SomnusNooze e-newsletter

News, stories and updates from the world of sleep



  • SomnusNooze 01/06/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • SomnusNooze 01/20/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • SomnusNooze 01/27/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • SomnusNooze 02/10/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • Snooze TV Episode 2: All About Idiopathic Hypersomnia

                    Did you miss this event?  Click to watch the recording! Click the calendar link for more info.  The Hypersomnia Foundation presents Snooze TV Episode 2 which includes a guest panel of people who have Idiopathic Hypersomnia. This episode will air LIVE on Friday February 13, 2015 at […]


    FREE

  • SomnusNooze 02/24/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • SomnusNooze 03/03/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • Snooze TV Episode 3: Narcolepsy Advocacy

                Did you miss this event?  Click to watch the recording!  Click the calendar link for more info.  The Hypersomnia Foundation presents Snooze TV Episode 3 which includes a guest panel of narcolepsy experts and advocates. This episode will air LIVE on Friday March 13, 2015 at 8:00 pm, EST on our […]


    FREE

  • SomnusNooze 03/17/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • SomnusNooze 03/31/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • SomnusNooze 04/07/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • SomnusNooze 04/21/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • SomnusNooze 04/28/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • Snooze TV Episode 4: How to Start a Support Group

      Did you miss this event?  Click to watch the recording! Click the calendar link for more info.  The Hypersomnia Foundation presents Snooze TV Episode 4 which includes a guest panel of support group leaders and experts. This episode will air LIVE on Friday May 8, 2015 at 8:00 pm, EST on our Google+ Event Page.  Then, […]


    FREE

  • SomnusNooze 05/12/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • SomnusNooze 05/26/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • SomnusNooze 06/02/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • Snooze TV Episode 5: Ask the Conference Committee

    Click the calendar link for more info.  The Hypersomnia Foundation presents Snooze TV Episode 5 which includes a guest panel of 2015 conference committee members. This episode will air LIVE on Friday June 12, 2015 at 8:00 pm, ET on our Google+ Event Page.  Be sure to tune in for a BIG announcement! https://plus.google.com/u/0/b/111296246498731769995/events/cebjd75hompfoe7ithnfdbldop4 Then, join […]


    FREE

  • SomnusNooze 06/16/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • SomnusNooze 06/30/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • SomnusNooze 07/07/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • Hypersomnia Conference Social Event: Trip to the Georgia Aquarium

    Will you be arriving Friday morning? Consider joining us for this fun social event on Friday. We will be taking an afternoon trip to the Georgia Aquarium. Your ticket includes charter bus transportation to and from the Aquarium, and your entrance into the Aquarium. Once inside the Aquarium, you will also be able to attend […]


    $55.00

  • ATLANTA: 2015 Hypersomnia Foundation Conference

    Be sure to grab your 2015 Hypersomnia Conference ticket while they are available. The 2015 Hypersomnia Conference ticket includes entry to the conference event on Saturday 07/18/15 and includes a continental breakfast, buffet lunch, as well as a buffet dinner. Additionally, enjoy coffee, tea, sodas, water, and snacks throughout the conference day. Tickets are first come, first […]


    $209.00

  • Hypersomnia Conference Social Event: Pajama Party

    Looking to extend your conference experience with a social event? Staying at the Emory Conference Center Hotel Saturday night? Join us for a Pajama Party Saturday evening after the conference! Come join your friends for a cosmic bowling tournament, pool tables, shuffle board, video gaming station, and hanging out in a fabulous lounge area. There […]


    $50.00

  • SomnusNooze 07/28/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • SomnusNooze 08/04/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • Snooze TV Episode 7: 504 Accomodations

    Follow the Hypersomnia Foundation on Google+ and check out all of our listed events.  Snooze TV is a live, Google Hangout on Air broadcast that takes place the 2nd Friday of every month on the Hypersomnia Foundation's Google+ page.  Won't you join us?


    FREE

  • SomnusNooze 08/25/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • SomnusNooze 09/01/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • Snooze TV Episode 8: Assistive Technology

    Follow the Hypersomnia Foundation on Google+ and check out all of our listed events.  Snooze TV is a live, Google Hangout on Air broadcast that takes place the 2nd Friday of every month on the Hypersomnia Foundation's Google+ page.  Won't you join us?


