Narcolepsy

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7th International Narcolepsy Symposium Includes IH! (Part 1 of 2)

The 7th International Symposium on Narcolepsy, held in Boston earlier this fall, gathered both basic and clinical researchers from around the globe so they could share their latest findings with each other to help advance the field. Representatives from several patient support groups, including the...

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Ask the Doctor: Do Women’s Hormones Affect Their Hypersomnia?

Can menstrual cycles trigger hypersomnia episodes? Can taking hormones tame these symptoms? And does IH affect more women than men? We are delighted to have our Medical Advisory Board member Dr. Isabelle Arnulf, a Professor of Neurology at the Sorbonne University and one of the...

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In Case You Missed It! – December 2018

As the end of 2018 draws near, we know that your family and other social obligations can take over your life. So the Hypersomnia Foundation is here to make things easier and more joyful! In this month’s “In Case You Missed It!,” we highlight some...

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Ask the Doctor: What Is POTS, and What Does It Have to Do with Hypersomnia?

Although the Hypersomnia Foundation is not currently accepting new submissions for its Ask the Doctor series, we are working to answer previously submitted questions that are of general interest to our hypersomnia community. Today we have Dr. Mitchell Miglis of Stanford, a renowned expert in...

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Article Summary: Khan Z, Trotti LM. “Central Disorders of Hypersomnolence: Focus on the Narcolepsies and Idiopathic Hypersomnia.”

    This article reviews three central disorders of hypersomnolence (CDH), which include narcolepsy type 1, narcolepsy type 2, and idiopathic hypersomnia. The main symptom patients experience in all three of these disorders is excessive daytime sleepiness (EDS), which cannot be explained by other medical conditions or...

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Ask The Doctor: Idiopathic Hypersomnia vs Type 2 Narcolepsy

Question: Is there an overlap between idiopathic hypersomnia and type 2 narcolepsy? Answer: The short answer to this question is yes. The only way to definitively distinguish idiopathic hypersomnia (IH) from type 2 narcolepsy (T2N) is the number of sleep-onset REM periods (SOREMPs) on diagnostic testing. However,...

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Act Today and Let Your Voice Be Heard

Very recently, the Hypersomnia Foundation became aware of an opportunity to help shape the future of sleep research. The National Institutes of Health, the primary source of funding for medical research in the United States, has issued a Request for Information, which you can view at: https://grants.nih.gov/grants/guide/notice-files/NOT-HL-16-312.html. The final date to...

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What Does One SOREMP Mean?

Background The primary feature of the two main central disorders of hypersomnolence—narcolepsy and idiopathic hypersomnia (IH)—is excessive daytime sleepiness, defined in the International Classification of Sleep Disorders, third edition, as “daily episodes of an irrepressible need to sleep or daytime lapses into sleep." Overnight sleep testing (polysomnography) and a...

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