SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze Author: Hypersomnia Foundation
FAQs About Flumazenil Access
The Hypersomnia Foundation frequently receives questions about the use of flumazenil in treating idiopathic hypersomnia (IH) and related disorders. Most of the emails we receive ask how and where to find this medication. In response, we have researched... read >
Ask the Doctor: What Is POTS, and What Does It Have to Do With Hypersomnias?
Although the Hypersomnia Foundation is not currently accepting new submissions for its Ask the Doctor series, we are working to answer previously submitted questions that are of general interest to our hypersomnia community. Today we have Dr. Mitchell... read >
The Queen of Sleeping
In this Personal Journey story, a “Queen of Sleeping” recounts her struggles to obtain a correct diagnosis, after first receiving diagnoses of lupus and POTS from a variety of doctors. My journey to a diagnosis of idiopathic hypersomnia (IH) is... read >
HF Announces the Launch of Its IH Research Award Program
Today the Hypersomnia Foundation is very proud to announce the launch of its idiopathic hypersomnia (IH) research award program. This program will provide funding to support medical students, physician residents and fellows, postdoctoral fellows, and... read >
Here’s How People with IH (and Their Supporters) Can Participate in Ground-breaking Research!
Dizzy? Having troubles with your bowels or bladder? Body temperature up? Blood pressure down? Heart rate up AND down? Any of this could be related to your IH. Whether or not you have these symptoms, you can help researchers, right now, to better... read >
Latest Update on 2018 HF Conference (June 2-3) in Baltimore
Plans are well underway for the 2018 Hypersomnia Foundation conference, which will be held on June 2-3 at the Baltimore Marriott Waterfront hotel. The conference festivities will start on Friday evening (June 1) with a casual meet-and-greet event at the... read >
The Little Known SSA Disability Benefit for Disabled Adult Children (DAC)
For updated content, visit our web page “Financial considerations for dependent adult children with sleep disorders” Authored by Anjel Burgess, Esq. As the baby boomers enter retirement, some are discovering that all of their hard work has... read >
Sign Up by Feb. 15 to Help Educate the Next Generation of Doctors About IH and Related Disorders!
Global Genes, a leading global non-profit advocacy organization for individuals with rare and genetic diseases, has announced a new program that will help patients with rare diseases (such as idiopathic hypersomnia) educate the next generation of doctors... read >
HF Conference in Baltimore on June 2-3 – Get All the Details and Register Now!
Need a summer road trip? Want to meet others with IH and learn more about the latest research? Then pack your bags and join us at the 2018 HF conference, to be held in Baltimore on June 2-3! #HFconf #BeyondSleepy Register now! read >
The Hypersomnia Foundation Is Excited to Fund a $1,000 Scholarship!
Partnering for the first time with Project Sleep’s Jack and Julie Narcolepsy Scholarship program, HF is providing funds to support a $1000 scholarship. High school seniors diagnosed with idiopathic hypersomnia and planning to attend a... read >