SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze Author: Hypersomnia Foundation
Raising Awareness from the Inside Out (aka Rip Van Winkle)
What if you decided to take a nap but didn’t wake up for 6 months? You might think this is a version of the famous “Rip Van Winkle” story by Washington Irving, but it’s actually the story of L.B., a person with IH in Scotland. She came home from... read >
In Case You Missed It! – October 2018
In this month’s “In Case You Missed It,” we highlight some of the most important news and social media posts about the Hypersomnia Foundation, idiopathic hypersomnia, and other sleep disorders from the past 4-5 weeks. From a planned HF educational... read >
Introducing Our New Anesthesia Guide for People with IH!
The Hypersomnia Foundation is pleased to announce that we have created a new Anesthesia Guide, expressly designed for people with idiopathic hypersomnia (IH). This document, entitled “Anesthesia and IH: A Patient Guide,” is free for download from... read >
Ask the Doctor – Drug Patents
Although the Hypersomnia Foundation is not currently accepting new submissions for its Ask the Doctor series, we are working to answer previously submitted questions that are of general interest to our hypersomnia community. Today we have Andrew Powell,... read >
HF Advocating for People with IH at Scientific Symposium
The Hypersomnia Foundation (HF) was delighted to participate in this September’s 7th International Symposium on Narcolepsy. The HF was invited, along with three other patient advocacy groups “to bring important and diverse perspectives on how best to... read >
In Case You Missed It! – September 2018
In case you missed it, here are highlights from our social media to keep you up-to-date! From HF board members raising hypersomnia awareness at the Myotonic Dystrophy Foundation Conference to an insightful commentary from a science writer living with... read >
Introducing Our New Medical Alert Card for IH Patients!
The Hypersomnia Foundation is pleased to announce that we have created a Medical Alert Card, designed expressly for people with idiopathic hypersomnia (IH). The card is FREE and can be downloaded from our website HERE. Our Medical Alert Card is... read >
Canadian Neurologist Dr. Thanh Dang-Vu Joins Our MAB
The Hypersomnia Foundation is very pleased to announce that Thanh Dang-Vu, MD, PhD, a distinguished neurologist from Canada, has joined our Medical Advisory Board (MAB). Dr. Dang-Vu is currently an Associate Professor at Concordia University in Montreal,... read >
College-bound? Get Our Ed Essentials Guide, Full of Tips from Students with IH!
Students across the country are preparing to head off to college soon. But regardless of whether you are a student preparing to go to college for the first time, a student returning to your campus (or transferring to a new school), a student taking online... read >
In Case You Missed It! – August 2018
This new series highlights topics relating to sleep disorders that have been in the news and/or in our recent social media posts. Check here each month to make sure that you are up-to-date on the news relating to idiopathic hypersomnia and related sleep... read >