SomnusNooze e-newsletter

News, stories and updates from the world of sleep





SAN ANTONIO: SLEEP 2019 – APSS (Associated Professional Sleep Societies) Annual Meeting


Henry B. González Convention Center, San Antonio


900 E Market St, San Antonio, TX, United States

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! HF will exhibit and network among more than 5,000 sleep medicine providers, researchers and pharmaceutical companies to raise awareness of IH and related disorders and advocate for increased research and better treatments. Attendees come from around […]


SEATTLE: HF Educational Meeting


Seattle Airport Marriott


3201 South 176th Street, Seattle, WA, United States

This Seattle meeting will be one of a series of educational meetings HF will begin holding in 2019 and beyond. We hope that holding one-day meetings in a variety of […]


$25




VANCOUVER, BC: WUN-HF Education Day


Vancouver Convention Centre, Vancouver, B.C., Canada


999 Canada Pl, Vancouver, British Columbia, Canada

Understanding Narcolepsy and Hypersomnia: Insights and Perspectives This free event is open to everyone! HF is collaborating with Wake Up Narcolepsy to hold an Education Day on Saturday, September 21st […]



CHICAGO: HF Educational Meeting


Sheraton Suites, Chicago O'Hare


6501 Mannheim Road, Rosemont, IL, United States

The Hypersomnia Foundation is holding a Patient Education Meeting on Saturday, October 19th in Chicago at the Sheraton Suites O'Hare Hotel, from 10:00 a.m. - 3:00 p.m. Tickets are $25 […]


$25



ATLANTA: The Southern Sleep Society 42nd Annual Meeting


Renaissance Waverly Hotel and Convention Center


2450 Galleria Pkwy, Atlanta, GA, United States

Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! HF is participating in this event and providing a patient panel […]



PHILADELPHIA: HF Conference


Le Méridien Philadelphia


1421 Arch Street, Philadelphia, PA, United States

The Hypersomnia Foundation has CANCELLED our June 2020 Conference. Due to the COVID-19 restrictions and concern for the healthand safety of our community, the Hypersomnia Foundation is canceling our June […]





VIRTUAL: HF’s The Research Continues

The COVID-19 pandemic has left many in the hypersomnia community wondering about the status of clinical trials and research studies—how have they been affected by the lockdowns and safety advisories? […]


Free




VIRTUAL: Diagnosing Hypersomnia Differently—A European Proposal

Join us on May 11 at noon (Eastern) for a FREE virtual event: Diagnosing Hypersomnia Differently—A European Proposal. Did you know? Sleep researchers around the world are working hard to improve our understanding of hypersomnias and developing new methods of diagnosis and treatment. We've invited Dr. Gert Jan Lammers of Leiden University in the Netherlands […]



VIRTUAL: APSS SLEEP 2021 (a conference for sleep medicine professionals)

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. From the website https://www.sleepmeeting.org/about/: SLEEP is the annual meeting of the Associated Professional Sleep Societies, LLC (APSS), which is a joint venture of the American Academy of […]


VIRTUAL MEET & GREET – “Self Advocacy: Getting Your Best Care”

Join us on Thursday, June 17 at 7:00 p.m. (Eastern) for our VIRTUAL MEET & GREET - “Self-Advocacy: Getting Your Best Care.” Turn your cameras on as we talk about the challenges of advocating for timely and quality care for idiopathic hypersomnia, narcolepsy and Kleine-Levin syndrome. Following a short panel presentation, we’ll break into chat […]


VIRTUAL – Your Best Self: Getting Your Meds!

Join us Thursday, June 24, 2021 at 12:00-1:30 p.m. (Eastern) for our FREE virtual event "Your Best Self: Getting Your Meds!”- Reducing out of pocket cost for prescription medications and appealing insurance denials. In an ideal world, your doctor gives you a prescription for a medication, the pharmacy fills it promptly, and insurance covers all […]



VIRTUAL: NIH NINDS Health Disparities and Inequities in Neurological Disorders Workshop

Registration is now open for the upcoming NIH NINDS HEADWAY Health Disparities and Inequities in Neurological Disorders Workshop. The event will be held virtually from September 22nd through 24th from 12-5 pm ET daily. A detailed agenda is available on the event website. This workshop is open to all, including patients, caregivers, advocates, researchers, healthcare […]



VIRTUAL: Society of Anesthesia and Sleep Medicine (SASM) 2021 Annual Meeting

The Society of Anesthesia and Sleep Medicine (SASM) 2021 Virtual Annual Meeting “Sleep Health: The New Vital Sign” Registration is now open for the SASM Annual Meeting on October 7-8, 2021. This free virtual conference is open to patients as well as healthcare providers. Presentations and discussions tentatively scheduled are: Sleep Health and Why We Should […]


VIRTUAL: Canadian Sleep Society (CSS) Conference 2021

For registration in French, click HERE. The Canadian Sleep Society (CSS) is hosting a virtual conference. In addition to the main scientific program, it will also feature patient engagement sessions […]