SomnusNooze e-newsletter
News, stories and updates from the world of sleep
SomnusNooze topics: Research
Survey for People With IH and Supporters/Caregivers
As part of the I Have IH campaign, Jazz Pharmaceuticals and the Hypersomnia Foundation are seeking the perspectives of people living in the U.S. with idiopathic hypersomnia and their supporters to better understand the true impact and unmet needs for... read >
Anxiety, Depression, and Function in Individuals With Chronic Physical Conditions: A Longitudinal Analysis
Separately identifying and treating anxiety can be helpful for people who have chronic conditions. This is one of the main conclusions of a refereed journal article, which we’ve summarized at the request of the HF Patient Advisory and Advocacy Council... read >
In Case You Missed It! – June 2021
Don’t worry if you’ve missed any of the latest news we’ve shared through our social media. Get up to date with this edition of “In Case You Missed It!” REGISTER NOW: For HF's June Meet-and-Greet and June Medication Access Event! THANK YOU:... read >
In Case You Missed It! – May 2021
Spring is in the air! As you venture outside and enjoy the great outdoors, don’t worry if you’ve missed any of the latest news we’ve shared. Get up to date with this edition of “In Case You Missed It!” WELCOME!: Meet new HF Board members -... read >
In Case You Missed It! – April 2021
Happy Spring! Let's get up to date with the news we’ve shared via social media with this latest edition of “In Case You Missed It!” REGISTER TODAY: Join us for our first virtual Meet & Greet - “I’m Newly Diagnosed - What Does This... read >
In Case You Missed It! – March 2021
It's been a busy year so far! Let's get up to date with the news we’ve shared via social media with this latest edition of “In Case You Missed It!” NEWLY RELEASED VIDEO: HF’s virtual event “Your Best Self: New Ways of Thinking About... read >
New Research Published on Cognitive-Behavioral Therapy for Hypersomnias
While cognitive-behavioral therapy (CBT) has been used extensively to treat many disorders, including insomnia, until now little research has been done to develop similar treatments for idiopathic hypersomnia (IH) and narcolepsy. Dr. Jason Ong, a member... read >
Autonomic Dysfunction and Idiopathic Hypersomnia Study Produces Results
A recurring theme we see from people with idiopathic hypersomnia is an interest in finding others who share symptoms beyond sleepiness. This helps connect patients with common experiences and researchers on the path to finding causes and new and improved... read >
In Case You Missed It! – December 2020
Happy Holidays! Celebrations may look different this year, so however you plan to enjoy the season, we wish you peace and joy! If you’ve missed any of the latest news we’ve shared via social media, don’t worry! Get up to date with this latest... read >
Differences in Hypersomnia Disorder Symptoms Among African Americans
Do people of different races/ethnicities experience the same hypersomnia symptoms? This is still an open question, but one study found that African Americans with narcolepsy are less likely to have cataplexy, even when hypocretin levels are low. The... read >