorder community since our last “In Case You Missed It!” So don’t worry if you’ve missed anything –... read >
Ask the Doctor: Delayed Sleep Phase Syndrome or IH?
What is delayed sleep phase syndrome (DSPS) and how is it diagnosed? Should it be ruled out before a diagnosis of IH is made? We are very honored to have Thanh Dang-Vu, MD, PhD, a neurologist at Concordia University in Montreal, and a distinguished member... read >
Tools for School, Campus, and Beyond
It’s September, and students of all ages – from K-12 through college and beyond – have begun another year of studies or training. But when IH is part of your life, going to school, being on campus, or learning online or in the field, can be... read >
Sailing and Support on the High Seas
The Celebrity Solstice, the 2019 Snooze Cruise ship, exploring the Endicott Arm Fjord in Alaska. All cruises are enjoyable, but imagine a cruise where your fellow passengers also have IH or a related sleep disorder. And everywhere you look, people... read >
In Case You Missed It! – September 2019
As autumn approaches, our schedules quickly fill up! Keep up to date with the news we’ve shared via social media with the sleep disorder community in this month’s “In Case You Missed It!” So don’t worry if you’ve missed anything – we’ve... read >
Our Struggle for Prescription Drug Coverage – 2019 Survey Results
Did you know? Coverage and cost barriers prevent 40% of people with IH from taking the medication prescribed by the doctor. And almost 72% of people with IH have had their prescribed medications initially denied by their insurance company. Your responses... read >