    FREE

  • SomnusNooze 09/22/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • SomnusNooze 09/29/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • Snooze TV Episode 9: GABA

    Follow the Hypersomnia Foundation on Google+ and check out all of our listed events.  Snooze TV is a live, Google Hangout on Air broadcast that takes place the 2nd Friday of every month on the Hypersomnia Foundation's Google+ page.  Won't you join us?


    FREE

  • SomnusNooze 10/20/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • SomnusNooze 10/27/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • SomnusNooze 11/10/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • Snooze TV Episode 10: Hypersomnia Research Updates

    Follow the Hypersomnia Foundation on Google+ and check out all of our listed events.  Snooze TV is a live, Google Hangout on Air broadcast that takes place the 2nd Friday […]


    FREE

  • SomnusNooze 11/24/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • SomnusNooze 12/01/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • Snooze TV Episode 11: Patient Registry Update

    Follow the Hypersomnia Foundation on Google+ and check out all of our listed events.  Snooze TV is a live, Google Hangout on Air broadcast that takes place the 2nd Friday of every month on the Hypersomnia Foundation's Google+ page.  Won't you join us?


    FREE

  • SomnusNooze 12/22/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • SomnusNooze 12/29/15

    Today, the newest edition of the Hypersomnia Foundation newsletter, SomnusNooze, is released.


    FREE

  • Top Docs Radio

    Hypersomnia Foundation’s Catherine Page-Rye will be live on Top Docs Radio, Tuesday April 18 at noon EDT.


  • BOSTON: HF #BeyondSleepy Conference

    1:00-4:30PM – HF Regional Conference at the historic Boston Public Library at Copley Square, 700 Boylston St., Boston, MA 02116 We have booked Rabb Lecture Hall in the newly renovated Johnson Building at the Boston Public Library for another fabulous regional conference featuring dynamic speakers.In this state-of-the-art facility, our outstanding speakers will cover research updates […]


  • Idiopathic Hypersomnia Awareness Week 2017

    HF is getting ready to mark Idiopathic Hypersomnia Awareness Week, September 4-10 ! Created by Hypersomnolence Australia, we plan to do our part to help raise awareness during IHAW. Please put the dates in your calendar, and be sure to check our social media each day during this important awareness event!


  • World Sleep 2017

    The Hypersomnia Foundation will have a booth at the Exhibit Hall at the World Sleep Congress meeting in Prague this October! “We believe it is important to take this opportunity to increase awareness of IH at this important global meeting of sleep professionals,” said Diane Powell, Chairwoman of HF’s Board of Directors. “It’s also encouraging […]


  • DENVER: ACHA (American College Health Association) 2019 Annual Meeting


    Sheraton Downtown Hotel, Denver, Colorado


    1550 Court Place, Denver, CO, United States

    Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! HF will exhibit and network among nearly 2,000 college health providers to raise awareness of IH and provide education about rare sleep disorders to those most likely to be consulted by sleepy students. As part of […]


  • SAN ANTONIO: SLEEP 2019 – APSS (Associated Professional Sleep Societies) Annual Meeting


    Henry B. González Convention Center, San Antonio


    900 E Market St, San Antonio, TX, United States

    Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! HF will exhibit and network among more than 5,000 sleep medicine providers, researchers and pharmaceutical companies to raise awareness of IH and related disorders and advocate for increased research and better treatments. Attendees come from around […]


  • BOSTON: ASCA (American School Counselors Association) 2019 Annual Conference


    Hynes Convention Center, Boston MA


    900 Boylston St, Boston, MA, United States

    Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! HF will exhibit and network among nearly 3,600 school counselors to raise awareness of IH and provide education about rare sleep disorders to those most likely to be sent students who frequently sleep in class. As […]


  • SEATTLE: HF Educational Meeting


    Seattle Airport Marriott


    3201 South 176th Street, Seattle, WA, United States

    This Seattle meeting will be one of a series of educational meetings HF will begin holding in 2019 and beyond. We hope that holding one-day meetings in a variety of locations will allow more people with IH and related disorders, as well as their supporters, to take part in an HF event. This gathering will […]


    $25

  • KANSAS CITY, MO: AAFP (American Association of Family Physicians) National Conference for Medical Students and Family Medicine Residents


    Kansas City Convention Center


    301 West 13th Street, Suite 100, Kansas City, MO, United States

    Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! As part of HF’s new 2019 initiative, we are reaching out to the professionals who are most likely to encounter sleepy people! At this conference, HF will exhibit and network among 2,500 medical students and family […]


  • BIRMINGHAM: The First Annual Meeting of SBSM (The Society of Behavioral Sleep Medicine)


