Global Genes, a leading global non-profit advocacy organization for individuals with rare and genetic diseases, has announced a new program that will help patients with rare diseases (such as idiopathic hypersomnia) educate the next generation of doctors in the US, the UK, and Canada. The program (entitled the David R. Cox Scholarship for Rare Compassion) will pair medical students with rare disease patients and their families who may live or work in relatively close proximity. Through interactions with these patients, medical students will obtain a better understanding of, and compassion for, the daily challenges faced by those living with a rare disease, such as IH.
In addition, experiences of this type can often prompt students to focus on rare diseases in their medical careers (both in treating patients and in conducting research), which will further help patients with these rare diseases.
Please SIGN UP NOW (before the Feb. 15 deadline) to be matched with a medical student, and to be a part of this important program. It’s a great opportunity for the IH community to introduce medical students to what IH is, and what it’s like to live with IH. If you get matched to a medical student, please tell us about your experience or let us know at .
For more information: click HERE.