SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze topics: News about hypersomnias
In Case You Missed It! – September 2018
In case you missed it, here are highlights from our social media to keep you up-to-date! From HF board members raising hypersomnia awareness at the Myotonic Dystrophy Foundation Conference to an insightful commentary from a science writer living with... read >
In Case You Missed It! – August 2018
This new series highlights topics relating to sleep disorders that have been in the news and/or in our recent social media posts. Check here each month to make sure that you are up-to-date on the news relating to idiopathic hypersomnia and related sleep... read >
In Case You Missed It! – July 2018
This month, we begin a new SomnusNooze series entitled “In Case You Missed It!” This series will highlight topics relating to sleep disorders that have been in the news and/or in our recent social media posts. Check here each month to make sure that... read >
Jack & Julie Scholarship Program Announces Its First Scholarship Recipient with IH
The Hypersomnia Foundation is very pleased to report that a Plantation, Florida, high school senior named Jenny is the first person with idiopathic hypersomnia (IH) to receive one of the $1,000 scholarships awarded this year by Project Sleep’s Jack... read >
Idiopathic Hypersomnia Featured in Self Magazine!
The Hypersomnia Foundation's own Board Member, Catherine Page-Rye, and Medical Advisory Board Chair, Dr. Lynn Marie Trotti, were interviewed for this December 2017 article, which describes what it is like to live with idiopathic hypersomnia. Read the... read >
Dear Abby Misses the Mark on IH
A “Dear Abby” advice column was recently forwarded to us by Noelle, a member of the hypersomnia community. In a letter to Abby, a mother in New Jersey asked what to do about her teenaged son’s complete inability to get himself up for school in the... read >
HF Board Member Featured as Guest on Top Docs Radio!
Hypersomnia Foundation’s Catherine Page-Rye will be live on Top Docs Radio, Tuesday April 18 at noon EDT. If you missed the live show, you can download it here. Cat aims to promote awareness and better understanding of idiopathic hypersomnia (IH) as... read >
Celebrate with the Hypersomnia Foundation
Celebrate with HF: Three Years of Awareness, Education, and Research A message from the new CEO/Chair: The Hypersomnia Foundation had a great year in 2016! As I look over the list of the year’s accomplishments, I am keenly aware of the tireless... read >
The Hypersomnia Foundation Welcomes New Board Members
We are pleased to announce that Scot Hulshizer, Celia King, and Diane Powell have recently been elected to the Board of Directors of the Hypersomnia Foundation. In addition to bringing unique strengths as the organization thrives and grows in both scope... read >
U.S. News & World Report Features Struggles of Idiopathic Hypersomnia
An article published on May 11, 2015, in U.S. News & World Report highlights the struggles of two women whose lives are challenged by idiopathic hypersomnia. They are, as reporter Anna Miller explains, “at the sandman's beck and call.” One... read >