News, Stories and Updates From the World of Sleep
SomnusNooze Video Topics: Non-HF Conference / Research / Education Videos
2020 October – Michelle Emrich, MD – “A Doctor’s Once Agile Brain Broken by IH”
Michelle Emrich is an internal medicine physician whose beloved career was cut short when she was 32 years old by the onset of severe, treatment-refractory idiopathic hypersomnia. In this video, she describes how IH broke her formerly agile brain, leading... read >
2020 October – Meghan Mallare – “Sleeping My Life Away”
Meghan Mallare is 26 years old and from southwest Virginia. When she is not sleeping her life away, she works part time as a medical scribe and enjoys cooking and spending time with her puppy. In this video, Meghan describes the profound impact idiopathic... read >
2019 March – Lisa Massey, Program Manager, Office of Strategic Planning, NORD – “How to Make Your Health Insurance Work for You”
Are you satisfied with your health insurance benefits? Or are you pulling your hair out over complicated policy language, undecipherable diagnostic codes, and denials of coverage for your IH treatments? This one-hour, live broadcast provides clear and... read >
2019 January – Amanda Freeman, PhD – “Learning About GABA” – Part 1 of 2
What is GABA? And what does it have to do with hypersomnia? A new video series by neuroscientist Amanda Freeman, PhD, of Emory University describes, in layman’s terms, exactly what y-aminobutyric acid, better known as GABA, is, and how it affects sleep.... read >
2019 February – Amanda Freeman, PhD – “Learning About GABA” – Part 2 of 2
In this second part of Dr. Freeman’s 2-part video series about GABA, she explains exactly how GABA promotes sleep – and that is by inhibiting the activity of all of the 5 wake-promoting transmitters. Dr. Freeman also describes how research by Dr.... read >
2018 September – David Rye, MD, PhD, HF SAB Chair – “Narcolepsy & Its Borderland: New Insights Into the Origins of Persistent Sleepiness.”
This video is a recording of a live feed of a Department of Psychiatry grand rounds at Emory University, held on 9/26/18 and led by Dr. David Rye. To view this video, you will need to download Adobe Connect. read >
2017 June – HF Board Member Amy Haraden Speaks About Living With IH at SLEEP2 Conference
On June 3, 2017, HF Board Member Amy Haraden participated in a Patient Panel at the SLEEP2 (PCORI) Conference organized by Project Sleep. SLEEP2 is a project co-led by the University of Arizona, the Sleep Research Network, and Project Sleep, and is funded... read >
2017 January – Global Genes RARE Webinar – “Make Sense of Your Dollars”
Are You Financially Prepared Going Forward? Whether you’re a person with a hypersomnia or one of their supporters, the struggle to ensure financial security is very real. Are terms like “special needs trusts”, “government benefits”,... read >
2016 April – Hiroki R. Ueda, MD, PhD – “Brain Calcium Controls How Long We Sleep”
How do our brains control when we go to sleep and when we wake up? Previous studies have tried to answer this question, but, despite years of research, our understanding of this process is incomplete. Therefore, the goal of this Japanese research study... read >
2013 – David Rye, MD, PhD, HF SAB Chair, Presents at Narcolepsy Network Conference – “What’s in a Name? Understanding the Origins of the Terminologies for the Family of Hypersomnias”
How did the terms “narcolepsy,” “narcolepsy without cataplexy” and “idiopathic hypersomnia” come about? What role did the MSLT (Multiple Sleep Latency Test) play in the development of these terms? This video is a fascinating (and funny)... read >