SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze Author: Hypersomnia Foundation
Viewing Hypersomnias Through the Lens of Myotonic Dystrophy
The Hypersomnia Foundation is excited to welcome the Marigold Foundation as a community partner in our commitment to improving the lives of people living with idiopathic hypersomnia and related sleep disorders. The Marigold Foundation is committed to the... read >
Why Monthly Giving Is Good for Donors (and the Nonprofits They Support)
It seems like everything these days is by subscription model – just think Netflix or Hulu. Why? It’s because technology has made such automatic monthly payment systems easier than ever before. It’s the same in the nonprofit world. New technology... read >
We Give Thanks for a Successful Fundraising Year!
All of us on the Board of the Hypersomnia Foundation would like to thank every one of our supporters for making our 2017 fundraising efforts such a success. The HF finished the last two months of the year strong, first by participating in Facebook’s... read >
The Hypersomnia Foundation Is Excited to Formally Launch Our New Website!
If you have visited hypersomniafoundation.org since last fall, you probably noticed our site has a new look. Although this new site went “live” in September 2017, we’ve been working hard since then to build it out further before introducing the... read >
Almost 26 or Older? Extended Health Insurance Coverage May Be Available
For updated content, visit our web page "Financial considerations for dependent adult children with sleep disorders" If you or your young adult is 25 years old, then decisions will need to be made before the age of 26 about securing health... read >
Harvard’s Dr. Kiran Maski Joins Our MAB
The Hypersomnia Foundation is thrilled to announce that Kiran Maski, MD, MPH, a distinguished pediatric sleep specialist, has joined our Medical Advisory Board (MAB). Dr. Maski is an assistant professor of neurology at Harvard Medical School, and a child... read >
Idiopathic Hypersomnia Featured in Self Magazine!
The Hypersomnia Foundation's own Board Member, Catherine Page-Rye, and Medical Advisory Board Chair, Dr. Lynn Marie Trotti, were interviewed for this December 2017 article, which describes what it is like to live with idiopathic hypersomnia. Read the... read >
Double Your Gift to HF with Our Year-End Matching Challenge!
Here’s a wonderful way to end the year and double your gift to the Hypersomnia Foundation! During the month of December 2017, our longtime supporters Bertha and Tony Rye have generously offered to match all donations up to $10,000. So please consider... read >
Umecrine Cognition Expands Study of New Medicine GR3027 to IH
Everyone here at the Hypersomnia Foundation is always excited when researchers and pharmaceutical companies include IH as a part of their clinical trials and research. With each clinical trial and research project, we grow ever closer to more effective... read >
Board Member Amy Haraden Speaks About Living with IH at SLEEP2 Conference
On June 3, 2017, Board Member Amy Haraden participated in a Patient Panel at the SLEEP2 (PCORI) Conference organized by Project Sleep. SLEEP2 is a project co-led by the University of Arizona, the Sleep Research Network, and Project Sleep and is funded... read >