Share Your Journey

Your Story Matters

Everyone has a story to tell that will resonate, educate or motivate.

Coming to terms with having a rare, chronic condition can feel like a long and sometimes lonely process. Knowing others have walked a similar road as you, however, can help lessen the burden. Understanding another’s experiences, coping strategies, and challenges or successes can help people who are currently struggling.

A feature of the Hypersomnia Foundation’s SomnusNooze is the “Share Your Journey” segment—told from the perspective of a person with hypersomnia, a supporter, or healthcare professional. Will you share your struggles, triumphs, diagnostic journey, or coping strategies?

Sharing your journey is like extending a hand of support.

Did you find the words that made a doctor finally listen? Have you developed specific coping techniques that help at work, school or for social events? Do you recall how you felt when you realized that you are not alone in your struggles with the symptoms of hypersomnia; as a patient, supporter or healthcare professional? Possibly you identified a new career or hobby that maximize your potential.

footsteps 
Sharing a specific story or personal experience about living with hypersomnia can be extremely powerful and healing, not only for the storyteller but also for readers. Your journey may be the key to someone dealing with hypersomnia, or a family member or friend, to say, “That could be me!” “I’m not just lazy!” “He’s/She’s telling my story!” “He/She gets exactly what I’m feeling!” or “I finally understand what my child is going through.”

Please share your journey by submitting approximately 500 words, or a series of stories/experiences, and if you are inclined, a picture (not necessary but it does tell 1,000 words) through https://www.hypersomniafoundation.org/understanding-hypersomnia/share-your-journey/.

If you would like to submit a video to tell your story/experience, please contact us at .

 

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The contents of this website, including text, graphics and other material, are for informational purposes only. This website is not intended to be a substitute for professional legal or medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Always consult your own attorney or other legal advisor with any legal questions you may have. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisors, products, procedures, opinions or other information referenced on this website. Reliance on any information on this website is solely at your own risk.

The Hypersomnia Foundation makes no representations or warranties about the satisfaction of any government regulations requiring disclosure of information on prescription drug products. In no event shall The Hypersomnia Foundation be liable for any damages (including without limitation incidental and consequential damages) or costs (including without limitation attorney’s fees) based on any claim arising from the use of this website and/or its content.