SomnusNooze e-newsletter

As part of our mission to raise awareness about IH and related disorders, HF will be attending the American School Health Association’s 2020 virtual conference, where our Medical Advisory Board chair, Dr. Lynn Marie Trotti, will discuss Sleepy Students and Idiopathic Hypersomnia.  Greater awareness of IH by school health professionals means a greater chance that […]

FREE VIRTUAL CONFERENCE! The Society of Anesthesia and Sleep Medicine’s (SASM) 10th Annual Meeting is October 1-2, 2020. This year's theme is “Innovation & Synergism in Sleep, Perioperative Care & Chronic Pain: The Future is Here” and will feature a keynote address from Dr. Jerome Adams, MD, U.S. Surgeon General. Note: If you can't attend […]

The COVID-19 pandemic has left many in the hypersomnia community wondering about the status of clinical trials and research studies—how have they been affected by the lockdowns and safety advisories? Find out the latest answers! Join us on October 24 for a FREE, interactive, 90-minute virtual program, during which hypersomnia experts from both the research […]

Join us on January 30 for a FREE, interactive, 90-minute virtual program, during which you will learn about the emotional aspects of disability and how to choose the right support group for you—or even start your own. You will not want to miss this virtual event! Sessions will include discussions with: Anjel Burgess, Esq, of […]

Introducing the Hypersomnia Foundation’s new “MEET & GREET” series - interactive meetings with members of our community, to give us a chance to talk informally, and let community members meet one another! The first meeting in the series, “I’m Newly Diagnosed - What Does This Mean?” is scheduled for May 1 at 1:00 p.m. Eastern/10:00 […]

Join us on May 11 at noon (Eastern) for a FREE virtual event: Diagnosing Hypersomnia Differently—A European Proposal. Did you know? Sleep researchers around the world are working hard to […]

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. From the […]

Join us on Thursday, June 17 at 7:00 p.m. (Eastern) for our VIRTUAL MEET & GREET - “Self-Advocacy: Getting Your Best Care.” Turn your cameras on as we talk about the challenges of advocating for timely and quality care for idiopathic hypersomnia, narcolepsy and Kleine-Levin syndrome. Following a short panel presentation, we’ll break into chat […]

Join us Thursday, June 24, 2021 at 12:00-1:30 p.m. (Eastern) for our FREE virtual event "Your Best Self: Getting Your Meds!”- Reducing out of pocket cost for prescription medications and appealing insurance denials. In an ideal world, your doctor gives you a prescription for a medication, the pharmacy fills it promptly, and insurance covers all […]

Registration is now open for the upcoming NIH NINDS HEADWAY Health Disparities and Inequities in Neurological Disorders Workshop. The event will be held virtually from September 22nd through 24th from […]

The Society of Anesthesia and Sleep Medicine (SASM) 2021 Virtual Annual Meeting “Sleep Health: The New Vital Sign” Registration is now open for the SASM Annual Meeting on October 7-8, 2021. This free virtual conference is open to patients as well as healthcare providers. Presentations and discussions tentatively scheduled are: Sleep Health and Why We Should […]

For registration in French, click HERE. The Canadian Sleep Society (CSS) is hosting a virtual conference. In addition to the main scientific program, it will also feature patient engagement sessions for the public, which will be fully accessible online for free. See the full details HERE. Of particular interest to people with narcolepsy or idiopathic hypersomnia […]

Reaching Every Patient: A Health Equity Conversation - An HF VIRTUAL Event Saturday, November 13th 12noon-2pm (EST) Let’s talk about how we can help everyone with a rare sleep disorder get a proper diagnosis and treatment! Many people with rare sleep disorders face diagnosis and treatment delays. Some don’t seem to get a diagnosis at […]

Join us on Saturday, January 15, 2022 at 1:00-2:30 p.m. (Eastern)  for our VIRTUAL MEET & GREET - "We're in This Together!" Is it a challenge for you (and your supporters) to manage life with a sleep disorder? You’re not alone! We invite people with IH, KLS, and narcolepsy AND their supporters to join in […]