SomnusNooze e-newsletter
News, stories and updates from the world of sleep
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Free Resources from the Hypersomnia Foundation!
Need information relating to your IH? Love things that are FREE? Our Hypersomnia Foundation website is full of FREE resources for individuals with IH and related sleep disorders (and their loved ones). Our website offers an “IH Standard... read >
NORD Guide for Making Your Health Insurance Work for You!
Are you satisfied with your health insurance benefits? Or are you pulling your hair out over complicated policy language, undecipherable diagnostic codes, and denials of coverage for your IH treatments? It is difficult enough to have a rare disease such... read >
See How Our Hypersomnia Patient Registry Has Helped Researchers!
You’ve participated, and NOW THERE ARE RESULTS! Our hypersomnia-specific patient registry, which was established at CoRDS (Coordination for Rare Diseases at Sanford) in 2016 and which has grown to nearly 1,500 participants, has already helped... read >
In Case You Missed It! – January 2019
Happy 2019! As we welcome the new year, we at the Hypersomnia Foundation have resolved to make things easier for our followers! In this month’s “In Case You Missed It!,” we highlight some of the most important news and social media posts about the... read >
Help Us End the Year on a High Note!
Here’s a wonderful way to help us end the year on a high note! The Hypersomnia Foundation has issued itself (and its supporters) a Year-End Giving Season challenge – to raise $10,000 by the end of December 31! As a nonprofit organization, we are... read >
In Case You Missed It! – December 2018
As the end of 2018 draws near, we know that your family and other social obligations can take over your life. So the Hypersomnia Foundation is here to make things easier and more joyful! In this month’s “In Case You Missed It!,” we highlight some of... read >
DOUBLE YOUR DONATION ON #GIVINGTUESDAY!
We are very pleased to kick-off our 2018 Fundraising Campaign with this exciting news! Facebook and PayPal are matching donations given through Facebook on #GivingTuesday, November 27. They are awarding up to $250,000 in matching funds per organization on... read >
In Case You Missed It! – November 2018
As the holidays draw near, we know that life can get more hectic. So we’re here to make your life less stressful and more thankful! In this month’s “In Case You Missed It!,” we highlight some of the most important news and social media posts about... read >
Introducing Our New Medical Alert Card for IH Patients!
The Hypersomnia Foundation is pleased to announce that we have created a Medical Alert Card, designed expressly for people with idiopathic hypersomnia (IH). The card is FREE and can be downloaded from our website HERE. Our Medical Alert Card is... read >
Announcing Our Updated Research Studies Web Page!
We’re pleased to announce that we have updated our Research Studies web page (formerly titled Clinical Trials). By CLICKING HERE, you can see our latest information on ongoing research studies about idiopathic hypersomnia (IH) and related disorders,... read >