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June 2021

VIRTUAL – Your Best Self: Getting Your Meds!

June 24, 2021 @ 12:00 pm - 1:30 pm EDT

Join us Thursday, June 24, 2021 at 12:00-1:30 p.m. (Eastern) for our FREE virtual event "Your Best Self: Getting Your Meds!”- Reducing out of pocket cost for prescription medications and appealing insurance denials. In an ideal world, your doctor gives you a prescription for a medication, the pharmacy fills it promptly, and insurance covers all or most of the cost. Unfortunately, many people with IH or related sleep disorders regularly experience breakdowns in this process. What if the out-of-pocket costs…

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September 2021

VIRTUAL: NIH NINDS Health Disparities and Inequities in Neurological Disorders Workshop

September 22, 2021 - September 24, 2021

Registration is now open for the upcoming NIH NINDS HEADWAY Health Disparities and Inequities in Neurological Disorders Workshop. The event will be held virtually from September 22nd through 24th from 12-5 pm ET daily. A detailed agenda is available on the event website. This workshop is open to all, including patients, caregivers, advocates, researchers, healthcare providers, industry, etc. NIH NINDS (The U.S. National Institutes of Health's National Institute on Neurological Disorders and Stroke) "is committed to reducing the disproportionate burden…

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October 2021

VIRTUAL: Society of Anesthesia and Sleep Medicine (SASM) 2021 Annual Meeting

October 7, 2021 - October 8, 2021

The Society of Anesthesia and Sleep Medicine (SASM) 2021 Virtual Annual Meeting “Sleep Health: The New Vital Sign” Registration is now open for the SASM Annual Meeting on October 7-8, 2021. This free virtual conference is open to patients as well as healthcare providers. Presentations and discussions tentatively scheduled are: Sleep Health and Why We Should Be Focusing on It in This Decade Sleep and the Pandemic Sleep Health: Health Care Workers Postoperative Complications in Obstructive Sleep Apnea Collaborative Guidelines on Postoperative…

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VIRTUAL: Canadian Sleep Society (CSS) Conference 2021

October 28, 2021 - October 30, 2021

For registration in French, click HERE. The Canadian Sleep Society (CSS) is hosting a virtual conference. In addition to the main scientific program, it will also feature patient engagement sessions for the public, which will be fully accessible online for free. See the full details HERE. Of particular interest to people with narcolepsy or idiopathic hypersomnia is the Narcolepsy/Hypersomnia Engagement Session on Friday, Oct. 29th: English—2 PM to 2:55 PM ET with Dr. Jason Valerio French—3 PM to 3:55 PM ET…

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November 2021

VIRTUAL – Reaching Every Patient: A Health Equity Conversation

November 13, 2021 @ 12:00 pm - 2:00 pm EST

Reaching Every Patient: A Health Equity Conversation - An HF VIRTUAL Event Saturday, November 13th 12noon-2pm (EST) Let’s talk about how we can help everyone with a rare sleep disorder get a proper diagnosis and treatment! Many people with rare sleep disorders face diagnosis and treatment delays. Some don’t seem to get a diagnosis at all: we’ve noticed that many communities are vastly underrepresented in patient registries and clinical trials - why is this? What other barriers are there? When…

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January 2022

VIRTUAL MEET & GREET – “We’re in This Together!”

January 15 @ 1:00 pm - 2:30 pm EST

Join us on Saturday, January 15, 2022 at 1:00-2:30 p.m. (Eastern)  for our VIRTUAL MEET & GREET - "We're in This Together!" Is it a challenge for you (and your supporters) to manage life with a sleep disorder? You’re not alone! We invite people with IH, KLS, and narcolepsy AND their supporters to join in the discussion as we share experiences, paths to understanding these sleep disorders, and practical ideas for coping. This 90-minute event will be led by community…

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March 2022

ROME: World Sleep 2022 (a conference for sleep medicine professionals)

March 11 - March 16

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. Check out the keynote speakers HERE.

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June 2022

CHARLOTTE, NC – HF Conference

June 3 - June 5
Sheraton Le Meridien Charlotte Hotel Complex, 555 South McDowell Street, South Tower
Charlotte, NC 28204 United States
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Join us in Charlotte, North Carolina on June 3 – 5, 2022! Join us in beautiful Charlotte for the Hypersomnia Foundation's #BeyondSleepy Conference 2022 for people with idiopathic hypersomnia, narcolepsy, and Kleine-Levin Syndrome and their supporters. After such a long hiatus from meeting in person, we are planning a great mix of speakers covering the latest in research, treatments, and clinical trials; networking, discussion sessions, a pool-side evening reception, and more. ALL MEALS AND BREAKS ARE INCLUDED IN THE LOW "EARLY…

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CHARLOTTE: APSS SLEEP 2022 (a conference for sleep medicine professionals)

June 4 - June 8

The following event is primarily for sleep medicine professionals. HF will attend as part of our mission to raise awareness and advocate for more research and better treatments. From the website SLEEP is the annual meeting of the Associated Professional Sleep Societies, LLC (APSS), which is a joint venture of the American Academy of Sleep Medicine (AASM) and the Sleep Research Society (SRS). The SLEEP meeting provides evidence-based education to advance the science and clinical practice of sleep medicine, disseminates cutting-edge sleep…

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CHARLOTTE, NC: Accredited Continuing Education Dinner Symposium

June 5 @ 6:30 pm - 8:30 pm EDT
The Westin Charlotte, 601 South College Street
Charlotte, NC 28202 United States
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NOTE: The intended audience for this CME/CE certified symposium is sleep specialists, psychiatrists, neurologists, and advanced-practice clinicians. The Hypersomnia Foundation is partnering with Haymarket Medical Education on a complimentary accredited continuing education dinner symposium, “A New Dawn for Better Outcomes in Patients With Idiopathic Hypersomnia: New Data, New Guidance, New Treatments" being held on Sunday, June 5, 2022. The symposium is being presented at the SLEEP 2022 conference in Charlotte, NC, so it’s a great opportunity to participate in this…

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