    Renaissance Birmingham Ross Bridge Resort & Spa


    4000 Grand Ave, Birmingham, AL, United States

    Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! The Hypersomnia Foundation has accepted an invitation to work with SBSM in the preparation of an educational program on idiopathic hypersomnia. Dr. Lynn Marie Trotti, chair of HF’s Medical Advisory Board, will provide two lectures, and […]


  • VANCOUVER, BC: WUN-HF Education Day


    Vancouver Convention Centre, Vancouver, B.C., Canada


    999 Canada Pl, Vancouver, British Columbia, Canada

    Understanding Narcolepsy and Hypersomnia: Insights and Perspectives This free event is open to everyone! HF is collaborating with Wake Up Narcolepsy to hold an Education Day on Saturday, September 21st in Vancouver, B.C. at Sleep Expo 2019:  This one day conference is for people with narcolepsy and/or idiopathic hypersomnia, their families, educators, clinicians and researchers. […]


  • PHILADELPHIA: AAFP (American Association of Family Physicians) Family Medicine Experience (FMX) 2019


    Pennsylvania Convention Center, Philadelphia, PA


    1101 Arch St, Philadelphia, PA

    Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! As part of HF’s new 2019 initiative, we are reaching out to the professionals who are most likely to encounter sleepy people! At this conference, HF will exhibit and network among 5,000 family medicine physicians in […]


  • CHICAGO: HF Educational Meeting


    Sheraton Suites, Chicago O'Hare


    6501 Mannheim Road, Rosemont, IL, United States

    The Hypersomnia Foundation is holding a Patient Education Meeting on Saturday, October 19th in Chicago at the Sheraton Suites O'Hare Hotel, from 10:00 a.m. - 3:00 p.m. Tickets are $25 and includes a buffet lunch. Registered event attendees are invited to attend a free Meet & Greet socializing hour planned for Friday, October 18 at […]


    $25

  • ATLANTA: The Southern Sleep Society 42nd Annual Meeting


    Renaissance Waverly Hotel and Convention Center


    2450 Galleria Pkwy, Atlanta, GA, United States

    Note: This is not a patient event. Read on to learn why HF is participating in this important meeting! HF is participating in this event and providing a patient panel on Friday, March 27, 4:00 PM - 5: 30 PM, titled Patient & Physician Stories & Perspectives in an Era of Novel Treatment Modalities. HF's […]


  • PHILADELPHIA: HF Conference


    Le Méridien Philadelphia


    1421 Arch Street, Philadelphia, PA, United States

    The Hypersomnia Foundation has CANCELLED our June 2020 Conference. Due to the COVID-19 restrictions and concern for the healthand safety of our community, the Hypersomnia Foundation is canceling our June 2020 Conference in Philadelphia. While there is no doubt this is the right decision, and many have lost much more to this pandemic, it’s still […]


  • BERLIN/VIRTUAL: EU-NN’s European Narcolepsy Day 2020

    This event is open to both patients and sleep medicine professionals. Due to the COVID-19 pandemic, this meeting will be virtual. Get the program, keeping in mind that Berlin is in the Central European Time zone. However, the events will be uploaded afterward and available on demand. Register by August 31, 2020.


  • VIRTUAL: American School Health Association 2020 Conference

    As part of our mission to raise awareness about IH and related disorders, HF will be attending the American School Health Association’s 2020 virtual conference, where our Medical Advisory Board chair, Dr. Lynn Marie Trotti, will discuss Sleepy Students and Idiopathic Hypersomnia.  Greater awareness of IH by school health professionals means a greater chance that […]


  • VIRTUAL: Society of Anesthesia and Sleep Medicine 10th Annual Meeting

    FREE VIRTUAL CONFERENCE! The Society of Anesthesia and Sleep Medicine’s (SASM) 10th Annual Meeting is October 1-2, 2020. This year's theme is “Innovation & Synergism in Sleep, Perioperative Care & Chronic Pain: The Future is Here” and will feature a keynote address from Dr. Jerome Adams, MD, U.S. Surgeon General. Note: If you can't attend […]


  • VIRTUAL: HF’s The Research Continues

    The COVID-19 pandemic has left many in the hypersomnia community wondering about the status of clinical trials and research studies—how have they been affected by the lockdowns and safety advisories? Find out the latest answers! Join us on October 24 for a FREE, interactive, 90-minute virtual program, during which hypersomnia experts from both the research […]


    Free