News, Stories and Updates From the World of Sleep
SomnusNooze Topics: Raising Awareness
Act Today and Let Your Voice Be Heard
Very recently, the Hypersomnia Foundation became aware of an opportunity to help shape the future of sleep research. The National Institutes of Health, the primary source of funding for medical research in the United States, has issued a Request... read >
National Sleep Awareness Week | March 6-13 | #beyondsleepy
During National Sleep Awareness Week, which begins this coming Monday the Hypersomnia Foundation would like to feature your stories and your experiences as a person with idiopathic hypersomnia. We want to showcase how idiopathic hypersomnia affects... read >
Hypersomnia Registry Process | A Rare Disease Day Update
Feel free to share the images below on social media in honor of Rare Disease Day! Right click and save the image to your own computer, and then upload to social media. Cover Photo Social Media Infographic ... read >
2015 HF Year in Review
“Overwhelmed!” “Excited!” “Incredibly grateful!”at the Hypersomnia Foundation, we are thrilled beyond belief following our “Giving Tuesday” campaign that expanded beyond a single day and actually ran through the end of 2015. Your... read >
CNN Features Hypersomnia in Three Part Series
Set your DVRs, check it out live, or catch a sneak peak, but don’t miss this program on sleep and idiopathic hypersomnia on CNN! Dr. Sanjay Gupta not only undergoes a Multiple Sleep Latency Test at Emory Sleep Lab, but also discusses idiopathic... read >
Dr. David Rye Presents at 2013 Narcolepsy Network
Dr. David Rye's 2013 session at the Narcolepsy Network conference entitled: What's in a Name? Understanding the Origins of the Terminologies for the Family of Hypersomnias. A fascinating examination of semantics and the signs and symptoms of... read >
Parallels Between Progressive Rock and Idiopathic Hypersomnia
Katie Gleason does an excellent job sharing how idiopathic hypersomnia feels to her in a featured essay on stereoembersmagazine.com. I was diagnosed with ADHD before idiopathic hypersomnia, but I suspect the hypersomnia only increases the... read >
Awareness: The Key to Unlocking the Mystery of IH
Without awareness, we are lost. Before you knew that idiopathic hypersomnia existed, before you connected your symptoms or those of a loved one with an actual neurologic disorder called IH, you had no awareness. Physicians who have not been... read >
Submission to the FDA’s Regarding Hypersomnias
On September 24, 2013, the US Food and Drug Administration (FDA) held a public meeting to solicit information on the impact of narcolepsy on affected individuals’ daily lives and the effect of currently available medication on their disease symptoms. A... read >
Idiopathic Hypersomnia Symposium at the World Association of Sleep Medicine Meeting
A symposium entitled, “Idiopathic Hypersomnia: Past, Present and Future,” and co-chaired by Drs. Michel Billiard (Montpellier, France) and Sona Nevsimalova (Charles University, Prague, Czech Republic), took place at the World Association of Sleep... read >