SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze Author: Hypersomnia Foundation
Dr. Dale Edgar Joins the Hypersomnia Foundation SAB
The Hypersomnia Foundation invites you to join us in welcoming Dale M. Edgar, PhD, as the newest member of our Scientific Advisory Board. Dr. Edgar joins Drs. David Rye, Nicholas Frank, and James Krueger in crafting our research agenda, raising... read >
Investing in the Future of People with Idiopathic Hypersomnia
An insatiable need to sleep that is not eased by a full night’s slumber is one of the debilitating effects of a rare, chronic neurological disorder called idiopathic hypersomnia (IH). In a society where feeling tired is the norm, IH is often... read >
Getting Support from a Mental Health Professional
by Diane Powell, LCSW People with idiopathic hypersomnia and related disorders live with the constant challenges of having a chronic condition that is not well known and is poorly understood even by researchers. Every day, there are... read >
A Pilot Study of tDCS Looks Promising for the Treatment of IH
A Pilot Study of tDCS Looks Promising for the Treatment of Idiopathic Hypersomnia Background Idiopathic hypersomnia (IH) can severely impact affected individuals’ family, employment, education, and leisure activities. And because there are no... read >
You Are Amazing!
Once again, our incredible hypersomnia family has come together to support each other in a most amazing way. As you know, several anonymous donors challenged our community to enroll in the Hypersomnia Foundation Registry at CoRDS during the month of... read >
Communicating with Your New Doctor About Your (or Your Child’s) Rare Disorder
Note: In this article, the word “you” will be used to mean both you and your child. You will need different kinds of doctors to help you with your rare disease. Specialists will know the most about your disease and which specific treatments are best.... read >
Ask The Doctor: Idiopathic Hypersomnia vs Type 2 Narcolepsy
Question: Is there an overlap between idiopathic hypersomnia and type 2 narcolepsy? Answer: The short answer to this question is yes. The only way to definitively distinguish idiopathic hypersomnia (IH) from type 2 narcolepsy (T2N) is the number of... read >
Beyond Sleepy in Boston: the 2017 Hypersomnia Foundation Regional Conference
SAVE the DATE June 3 and 4, 2017 We have booked Rabb Hall at the Boston Library for another fabulous regional conference featuring dynamic speakers on Sunday afternoon, June 4, 2017. In this completely renovated, state-of-the-art, yet historic... read >
Wing Chun and Hypersomnia
Earlier this year, I experienced a minor miracle. After a full day of traveling and running errands, I was completely drained. The next day was a big event, and anxiety was eating at me. Would I wake up in time, would I have enough energy to be sociable,... read >
There’s a Doctor in the Hypersomnia House
10/2017 Please note that this feature is not currently active and we are not accepting Ask the Doctor questions at this time. Some of the questions that we received made us think about the language that we use when talking about sleep disorders.... read >