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#BeyondSleepy

Welcome to the Hypersomnia Foundation, committed to improving the lives of people living with idiopathic hypersomnia (IH) and related sleep disorders.

Idiopathic hypersomnia (IH) is a chronic neurological sleep disorder.

People with IH crave sleep in the daytime, no matter how many hours they sleep at night. They struggle to wake, despite setting multiple alarms, and may have difficulty rising from bed (called sleep inertia). They may start the day feeling extremely groggy (sometimes referred to as sleep drunk), and can experience reduced focus and concentration during waking hours (called brain fog).

People with idiopathic hypersomnia often live without a correct diagnosis for a long time, blaming themselves and struggling to maintain work, studies and relationships. 

If you or a loved one has IH or a related sleep disorder, you’ll find understanding and up-to-date information here. (All medical info is reviewed by the sleep specialists and researchers on our Medical and Scientific Advisory Boards.) Explore our site to learn more about the science of sleep and the status of research, download guides for students, find clinical trials, consult the directory of physicians, join our patient registry, and much more.

In 2016 the Hypersomnia Foundation launched a patient registry. You may be able to help provide researchers with vital data!

Our Mission

To improve the lives of people with idiopathic hypersomnia and related disorders by advocating on their behalf, providing support, educating the public and healthcare professionals, raising awareness, and funding research into effective treatments, better diagnostic tools, and, ultimately, a cure for these debilitating conditions. The Hypersomnia Foundation is incorporated as a 501(c)(3) nonprofit.

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Raising Awareness

HF strives to increase community and physician awareness of idiopathic hypersomnia and related disorders.

Sharing Tools and Information

We provide education and resources for people with hypersomnia, their supporters, and healthcare providers.

Promoting Research

HF advocates for research into the causes and treatments of IH, in the quest for improved outcomes and quality of life for people with hypersomnia.

“Ask the Doctor” Discontinued

Dear Reader: On behalf of the Hypersomnia Foundation, we would like to first thank you for your submissions to the “Ask the Doctor” column. It is with regret that we also extend an apology for not yet responding to all the submitted questions. Unfortunately, the...

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Need Surgery, but Have IH?

We’ve summarized a journal article that addresses some anesthesia considerations for patients with idiopathic hypersomnia. If you need to have surgery of any kind, you may want to share this information with your healthcare providers. Summary of: Aflaki S, Hu S, Kamel RA, Chung F,...

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Introducing the Updated HF Brochure!

In 2014, the Hypersomnia Foundation (HF) published a brochure written for people with idiopathic hypersomnia and their supporters. Since that time, over 3,500 brochures have been sent to physicians’ offices, at their request, for distribution. We have also distributed HF brochures at conferences to help...

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