Top HF Resources

for patients, healthcare providers, and researchers

Top 10 for patients

  1. Healthcare provider directory to help you find an experienced hypersomnia provider near you.
  2. Comprehensive treatment information, including medication and non-medicine options for idiopathic hypersomnia and narcolepsy.
  3. Hypersomnia medication interactions with hormone treatments, such as hormone replacement, gender-affirming therapy, and birth control.
  4. Parenthood and pregnancy considerations for people who have hypersomnias.
  5. Health insurance: choosing policies; accessing and affording medications; appealing insurance denials for medications and other health insurance claims.
  6. Currently-recruiting research studies for people with hypersomnias.
  7. Education essentials for students living with hypersomnias: learn about your options for seeking accommodations, tips for coping, and much more, including resources and tips for your family/supporters.
  8. Preparing for emergencies, hospitalization and anesthesia: hypersomnia medications and symptoms may affect anesthesia and hospitalization decisions.
  9. Disability insurance: planning, filing and appeals. 
  10. Sign up to stay up to date with our latest news and events.

Top 10 for healthcare providers

  1. Treatment information, both pharmaceutical and non-pharmaceutical, for idiopathic hypersomnia and narcolepsy, including a link to the IHSS (Idiopathic Hypersomnia Severity Scale to help monitor treatment response.
  2. Hypersomnia medication interactions with hormone treatments, such as hormone replacement, gender-affirming therapy, and hormonal birth control (pills, patches, rings, injections & implants), including details about dosage adjustments.
  3. Appealing insurance denials, including a list of peer-reviewed journal articles by medicine.
  4. Parenthood and pregnancy considerations, including medicine and injury risks.
  5. CME links to learn more about hypersomnias.
  6. Diagnosis information and resources.
  7. Provider directory – join now so new patients can find you.
  8. Hypersomnia Foundation brochures to hand to patients (free to download or order).

Top 5 for researchers

  1. Currently-Recruiting Research Studies for participants with IH and related hypersomnias, such as narcolepsy and KLS. HF can list your study and help you recruit participants. 
  2. Research Award Program. Learn more about HF grants for IH-related research and HF’s research goals and priorities. 
  3. Guides for researchers and research and sleep study centers working with people who have hypersomnias.  
  4. IH Summary: Characteristics & Diagnostic Criteria. Access and print HF’s medical advisory board-vetted summary, or contact us to request copies.
  5. Sign up to stay up to date with our latest news and events.

The contents of this website, including text, graphics and other material, are for informational purposes only. This website is not intended to be a substitute for professional legal or medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Always consult your own attorney or other legal advisor with any legal questions you may have. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisors, products, procedures, opinions or other information referenced on this website. Reliance on any information on this website is solely at your own risk.

The Hypersomnia Foundation makes no representations or warranties about the satisfaction of any government regulations requiring disclosure of information on prescription drug products. In no event shall The Hypersomnia Foundation be liable for any damages (including without limitation incidental and consequential damages) or costs (including without limitation attorney’s fees) based on any claim arising from the use of this website and/or its content.