SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze Author: Hypersomnia Foundation
The Hypersomnia Foundation at the World Sleep Congress in Prague
The Hypersomnia Foundation (HF) is thrilled to announce its attendance at the World Sleep Congress (WSC), hosted by the World Sleep Society, October 7 to 11, 2017 in Prague. The Congress is well attended by world clinical and scientific sleep... read >
Idiopathic Hypersomnia Standard Characteristics
It’s often a struggle to describe to others – sometimes to doctors – the essence of idiopathic hypersomnia. Now, the Hypersomnia Foundation presents Idiopathic Hypersomnia Standard Characteristics. This one-page document, reviewed and approved by... read >
A Letter to My Health Care System About Hypersomnia
BY: Karen Berger – MN-USA NOTE: this is part 2 of a 3 part series. For Part 1, click HERE. For Part 3, click HERE. I have had idiopathic hypersomnia (IH) since I was 15 and was finally diagnosed 11 years ago. Since then I have been doing well on... read >
Share Your Journey
Your Story Matters Everyone has a story to tell that will resonate, educate or motivate. Coming to terms with having a rare, chronic condition can feel like a long and sometimes lonely process. Knowing others have walked a similar road as you,... read >
Arise Clinical Trial
CLINICAL TRIAL ENROLLING PATIENTS WITH IDIOPATHIC HYPERSOMNIA AND NARCOLEPSY TYPE 2 Balance Therapeutics is evaluating an investigational new drug BTD-001, to treat excessive daytime sleepiness in individuals diagnosed with idiopathic hypersomnia... read >
Share Your Journey | Hospital, Surgery, and Hypersomnia
MY PERSONAL JOURNEY: Hospital, Surgery, and Hypersomnia I want to share my story because a recent experience has had a profound impact on me. I am still processing it, and I think it is something anyone with hypersomnia needs to think about. I never... read >
Dr. Trotti Answers Questions on Diagnostics Relating to Hypersomnia
Dr. Lynn Marie Trotti answers questions about diagnostics relating to hypersomnia and concludes... Q - What is the “gold-standard” for diagnosis of narcolepsy? What about IH? A - For narcolepsy type 1 (or narcolepsy with cataplexy), measurement of... read >
Research Is Critical and Ongoing
YOU COUNT! Time to update CoRDS information! Please make time to log into the CoRDS online portal and keep all of your information up to date. Not only is it important to keep your information up to date in case researchers would like CoRDS to contact... read >
BeyondSleepy in Boston 2017 a Success!
Saturday’s social gatherings kicked off with the Old Town Trolley Ride and ended the day with a casual Meet and Greet. “This is the first time in my life I have ever met anyone else with hypersomnia let alone be able to sit and talk to them and share... read >
Dental Side Effects of Stimulants
Caring for Your Dental Health Did you know? Some stimulants can have dental side effects. by Sheri Katz, DDS, Diplomate, American Board of Dental Sleep Medicine Stimulants are often prescribed for the treatment of hypersomnias because they act to target... read >