SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze Author: Hypersomnia Foundation
Show Your Support!
The Hypersomnia Foundation has a lot going on right now, and there are many ways to show your support! Donate Our 2017 Fall Fundraiser is underway. With your donations, HF has been able to launch and maintain a patient registry to aid research; hold... read >
Save the Date 2018 HF Conference
Save the dates for our 2018 Conference! June 2-3, 2018 in Baltimore, Maryland. #HFconf #BeyondSleepy read >
“Ask the Doctor” Discontinued
Dear Reader: On behalf of the Hypersomnia Foundation, we would like to first thank you for your submissions to the “Ask the Doctor” column. It is with regret that we also extend an apology for not yet responding to all the submitted questions.... read >
Need Surgery, But Have IH?
We’ve summarized a journal article that addresses some anesthesia considerations for patients with idiopathic hypersomnia. If you need to have surgery of any kind, you may want to share this information with your healthcare providers. Summary of:... read >
Introducing the Updated HF Brochure!
In 2014, the Hypersomnia Foundation (HF) published a brochure written for people with idiopathic hypersomnia and their supporters. Since that time, over 3,500 brochures have been sent to physicians’ offices, at their request, for distribution. We have... read >
Back to Campus and Prepared: Resources for College Students with IH
The academic year has recently begun for many, whether online or at traditional land-based, brick and mortar campuses. For the student with IH, there is much more to think about besides settling into your living space, squaring away your class schedule,... read >
YOU Power the Engine for #BeyondSleepy
Medical Advisory Board (MAB) and Scientific Advisory Board (SAB) volunteers: The Hypersomnia Foundation’s Medical and Scientific Advisory Boards, otherwise known as the MAB and SAB, are comprised of world experts in their fields of sleep research and... read >
WEP Clinical – Expanded Access to Medications Not Yet Approved for General Prescription
October 2019 Addendum SEE ALSO: Global Genes RARE Toolkits Access to Unapproved Medicine: Is This an Option for Me? (USA) Access to Unapproved Medicine: Is This an Option for Me? (Canada) Do you and your healthcare provider feel you... read >
Welcome to the Hypersomnia Foundation Board, Betsy!
We are delighted to welcome Elizabeth (Betsy) Ashcraft to our Board of Directors. “Betsy has long been a supporter of the Hypersomnia Foundation, and we are excited to have someone with her talent and experience join the Board,” said Diane Powell,... read >
A Soothing Balm: Healing a Painful Experience
NOTE: this is part 3 of a 3 part series. For Part 1, click HERE. For Part 2, click HERE. I want to add a postscript to my Personal Journey story that appeared in the July 2017 edition of the HF’s SomnusNooze. It relates to the traumatic experiences I... read >