SomnusNooze e-newsletter

1:00-4:30PM – HF Regional Conference at the historic Boston Public Library at Copley Square, 700 Boylston St., Boston, MA 02116 We have booked Rabb Lecture Hall in the newly renovated […]

HF is getting ready to mark Idiopathic Hypersomnia Awareness Week, September 4-10 ! Created by Hypersomnolence Australia, we plan to do our part to help raise awareness during IHAW. Please […]

The Hypersomnia Foundation will have a booth at the Exhibit Hall at the World Sleep Congress meeting in Prague this October! “We believe it is important to take this opportunity […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! HF will exhibit and network among nearly 2,000 college health providers […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! HF will exhibit and network among more than 5,000 sleep medicine providers, researchers and pharmaceutical companies to raise awareness of IH and related disorders and advocate for increased research and better treatments. Attendees come from around […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! HF will exhibit and network among nearly 3,600 school counselors to […]

This Seattle meeting will be one of a series of educational meetings HF will begin holding in 2019 and beyond. We hope that holding one-day meetings in a variety of locations will allow more people with IH and related disorders, as well as their supporters, to take part in an HF event. This gathering will […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! As part of HF’s new 2019 initiative, we are reaching out to the professionals who are most likely to encounter sleepy people! At this conference, HF will exhibit and network among 2,500 medical students and family […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! The Hypersomnia Foundation has accepted an invitation to work with SBSM […]

Understanding Narcolepsy and Hypersomnia: Insights and Perspectives This free event is open to everyone! HF is collaborating with Wake Up Narcolepsy to hold an Education Day on Saturday, September 21st in Vancouver, B.C. at Sleep Expo 2019:  This one day conference is for people with narcolepsy and/or idiopathic hypersomnia, their families, educators, clinicians and researchers. […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! As part of HF’s new 2019 initiative, we are reaching out […]

The Hypersomnia Foundation is holding a Patient Education Meeting on Saturday, October 19th in Chicago at the Sheraton Suites O'Hare Hotel, from 10:00 a.m. - 3:00 p.m. Tickets are $25 and includes a buffet lunch. Registered event attendees are invited to attend a free Meet & Greet socializing hour planned for Friday, October 18 at […]

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! HF is participating in this event and providing a patient panel on Friday, March 27, 4:00 PM - 5: 30 PM, titled Patient & Physician Stories & Perspectives in an Era of Novel Treatment Modalities. HF's […]

The Hypersomnia Foundation has CANCELLED our June 2020 Conference. Due to the COVID-19 restrictions and concern for the healthand safety of our community, the Hypersomnia Foundation is canceling our June 2020 Conference in Philadelphia. While there is no doubt this is the right decision, and many have lost much more to this pandemic, it’s still […]

Note:  If you are looking for info on HF's conference in June 2020 for people with idiopathic hypersomnia, narcolepsy & KLS and their supporters (friends, families, and significant others!), please click here: Beyond Sleepy in Philadelphia The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise […]

This event is open to both patients and sleep medicine professionals. Due to the COVID-19 pandemic, this meeting will be virtual. Get the program, keeping in mind that Berlin is […]

As part of our mission to raise awareness about IH and related disorders, HF will be attending the American School Health Association’s 2020 virtual conference, where our Medical Advisory Board […]

FREE VIRTUAL CONFERENCE! The Society of Anesthesia and Sleep Medicine’s (SASM) 10th Annual Meeting is October 1-2, 2020. This year's theme is “Innovation & Synergism in Sleep, Perioperative Care & […]

The COVID-19 pandemic has left many in the hypersomnia community wondering about the status of clinical trials and research studies—how have they been affected by the lockdowns and safety advisories? […]

Join us on January 30 for a FREE, interactive, 90-minute virtual program, during which you will learn about the emotional aspects of disability and how to choose the right support […]

Introducing the Hypersomnia Foundation’s new “MEET & GREET” series - interactive meetings with members of our community, to give us a chance to talk informally, and let community members meet […]

Join us on May 11 at noon (Eastern) for a FREE virtual event: Diagnosing Hypersomnia Differently—A European Proposal. Did you know? Sleep researchers around the world are working hard to […]

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. From the […]

Join us on Thursday, June 17 at 7:00 p.m. (Eastern) for our VIRTUAL MEET & GREET - “Self-Advocacy: Getting Your Best Care.” Turn your cameras on as we talk about […]

Join us Thursday, June 24, 2021 at 12:00-1:30 p.m. (Eastern) for our FREE virtual event "Your Best Self: Getting Your Meds!”- Reducing out of pocket cost for prescription medications and […]

Registration is now open for the upcoming NIH NINDS HEADWAY Health Disparities and Inequities in Neurological Disorders Workshop. The event will be held virtually from September 22nd through 24th from […]