Personal Journey Stories

Spotlight – People with Hypersomnia

What is it like to walk a mile in the shoes of people with hypersomnia?  Read their personal stories below.

Board Member Amy Haraden Speaks About Living with IH at SLEEP2 Conference

The Long and Sleepy Road: A Parent’s Perspective

Taking a Stand for a Proper Diagnosis

Drowning in Sleep

A Two-for-One Challenge

What Was It I needed?  My Grocery Trip with Brain Fog

I’m Not Lazy!

Or find all our Personal Journey stories HERE.

Share Your Journey

Coming to terms with having a chronic condition such as idiopathic hypersomniaKleine-Levin syndrome, or narcolepsy often involves a long and sometimes convoluted process. Unfortunately, the journey does not end once the correct diagnosis is reached. Knowing that others have taken a similar journey, however, can lessen a person’s burden. And hearing about others’ coping strategies can help people who are currently struggling.

Maybe you found the words that made a doctor finally listen to you. Perhaps you developed specific techniques over the years that helped you to function. Possibly you identified a new career that enabled you to maximize your potential. Don’t leave other folks with hypersomnia by the side of the road to complete this journey alone. Won’t you assist others by sharing your story in a future edition of SomnusNooze? Click below to share your journey.

Share Your Journey

Get SomnusNooze, our e-newsletter

Sign up to receive HF updates, news from the world of sleep research, first-person stories, and more.

You will receive and email from (please check your junk/spam folder if needed) to confirm your subscription to our newsletter through MailChimp. You are not subscribed until you confirm. Thank you for your interest in Hypersomnia Foundation!