Healthcare Providers

The Hypersomnia Foundation provides numerous free and vetted resources for healthcare providers, including patient materials, listing in our provider directory, links to clinical trials and much more.

Healthcare Provider Directory

Continuing Medical Education (CME)

Get CME credits for learning about idiopathic hypersomnia (IH), including its differential diagnosis and treatment:

Resources for Diagnosis

Resources for Treatment

  • Treatment. A detailed review of current and upcoming treatment options for idiopathic hypersomnia by our Medical Advisory Board.
  • Idiopathic Hypersomnia Severity Scale (IHSS). Get free access to this validated tool designed specifically to measure the spectrum of IH symptoms.
  • Parenthood & Pregnancy. Considerations for people who have hypersomnias; vetted by OB/GYN, pediatrics, sleep medicine and lactation experts.
  • Birth Control, Menstruation & Menopause. Considerations for people who have hypersomnias; vetted by gynecology and sleep medicine experts. 
  • Anesthesia, Hospitalization and Emergency Planning. Access and print our essential Guide for your patients who need to undergo anesthesia or hospitalization or who want to be prepared in case of emergency (or contact us to request free copies). We make preoperative consults easier with our Anesthesia/Hospital Care Plan template—simply fill in the blanks online and print. (Earlier versions of these documents are available in Deutsche, English, Español, and Français).
  • Disability & Health Insurance. Help your patients learn more about finding insurance and filing claims successfully in order to access necessary medical care at an affordable price or set up a disability income stream if they can no longer work. (For workplace accommodations, refer them HERE.)
  • Support Groups. The Hypersomnia Alliance (HA) maintains a list of some available support groups to which you can refer your patients, or they can follow HA on Facebook HERE
  • Emotional Well-Being. Refer your patients to our articles on this important topic.
  • CBT for Hypersomnia. A journal article on CBT clinical trial results. A copy of the treatment manual is available on request from the primary author.
  • Clinical Trials/Research Studies. Ongoing research studies for your patients with IH and related disorders, including resources to help access medications that aren’t yet widely available. 
  • MAB & SAB. Meet the distinguished members of our Medical and Scientific Advisory Boards.

More Resources for Patients

  • HF Brochure & IH Medical Alert Card. Print or request for your patients, and/or simply direct them to our website. Our brochure is available in Deutsche, English, Español, and Français.
  • Sleeping/Napping in Cars Safely. Do your patients nap in their cars? Please refer them to our guide for how to do so more safely.
  • Self-Advocacy Tips. Print for your patients, or simply direct them to our webpage.
  • Tips for Supporters. Check out and share our helpful tips from people who have hypersomnias and their supporters.
  • Ask the Doctor Q&As. A collection of questions asked by our constituents, with answers written – or vetted by – experts.
  • Personal Journey Stories. Learn how IH and related disorders affect real people. Encourage your patients to explore these and to consider submitting their own stories. They can also apply to be matched with a medical student who wants to learn more about living with a rare disease.
  • Videos/Podcasts. Access HF conference videos, press videos, and more.
  • Journal Article Summaries. Read or share our summaries, which are designed to make research easier to understand.

Resources for Students and Families

Events & Speakers 

  • Learn more about our speakers, where we’ve been and where we’re going. Watch conference videos.
  • Attend and/or participate in a cutting-edge HF event. 
  • HF also attends a number of conferences each year to promote awareness and provide education. 
  • If you would like to speak at a future HF event, meet with an HF board member, OR are interested in finding a speaker (patient advocate or medical professional) OR are seeking a patient panel to discuss “living with IH”, please contact us.

HF’s International Patient Registry 


The contents of this website, including text, graphics and other material, are for informational purposes only. This website is not intended to be a substitute for professional legal or medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Always consult your own attorney or other legal advisor with any legal questions you may have. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisors, products, procedures, opinions or other information referenced on this website. Reliance on any information on this website is solely at your own risk.

The Hypersomnia Foundation makes no representations or warranties about the satisfaction of any government regulations requiring disclosure of information on prescription drug products. In no event shall The Hypersomnia Foundation be liable for any damages (including without limitation incidental and consequential damages) or costs (including without limitation attorney’s fees) based on any claim arising from the use of this website and/or its content.