Hypersomnia Foundation

BOARD OF DIRECTORS

Diane Powell – CEO/Chair

Diane is a founding member of a women’s philanthropy group, formed by Population Services International, Inc. in partnership with the Gates Foundation, to improve the health outcomes of women and girls in developing countries. Diane is currently collaborating on a pilot project to provide mobile medical units in the marketplaces of rural villages of southern Senegal, to help reduce maternal and infant mortality. In addition, she is supporting a social franchise model of women’s clinics in Honduras, which offers treatment for gender-based violence in addition to medical services.

As a Licensed Clinical Social Worker, Diane has used her skills to provide psychotherapy for clients struggling with anxiety, depression, bipolar illness and many other mental health diagnoses. Her previous community projects include leading a task force on alcohol abuse among expat teens in Singapore and founding a bereavement support group for young widows and widowers in Florida. Through a program of the Episcopal Church, Diane helped lead the launch of community projects in Guatemala among Mayan populations devastated by years of civil war.

Diane is president and co-founder of The Robertson Powell Foundation, which supports research and innovation in the field of health. In 2014, an alert physician diagnosed one of Diane’s family members with hypersomnia. Since then, Diane and her husband, Andrew, have discovered the Hypersomnia Foundation and are proud to support its mission of promoting research and advocacy.

Catherine Page-Rye – CFO

Cat graduated from the University of Illinois-Chicago and in 1979 founded Clerks on the Run, a company servicing Chicago area Attorneys. In 1984, she married David Rye, a medical student who was completing his MD and PhD degrees at the University of Chicago, and is mother to three adult children.

After selling her interest in Clerks on the Run, she and her brother started Page Builders, Inc, a custom, high-end, residential construction company that, between the years 1984 and 2007 grew into a successful company. This small business at one time had 9 full-time employees. In 1992, David accepted a faculty position at Emory University and, the family moved to Atlanta, Georgia. Catherine continued to commute to her business in Chicago.

In 2005 she established Charles Page Builders, LLC, as a new entity focused upon high-end remodel work on Chicago’s north shore. In her role as president of both companies, she was responsible for bidding all projects, preparing and communicating about proposals and change orders to clients, interviewing subcontractors, negotiating and awarding  contracts, negotiating insurance, applying for permits, and supervising office staff and job site superintendents.

Upon selling this company, Catherine has embraced volunteerism as a new passion in her life. She was chairperson of the stewardship committee of Atlanta Unity Church from 2011-2014, sings in the choir, and is a newly elected executive board member. She has been active as a cofounder of the Hypersomnia Foundation and is committed to increasing awareness and advocating for proper diagnosis and successful treatment for every person living daily with hypersomnia.

Celia King – Secretary

Ms. King serves as the CEO for Leadership Newark, Inc., a nonprofit agency in New Jersey. Her responsibilities include the day-to-day management of a sizable budget, along with the oversight of several training programs offered by Leadership Newark in the areas of public policy enrichment, leadership development, and civic engagement for adults. As an advocate of civic participation, Celia takes her role seriously in engaging the public to be informed and involved in the community. She not only encourages involvement, but also maintains an active civic resume herself.

Ms. King is an elected official who served as Councilwoman in her hometown of Maplewood, New Jersey. During her tenure, she also served in the capacity of Deputy Mayor for 5 years. Currently she actively serves on several nonprofit boards in New Jersey and is excited to join the Hypersomnia Foundation Board.

Celia is also a former hospital administrator and feels that experience positions her to be an asset on the Hypersomnia Foundation Board. She has worked with Institutional Review Boards, worked closely with Principal Investigators overseeing experimental protocols, and had the responsibility of randomizing patients for various clinical regimens. This, coupled with her personal experience of having a family member with IH, enables her to be quite committed to the mission of the Foundation and one who enthusiastically supports research to perhaps lead to an eventual cure.

She holds a Master’s degree from Milano The New School University for Management and Urban Policy and completed her undergraduate studies at Syracuse University.

Mary A. King, Ed.D. 

Prior to being appointed to its Board, Mary volunteered with the Hypersomnia Foundation. She is Professor Emerita, Fitchburg State University (MA), where she was faculty in the Behavioral Sciences. A psychologist and educator by training, she held graduate and undergraduate faculty appointments, chaired/coordinated academic programs, and instructed applied ethics and professional issues across academic disciplines.  She supported her department extensively by serving on peer review committees, chairing its ethics committee, and overseeing its field placements.

Prior to her faculty work, she was a K-12 classroom teacher certified in special education and a probation officer for juveniles (MA). A psychotherapist, she is licensed in mental health, social work, and marriage and family therapy.

Mary has served on regional and national boards in human service education and community boards in human services. She recently completed a 10-year tenure on the Board of Directors of the National Society for Experiential Education; she served on its Executive Committee as Vice President, oversaw its Experiential Education Academy, and instructed workshops for faculty and staff in higher education. She continues to serve NSEE by overseeing its Distinguished Scholars initiative. Mary also serves on the University Advisory Group of United Planet, consults to higher education in experiential education and academic internships, and continues to publish in the field of experiential learning. She is the recipient of numerous recognitions and awards in human service and experiential education.

Mary is the mother of a young adult diagnosed with idiopathic hypersomnia. She and her husband, Peter, live in the Boston area, where they spend much time involved with snow sports and outdoor life.

Michelle A. Emrich, MD

Michelle is a physician whose love of medicine began in a medical anthropology course at Rice University. With her career interests cemented during her undergraduate education, she headed to The Ohio State University to earn an MD. Discovering her enjoyment of longitudinal comprehensive patient care, Michelle quickly realized she was a born Internist. After completing her Internal Medicine residency at Emory University, she joined a small legacy private practice, managing care for a patient group that included families who had entrusted their healthcare to the practice for over 30 years.

Unfortunately, just 4 short years later, a diagnosis of severe Idiopathic Hypersomnia (IH) forced Michelle to sacrifice her cherished career. Having never heard of IH during her medical training, she was further disillusioned by the scarcity of relevant research and accessible information. Realizing that more needed to be done, Michelle became passionate about increasing awareness of primary hypersomnias not only among medical professionals, but also within the general public.  She fervently hopes that increased awareness will lead to more research and eventually a treatment option that will allow her to return to her beloved career.  Meanwhile, Michelle is honored to serve the Hypersomnia Foundation.

Amy Haraden

Amy Haraden is a long-time supporter of and volunteer for the Hypersomnia Foundation. Prior to being elected to the Board, she was one of the founders of the PAAC (a Board Advisory Council) and volunteered on the Council since its inception in late 2015. Amy is currently employed as an Accounting Analyst at TripAdvisor, and she is a graduate of Stonehill College (BSBA) and Northeastern University (MSA). Amy is passionate about raising awareness and advocating for people with Hypersomnia.