SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze Author: Hypersomnia Foundation
Announcing Our Updated Research Studies Web Page!
We’re pleased to announce that we have updated our Research Studies web page (formerly titled Clinical Trials). By CLICKING HERE, you can see our latest information on ongoing research studies about idiopathic hypersomnia (IH) and related disorders,... read >
The Hypersomnia Foundation (HF) Conference in Baltimore Last Month Was an Amazing Experience!
Last month’s HF Conference in Baltimore was an amazing experience, for both attendees and presenters. The numbers speak for themselves: Almost 200 persons in attendance (including patients, their families and supporters, medical professionals and... read >
IH – The Thief of My Youth
I was 15 years old when my life was turned upside down. In my early years, I was a girl who played sports, participated in school activities, maintained good grades, and was friends with just about everyone. However, during the summer of my sophomore year... read >
In Case You Missed It! – July 2018
This month, we begin a new SomnusNooze series entitled “In Case You Missed It!” This series will highlight topics relating to sleep disorders that have been in the news and/or in our recent social media posts. Check here each month to make sure that... read >
Hypersomnia Foundation’s Awareness Activities in Baltimore a Great Success!
The Hypersomnia Foundation (HF) and its Board have just completed a week of very successful events in Baltimore to raise awareness of idiopathic hypersomnia (IH). First, the HF held its #BeyondSleepy Conference on June 2-3, attracting nearly 200... read >
Jack & Julie Scholarship Program Announces Its First Scholarship Recipient with IH
The Hypersomnia Foundation is very pleased to report that a Plantation, Florida, high school senior named Jenny is the first person with idiopathic hypersomnia (IH) to receive one of the $1,000 scholarships awarded this year by Project Sleep’s Jack... read >
Please Recruit Your Friends, Partners, and Supporters to Help with Ground-breaking IH Research!
Have IH? If so, have your friends, partners and other supporters wondered how they can help people like you? Now here’s their chance – we need people who are NOT your blood relatives to take part in ground-breaking IH research! And all it requires is... read >
Ask the Doctor: Is My Inability to Concentrate Due to Idiopathic Hypersomnia (IH) or ADHD?
Although the Hypersomnia Foundation is not currently accepting new submissions for its Ask the Doctor series, we are working to answer previously submitted questions that are of general interest to our hypersomnia community. Today we have Dr. David... read >
Have Workplace Questions? Check Out JAN!
The workplace can be very challenging to navigate when living with idiopathic hypersomnia. Questions, concerns, and issues often arise in regards to your symptoms. What can the employee with IH do when these matters arise? The Job Accommodations... read >
April Update on 2018 HF Conference (June 2-3) in Baltimore – Our Early Bird Discount Ends on May 11th!
The 2018 Hypersomnia Foundation conference is almost here! The conference, which will be held on June 2-3 in Baltimore, promises to be our best ever, with an array of prominent sleep physicians and researchers, as well as other experts, taking the podium.... read >