News, Stories and Updates from the World of Sleep
SomnusNooze Video Topics: The Hypersomnia Foundation's Conference Videos
2018 June – “IH and Disability: What You Need to Know” – Anjel Burgess, a disability attorney, discusses her work advising clients, including idiopathic hypersomnia patients, on their rights and obligations with respect to long-term disability.
Bio: Attorney Anjel Burgess boasts impressive academic credentials and has developed a wealth of knowledge in the area of disability law. Attorney Anjel Burgess received her BA from North Carolina State University, an MA from the University of South... read >
2018 June – “Participating in a Clinical Trial” – Veronica Moore, MA, Clinical Manager IQVIA Patient Advocacy/Insights Lead
Veronica Moore, MA, Patient Advocate and Insights Lead IQVIA™, a leading global organizer of clinical trials, discusses how patient data influence the design and endpoints of clinical trials and how patients can best engage with the clinical trial... read >
2018 June – Kiran Maski, MD, MPH, HF MAB Member – “Diagnostic Challenges of Pediatric Hypersomnia Disorders”
Dr. Maski is an assistant professor at Harvard Medical School and a child neurologist and sleep medicine specialist at Boston Children’s Hospital. She runs the Neurology Sleep Clinic at BCH and is the assistant program director for the Child Neurology... read >
2018 June – Thanh Dang-Vu, MD, PhD, HF MAB Member – “Structural and Functional Brain Alterations in Idiopathic Hypersomnia”
Do people with IH have different brains than people without IH? According to a Canadian research study involving one of our Medical Advisory Board members, the answer is “yes.” The HF is very honored to have Dr. Thanh Dang-Vu’s video explaining... read >
2018 June – Andrew Jenkins, PhD – “IH and GABA” (Note: please refer to the PDF of his slides, below, which is updated compared to the version presented in the video.)
Dr. Jenkins is an Associate Professor of Pharmacology and Anesthesiology at Emory University in Atlanta, GA, where he also serves as the Division Chief for Basic Science Research. He obtained his PhD in Biophysics from Imperial College, London and has... read >
2018 June – Lynn Marie Trotti, MD, MSc, HF MAB Chair – “Conventional (and Not-So-Conventional) Treatments for Idiopathic Hypersomnia”
Dr. Trotti discusses conventional IH treatments of modafinil, armodafinil, and various stimulants as well as the not-so-conventional treatments of sodium oxybate, clarithromycin, compounded flumazenil, levothyroxine, and transcranial direct current... read >
2018 June – David Rye, MD, PhD, HF SAB Chair – “A Bird’s Eye View: Progress & Challenges in the Diagnosis & Treatment of Idiopathic Hypersomnia”
What advances have we made in identifying, diagnosing, and treating idiopathic hypersomnia (IH) over the years? What challenges still exist, and how do we overcome them? How might discoveries in other fields impact research into IH, and lead to new... read >
2018 June – Isabelle Arnulf, MD, HF MAB Member – “Women and Hypersomnia”
For both men and women, having a rare sleep disorder and managing its treatment is a challenge. But for women, it can be especially complicated. As they make decisions about contraception, pregnancy, breastfeeding, and other issues unique to women, they... read >
2016 September – Lynn Marie Trotti, MD, MSc, HF MAB Chair – “HF’s Patient Registry at CoRDS”
Dr. Trotti discusses CoRDS patient registries, the impact a patient registry can have on research, and specific details for the Hypersomnia Foundation's Patient Registry. For more information, CLICK HERE. read >