Our top resources

for people who have hypersomnia sleep disorders, healthcare professionals, and researchers

Top 10 resources for people who have hypersomnia sleep disorders

  1. Medicines for idiopathic hypersomnia and narcolepsy, including avoiding interactions with hormone medicines, such as birth control, hormone replacement therapy, and gender-affirming therapy
  2. Learn about clinical trials currently recruiting people with hypersomnias
  3. Quality of life tips for helpful daily practices and getting the support you need
  4. Preparing for anesthesia, hospital stays, and medical emergencies — Hypersomnia sleep disorders and their medicines may affect anesthesia and hospital stay decisions
  5. Going to school while coping with a hypersomnia — Get ideas for accommodations, tips for coping, and many more resources for you and your supporters
  6. Planning for job accommodations and disability income, including accommodation ideas, setting up disability insurance, and filing claims
  7. Pregnancy and safe baby care for all parents with idiopathic hypersomnia or narcolepsy type 1 or 2
  8. Dealing with health insurance denials — Get help with the appeals process and example appeals
  9. Saving money on prescription medicines — Get your medicines at the best price

Top 9 resources for healthcare professionals

  1. Guide for sleep study centers working with people who have hypersomnias
  2. Treating people who have idiopathic hypersomnia or narcolepsy, including hypersomnia medicines, interactions with hormone medicines, and resources for completing your treatment plan
  3. Clinician planning for anesthesia, hospitalization, and medical emergencies — Hypersomnias and the medicines to treat them may affect anesthesia and hospitalization decisions
  4. Clinician support for pregnancy and safe baby care — Help all parents with hypersomnias who are deciding about parenting, pregnancy, adoption, or nursing
  5. Join our International Directory of Healthcare Professionals for sleep doctors, therapists, and other professionals with expertise in treating hypersomnia sleep disorders
  6. Get continuing medical education to get credit for learning more about hypersomnias
  7. Dealing with health insurance denials, including example appeal letters and lists of peer-reviewed journal articles by medicine
  8. Get our brochure to hand out to your patients (free to download or to order)

Top 3 resources for researchers

  1. Resources for researchers, such as:
    1. Guides for research and sleep study centers working with people who have hypersomnias
    2. Guides for communicating, surveying, and working with people who have hypersomnias
    3. A link to the Idiopathic Hypersomnia Severity Scale to help monitor treatment response
    4. Hypersomnia Foundation’s research grant opportunities
  2. Learn about clinical trials currently recruiting people with hypersomnias — We can list your study and help you recruit participants

Published May. 26, 2022 |
Revised Jan. 28, 2024