News, Stories and Updates From the World of Sleep
A Call to Action: Racial Disparities in Hypersomnia Disorders
The Hypersomnia Foundation has long felt that welcoming everyone, regardless of ethnicity, gender, religion, or any other demographic, is essential to who we are, and must be incorporated into our efforts to raise awareness and reach undiagnosed patients.... read >
In Case You Missed It! – October 2020
We are grateful to be able to keep in contact with our community through social media, email, and SomnusNooze. If you’ve missed any of the latest news we’ve shared, don’t worry! Get up to date with this latest edition of “In Case You Missed It!”... read >
IH Symptom and Treatment Insights From the HF Patient Registry at CoRDS
Since March 2015, over 2,300 people have joined the HF International Patient Registry at CoRDS. We now have a valuable dataset for researchers to study and a new research paper has just been published: “Disease Symptomatology and Response to Treatment... read >
Do I Have IH or NT2?
If you are uncertain whether you have idiopathic hypersomnia (IH) or narcolepsy type 2 (NT2), you are not alone. Sleep doctors are also asking this question, as sleep study results on the same patient often alternate between IH and NT2 diagnoses. Sleep... read >
In Case You Missed It! – September 2020
Autumn will soon be upon us! We hope everyone will be able to enjoy cooler weather and the changing of the leaves! We are grateful to be able to keep in contact with our community through social media, email, and SomnusNooze. If you’ve missed any of the... read >
Challenges to Seeking Appropriate Support for Unmet Needs in Neurological Disorders
This summary of a refereed journal article was written at the request of the HF Patient Advisory and Advocacy Council (PAAC) because of its relevance to those with hypersomnias. The findings of the Australian-based study that is the basis for the article... read >
In Case You Missed It! – August 2020
We hope everyone is staying healthy and enjoying the summer as best as possible! We are grateful to be able to keep in contact with our community through social media, email, and SomnusNooze. If you’ve missed any of the latest news we’ve shared,... read >
In Case You Missed It! – July 2020
We trust everyone is practicing physical distancing and wearing a facemask as you enjoy the summer sunshine and stay in touch with family and friends! We are grateful to be able to keep in contact with our community through social media, email, and... read >
In Case You Missed It! – June 2020
With quarantine restrictions slowly lifting across the country, we hope everyone continues practicing social distancing and wearing a facemask as you venture out and enjoy the beginning of summer! We are grateful to be able to stay in touch with our... read >
In Case You Missed It! – May 2020
During this unprecedented time, we are grateful to be able to stay in touch with our community through social media, email, and SomnusNooze. If you’ve missed any of the latest news we’ve shared, don’t worry! Get up to date with this latest edition... read >